I was diagnosed with Graves disease in April 2012. After taking neo-mercazole I became hypo and was put on thyroxine. A month later I was hyper again. I then went into remission until 4 weeks ago when I was rushed to hospital with suspected heart attack. My heart was racing, sweating, diarrhea, palpitations, aches and chest pain...I had it all..and yes my thyroid had become severely hyper again. Im now on propranalol 60mg and carbi 30mg, but I am so over feeling sick all of the time...I cant even seem to remember what feeling normal is.
I still have terrible diarrhea, and have gained 20kg in 4months.
Am I the only one who has gained weight with Graves disease. Im constantly hungry.
I really just want to be well again....im 41 years old and have a 95 year old Grandmother who is in better health than me
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kezza15
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Hi Kezza, sorry you are having such a bad time. I have been diagnosed with Graves after about two years after I had the worst sore throat ever followed by many more. It came after a long period of stress (including divorce and a son serving as a medic in Afghanistan twice. My main symptoms which came to a head last Feb were weight loss ( my friends were sick of me eating and not putting on an ounce....) but there was the other 'end' to contend with, the constant running to loo. When my bloods were taken my TSH was non-existent and T4 nearly 70. I had palpitations and night sweats but thought they were menopausal. I was put on 40mg carb and propanalol. They wanted to do block and replace and I think that works fine for some people. I chose, instead, to go for monthly bloody tests and reduce the drug as blood results came back to normalish whatever that is for individuals. I am now on 2.5mg of carb daily and feel fine. I have completely turned around my diet and life as well. I ditched wheat completely and felt almost immediately better and more energetic. I reduced alcohol consumption as drinking it seemed to increase the palpitations (although going to push the boat out a bit for Christmas), reduced dairy and more or less cut our caffeine. I feels this has really helped. I also have acupuncture once a month which I find brilliant and massage once a month which I love. I have tried to cut out stress as much as possible and when I can't try to change my reaction to it..... a siesta is wonderful if I can grab it. I feel so much better (touching a forest of wood) that I have started very gentle jogging again.. I don't take my health for granted and find this site very helpful. xxx
I felt awful on carbimazole until I got down to the 5mgs dose I like tilly83 kept reducing the dose in line with my bloods and have now been relatively well for 2 1/2 years still get the odd blip which is almost always caused by stress and I am learning that I have to deal with stuff better I also minimised wheat I don't drink it has never agreed with me and gave up caffeine 30 years ago but each journey with this disease is individual this site really helps good luck
I was prescribed 20mg of Carbimazole daily for 1 month and unfortunately over the last week I have been suffering severe stomach discomfort, indigestion and nausea. I have not been sick but I am unable to sleep from feeling like I will be sick (mouth watering) etc.
I am concerned this might be a side effect of the drug. Is this natural or should I stop medication?
I am hyperthyroid (but not of the autoimmune kind) with T4 levels around 40.3 pmol/L - normal range is 12 - 22. Planning to have bloods taken after the 1 month course, I f I can cope with all the nausea.
I had graves for 4 years and had a total thyrodecotomy in july of this year. I put on 3 stones in weight during the four years I was on carbimozole and since having the thyrodecotomy I have continued to put on weight. I had diorehea constantly with itchy skin and palpitations, sorry joints and dry skin throughout. I am alot better now though I can not find anything to wear as I went from size 12 to 18. have through it all from steroid infusions, beta blockers and radiotherapy. All I can say with the right treatment it gets better. I had thyrotosis 4 times. Good luck
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Is my blood result a sign of Graves?
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Does anyone suffer from autoimmune disease as well as hypo/hyper-thyroidism?
