Me4 hours ago
. I am currently taking 75mcg of levothyroxine and I have Graves disease. My endo won't give NDT says it's too complicated to manage. I am feeling terrible, stiff and so much pain I can hardly move somedays.
I had my thyroid out 30 years ago and was never told I had Graves' disease. It's only after having respitoryfailure in France this year that I was diagnosed with hyper active thyroid . They scanned me and said my thyroid had grown back and I was being poisoned with high doses of thyroxine. I was on 300mcg and had been telling my GP for two years how ill I was and felt thyrotoxic. My GP just said I was in range although on the high end. My TSH was 0.00 but they said they didn't take that into consideration.
I am now paying to see an endo privately who took me off all levothyroxine and has been slowly building it up from 25 mcg till now six months later 75mcg. I have bloods done again in four weeks.
I am exhausted all of the time not sleeping but it's the pain and stiffness I struggle with . So I am going to try T3 as a last resort but I don't have a clue what I am doing.
Any advice would be a real help.