I had a supposed annual health check at my gp & they didnt test thyroid. I had an abnormal liver function test so went privately for blood tests. I had no idea they didnt test thyroid. To my shock my thyroid was hyper & was informed to seek medical attention fast.
I went to a+e & was immediately sent to the heart unit & was diagnosed with hyper & possibly graves. I was given propananol & have discovered that my referral to Endo isnt there! A month I have been waiting. I cant get hold of my Gp.
I am now going privately as have no option. Please can someone recommend a GOOD endo who listens in the Cambridge/Herts/London/Sussex are as Im prepared to travel. Thank you for helping me
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Mollop
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Have you had a result back on which thyroid antibodies have been found to be positive and over range TPO: TgAB: TSI : TRab and the medical evidence of an auto immune thyroid disease ?
Apart from the beta blocker what other medications are you taking ?
Cholesterol ok. I will post my private blood results I ordered today when I get them. Blimey is it serious? I went into my gp this afternoon, didnt see a doctor & reception told me to do an e consult . They have given me 15mg Carbimazol that I pick up tomorrow. I will also get a vitamin check privately too. Am I going to get seriouly ilill?xx
Thank you SlowDragon. The help & information is so appreciated. Ive ordered a fingerprick test and now will also do a venous one. I will get my vitamins done as well xx
This will help relieve symptoms but not the route cause, - the hyper levels.
If you have continuously high thyroid level this needs treatment with an antithyroid carbimazole or PTU.
Do you have a GP? your GP can test thyroid function and test thyroid antibodies & liaise with hospital to start you on treatment before specialist appointment is arranged.
Ty doing function includes:
TSH
FT4
FT3
GPs can also arrange
TPOab (Thyroid Peroxidase antibodies)
TGab (Thyroglobulin antibodies) Which are “autoimmune markers”- appears with BOTH Hashimoto’s & Graves. Hashis causes transient hyper prior to under active. Graves continuous Hyper.
If hyper Graves Suspected a specialist needs to test
Did the hospital test any these items as often doctors go by TSH and if this is low conclude you have hyper thyroid levels.
Obtain a copy of any test results you have had.
You need a printed copy with ranges, not verbal or hand written information. You are legally entitled to results.
As it’s been a month you must be due a test. Might be quicker to arrange a private test. As Doctors often won’t / can’t test everything. Such as FT3 and key nutrients folate, ferritin, vitamin D & B12.
See List of companies offering different options, some packages include thyroid function, key nutrients and thyroid Antibodies. Others basic function only. some also have discount codes available.
You order test online the kits arrives via post sample taken by finger prick (extra fee for private venous draw). Post back and results available online quite quickly.
Is that something you think you could manage?
If you do see a private doctor it is best to have all this information 1st.
TPO antibodies are high so you have an autoimmune issue affecting thyroid.
TPO can be present with both Hashimoto’s and Graves. Often when it is this high it’s indicates Hashimoto’s and a lesser or weak elevation is seen with Graves. That that doesn’t rule out Graves, your FT4 is clearly high & TSH suppressed you need a repeat function - but you need FT3 & Graves antibodies testing.
Usually Graves antibodies test can be arranged by specialist (private options are available but it’s a pricey test & must be venous draw.
Many people prefer to confirm cause of hyper before starting carbimazole as will drive down levels. Not what you need of naturally dropping anyway.
Thank you. I feel fine. Lots of energy, slim, I dont sleep well at night, occasionally hot but Ive put itvall down to menopause & stress. I went into Gp this afternoon. I saw noone & was told to do an e consultation. I have been prescribed Carbimazol 15mg once a day. I have to pick them up tomorrow as none in stock! Shall I not take them? I ordered a fingerprick test so thats no good and I will get a venous test privately. This is so much to take in.
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