back from throat ultrasound: back from hospital... - Thyroid UK

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back from throat ultrasound

mandy72 profile image
13 Replies

back from hospital thyroid is small its an autoimmune disease attacking my thyroid he called it thyroiditis

says it was perfectly normal with underactive thyroid

so what does that mean now?

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mandy72
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13 Replies
SJaggs profile image
SJaggs

Sounds a bit my like ultrasound appoint "Its thyroiditis, i've got it, don't google it"

mandy72 profile image
mandy72 in reply toSJaggs

ummmmmm too late but im still no wiser

Clutter profile image
Clutter

It may be Hashimotos which is an autoimmune disease which attacks your thyroid. Have you had a blood test for thyroid antibodies? Treatment for Hashis is the same as for Hypothyroidism. Appropriate treatment now may stop the condition worsening.

Hashi sufferers are often gluten intolerant and coeliac. There is a blood screen for coeliac.

mandy72 profile image
mandy72 in reply toClutter

thankyou Clutter the only blood test im aware of was done twice just over 2 weeks ago and that was TSH.....appropriate treatment is very hard when i have a dr with hypothyroidism herself who says my TSH 5 is normal so i cant be feeling ill as shes on 175mcg levothyroxine and she feels fine and has nevr felt ill (i did a post about how to go about getting a second opinion showing the argument between me and dr) and has for the gluten i had an allergy test done about 3 1/2 years ago with a homeopath and im allergic to candida which means wheat gluten yeast ect i tried a diet thinking it would help with my Hidradenitis and it didnt help at all so i continued eating it

ive upped my dose today from 50mcg to 75mcg and i will tell the dr when i next go

Jackie profile image
Jackie

Hi If they found nodules be sure to ask for a biopsy. Also ask GP for a copy of the report, keep.

Jackie

mandy72 profile image
mandy72 in reply toJackie

no mention of nodules

Not a surprise to me!

Having had 2 ultrasound scans in recent times for two different conditions, neither of which actually came up with anything definitive or diagnostic, any better than a blindfolded man with boxing gloves on couldn't have done better, I am more than ever of the opinion that Ultrasound couldn't find a football in a bucket! :-(

I was left with a "can't see anything abnormal, it's probably viral thyroiditis" for the neck one, (it might have been, but it was a guess that no scan at all could have made!) and "slight prostate enlargement" for the Urinary tract one.... of course it wasn't that causing the absolutely agonising problem, it was enormous great kidney stones - both sides, immediately visible with a CT scan.

I would concur that you want to be pushing for more tests, bloods initially.

mandy72 profile image
mandy72

im going to the drs next week as need to discuss a few things that wasnt done last week due to being so upset so hopefully will get a clearer picture on the results.......just annoys me that they didnt tell me more after the scan

maybe i need to learn to be more demanding

Jackie profile image
Jackie in reply tomandy72

Hi A lot depends on 2 things, was it a large teaching hospital, I have had negative scans ( various) at local H and told everything fine, far from it.Also I had a specialist thyroid radiologist do mine, privately. The big teaching hospital I have to be admitted to is brilliant at all scans, very specialised. It is too vague what you have been told, be sure to see the report. Problem is a scan is a moving picture and if no one good doing it far from satisfactory.They are not allowed to tell you much at the time, so, be sure to see the report.

best wishes,

Jackie

mandy72 profile image
mandy72 in reply toJackie

was our main local hospital.....i know it was a quick in and out scan lasted no longer than 5 minutes

Jackie profile image
Jackie in reply tomandy72

Hi Mandy, It is a very quick procedure. So long as your local hospital is a teaching hospital, I am sure that will be fine. However, do ask the GP to see the report.I always keep copies of scans etc, useful for comparison.Mind you, with all the consultants and scans I have for various things, I have a huge, full filing cabinet!

Jackie

Jackie profile image
Jackie in reply tomandy72

Mandy, I realise I may not have made that clear. By a teaching hospital ,I mean a university one.

Jackie

Ruby1 profile image
Ruby1

My blood test showed antibodies which meant my hypothyroidism was caused by an autoimmune condition. My ultrasound scan showed nodules, but my thyroid wasn't enlarged. (My scan was quick too)

It's my understanding that different tests show different things. With an ultrasound scan I'd have thought they are looking for either an enlarged thyroid which could give difficulty breathing or swallowing, or may ( I don't know for sure) indicate cancer.

I would say don't panic. The good news is you are diagnosed and they can treat it. I know many people on here struggle to get the right medication or get a diagnosis, and they have my sympathy, but for me I have been okay on Levothyroxine for over 10 years. I'm checked annually, unless I ask because I'm not well, and my dose has increased a little over the years.

I do have days when I feel washed out, but on the whole I think there are many worse conditions.

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