So tired I feel sick !!!!: Hi all Saw Dr S in... - Thyroid UK

Thyroid UK

136,969 members160,572 posts

So tired I feel sick !!!!

HMH65 profile image
11 Replies

Hi all

Saw Dr S in Birmingham 4 weeks ago and he increased my Thyroxine from 100mcg (which I had been on for years!) to 150mcg for 3 weeks, and then 175 mcg which I am on at the moment and in 2 weeks time I have to up it to 200mcg until I next see him at the end of August

So far I have had no improvement at all. I still have very painful, aching feet (!!!!!!!!!!!) and also aching hands and wrists which is a problem since I'm a secretary.

The worst part is the complete, total and utter fatigue that I have. I am always tired and am barely able to function, even when I have had 8 hours sleep. I have no social life. I am taking Vitamin D every day. My Hb & Ferritin levels are good so I know I am not anaemic. I barely have the energy to climb the stairs and get into bed !!!! I am finding it so difficult to get out of bed in the morning and go to work. Taking time off is not an option as I am on a temporary contract at work and staff cuts are happening and a much stricter sickness policy has come into force. I am on my own to can't afford to loose my job.

Written by
HMH65 profile image
HMH65
To view profiles and participate in discussions please or .
Read more about...
11 Replies

Hello, I'm so sorry you are feeling so very bad, and I do understand. Your symptoms sound so very familiar. Did Dr. S. suggest that you might benefit from adding T3 or taking Natural Desiccated Thyroid (Armour or similar)? Did he suggest any adrenal tests? I suggest that you try to contact his office for some advice, as you should not have to suffer like this. The end of August seems a very long time off when you are seeing no improvement. Jane x

HMH65 profile image
HMH65 in reply to

Hi

I think he wanted to try me on a gradual increase of Thyroxine first, up to 200mcg to see if that worked. I think if it didn't he was thinking of T3 then. What sort of adrenall tests were you thinking of ?

in reply to HMH65

Usually you start with DHEA and cortisol. You can get these done straight away from Genova Diagnostics if you want to: thyroiduk.org.uk/tuk/testin... Thyroid hormone must have adequate cortisol in order to work properly.

You might also like to check this page on the main Thyroid UK website to see if you need any vitamin/mineral supplementation. This is very important too: thyroiduk.org.uk/tuk/diagno... (penultimate paragraph). Your GP can do these.

These tests might give you a clearer picture, but speak to Dr. Skinner too.

Jane x

in reply to

But do bear in mind that Dr S doesn't really deal with adrenal problems. In fact he was rather dismissive of the Genova adrenal test, and implied that they always showed the same result!

shaws profile image
shawsAdministrator in reply to HMH65

I believe if we are already on levo Dr S does increase to see if it helps. It then solves the problem of your GP prescribing for you. Many of us are undermedicated.

Dr S also believes that the adrenals sort themselves out when we are properly medicated.

If you continue to feel so bad, I would leave a message on his phone or drop him a line. He will get back to you.

EVESARAH profile image
EVESARAH

Why don't you ring Dr S and tell him how you are feeling. You probably have adrenal issues.

siannie profile image
siannie

Hi

I feel just like you !! Absolutely no energy whatsoever . I am due to see dr s on the 16th and am going to discuss the possibility of an adrenal issue with him. Have you taken the adrenal fatigue questionnaire. There is a link on here somewhere .

Call his office and tell him how you feel. I've heard he is very helpful and understanding.

Good luck

Yana profile image
Yana

I've just had an increase of levothyroxine from 75 mcgs to 100 mcgs. For the first 2-3 days I was buzzing with energy, felt amazing then on day 4 I came down with flu. After that I felt exhausted and depressed, moody and sick for 3 weeks.

I'm now just turning a corner and feel much better, I even woke up before my alarm went off this morning and have had the best day so far. Is it a bit early? I would give it a bit longer, I still have a way to go I'm not 100% yet but feel a bit more optimistic for the next few weeks. Just hoping I don't go the other way and end up Hyper.

Only you'll be able to tell if the treatments working or not, maybe give it another week and see.

Best of luck.

Margo profile image
Margo

Could reverse T3 still be an issue with somebody who has not got a thyroid Pettals?

Bears010 profile image
Bears010

Oh I so know how you feel! So tired today nearly collapsed at work, would have cried but too tired. Have been in bed since I got home at midday. This is not a life!

As you have an endo definately call him, he may move up the increase interval.

Karispitit profile image
Karispitit

I was like this until about three weeks ago. I was on Levo for six months and got up to 200mcg. It did absolutely nothing for me and in fact it gave me more symptoms.By the time I saw Dr S about a month ago he was worried about the state I was in. I have completely switched to NDT now. You might be like those of us who cannot take Levo.

You may also like...

Feeling so tired and not listened to!

said that it's normal to have high antibodies with a thyroid condition and have never helped me. I...

So tired I feel like I can fall asleep all the time

down to rest. i have waited 1 year after complaining to the rheumatoid doctor that I have lost...

FEELING SO TIRED

My Doctors have said there is somethiong else wrong but cannot find anything, I have had so many...

FEELING SO TIRED

this has been going on for 3 years, I have really had enough, you have given me hope if I could...

New and surprised diagnosis !!! but explains a lot why i feel so tired !!!

me. she pescribed 75 thyroxin for 8 weeks and then i am to have another blood test. i am totally...