18 months ago I had a total thyroidectomy due to a multinodular goitre. My mother had had thyroid cancer, so my doctor considered that it was best to remove mine. Before then, I had multiple hypo symptoms but my T4/TSH were always normal.
Since having my thyroid removed, my GP has "stabilised" me on alternate 150/175mcg Thyroxine, but I've felt dreadful. I've kept going back complaining about aches, pains, lack of sleep etc....to be told it's down to stress and age (i'm a 49 year old female). I requested T3 test, and was told that this cannot be done in our area. I requested referral to an endo, and was told that it's not my medication that's the problem...and that I probably have fibromyalgia. I was prescribed antidepressants and referred to a rheumatologist.
Well, I went to the rheumatologist yesterday, and pointed out that T3 had not been tested and that I thought this was the cause of my pain. He told me that I was adequately medicated and was therefore barking up the wrong tree. There is, apparently, no need to test T3 or reverse T3 because my T4/TSH are perfectly within range. I obviously don't understand how the hormones work!
He then went on to ask me how supple my joints were as a child/teenager. I explained that I used to be able to get myself into some very strange positions in Yoga. Then he said "Well, that's your problem". Eh???? What's my problem? "You've got joint hypermobility syndrome because you were flexible when you were younger" LOL. He's suggested that I visit a sports physiotherapist, who'll be able to sort me out (at a cost because it's his friend and she's private).
So....back to the drawing board. Private blood tests and another battle ahead with my GP to try to get a referral to endo.