Have Hashimoto's ( Thyroid was irradiated 30years ago) ( Both my parents have Hashimoto's too) and since then have been on full replacement levothyroxine Most recent tests as below -
Feb 2009 - TSH 3.46 ( no T4 or Free T3 done )
Feb 2011 - TSH 0.99 ( no T4 or Free T3 done )
Aug 2012 - TSH .0.03, T4- 20.6, Free T3- 5.4 ( was on 125mcg)
Dec 2013 - TSH 0.14 ( have been on 100mcg) since Aug 2012)but again,no T4 or Free T3 done.
My Gp now wants to reduce my dose even further even tough I am feeling unwell on this latest dose - weepy, stiff joints, thinning lank hair, feel the cold, mentally, forgetful, and in spite of watching my diet can't lose wight - and am in fact putting it on, but as a senior staff nurse who worked in Clinical Endocrinology, I recognise my symptoms as those of Hypothyroidism, so am at a loss to know what's happening! I requested a referral to the local Endo Clinic - but was told it was " not necessary". However when I asked about a private consultation with an Endo , she is willing to refer me ( I would go to Dr Toft at the Spire Hospital) but charges £25 for the letter! Would this be the next course of action - albeit it would be £150+ for the first referral. Does anyone have any ideas?