After years of GP 'treating' me according to TSH results alone, going up and down levo doses from 0 to 175mg but never feeling better (terrible fatigue, 2 stone weight gain, joint/muscle pain, hair loss, swollen ankles, dry skin, depression, brain fog etc) years after a previous GP tested me positive for antibodies and a thyroid nodule, mother with same plus TED, pernicious anaemia, osteoporosis etc, I referred myself to a private endo as GP said it was a waste of time and money.....
Endo writing to my GP instructing him to do following blood tests: bone, renal and liver profiles, vit D, serum cortisol, coeliac/anti-nuclear anti-bodies, magnesium, ESR (NHS, so I won't have to pay).
Endo did following tests privately, results below which I wonder if anyone can comment on:
Total T3: 1.3 (1.3 - 3.1)
TSH: 1.57 (0.27 - 4.2).
Free T4: 18.3 (12-22)
I will post other results when I have them but if anyone has any thoughts on the above, I would be really grateful. The endo was great, by the way so, whatever else, I feel like somebody is looking out for me properly, even if it is costing me a great deal. My instinct is that levo does nothing for me as I never feel any different on any dose, and TSH levels fly up and down randomly. I've felt ill for years now and worried by family history of auto-immune problems, yet the GP is unmoved and I feel like a moaning nuisance! (If relevant, I'm late 40's, hypo for last 10 years although thyroid probs first started as 'grossly hyper' 20 years ago, treated with carbimazole). So confused and tired of not understanding, being fobbed off by GP. Feel like I'm 80! Help..... ,!