Seven months and one day ago I was a vibrant, happy, wife and mother. My days were filled with going to the gym, running around town with my kids, creating beautiful cards, keeping my home beautifully organised and being involved with and totally supporting my family in everything they did. Seven months ago, on my sons 17 th birthday, ihad a strange dizzy feeling in my head. I thought I was just a bit off or maybe it was from some eye drops I commenced a few days earlier. I managed to go to dinner that night to celebrate, but by the next day just felt worse. My husband had to leave for work in Bangkok and as the next week rolled on I became iller each day- cold, upset stomach, no appetite, chest pain, palpitations, felt like I could hardly stand up, terrible pain in my thyroid. Eventually a friend took me to the ER a week later, but was sent home with them having no clue what was going on.
The suffering continued so I got to my Gp who was sure it was thyroid related. Labs came back normal!!!! Tsh was lower than usual at .5 though. Had scans and biopsy done. Biopsy showed an abnormal result in one of my 12 nodules so it was off to the surgeon next.
The surgeon was great and took one look at all the tests and simply said I had a toxic multi modular goitre and it must come out!! So 5 days before Christmas I had surgery and expected i would go home on meds and start feeling better fairly quickly!! I could not have been more wrong!! After being on 100 mcg thyroxine for 2 weeks I got very severe hyper symptoms so had to reduce dose to 50 for a couple of weeks with the endo saying it wouldn't do me any harm. Well by the end of 2 weeks I was ice cold and knew hypo was setting in. So up went the dose to 75 and sat on that for six weeks with no improvement and tsh 18.
Knowing I was sensitive to dose increases we cautiously took the dose to 82 which landed me in the ER with sweats and racing heart. That settled and so over the next 2 months we slowly increased the dose every couple of weeks and finally got to 100 mcg in mid May. The TSH was now 2.1 which was a great effort but I still had no relief from symptoms such as dizziness,fatigue, coldness, pins and needles, sore muscles, shortness of breath, pale hands and feet, dry skin, etc, etc! My lovely endo said 2.1 was good and sit on that for 3 months!!
I told my lovely endo that I had started 110mcg and she said she was happy if I did that for now. So with my crippling symptoms I hope that will be enough to knock a bit more off the tsh so I can start to feel well again.
Like so many others, my life has been turned upside down with this terrible disease and I just can't see an end in sight. I thought with my tsh back in range I would start to feel better!
My family is absolutely wonderful and don't think I would have got this far without them.at the moment I struggle to get through everyday and have times each day where I don't think I can go on and wish I could just fall into an endless sleep. Somehow I do get through the day though and catch a few hours sleep each night and get to do it all again the next day!
I look forward to the time when I feel we'll again, but I do know a lot of my thoughts are negative at the moment as my symptoms are so severe and relief has not come my way yet.
I will continue the fight down here in the land of Oz and look forward to the continued support of my wonderful new UK buddies xxx