Just had a really upsetting appointment with my GP, I will put you all in the picture and then any advice would be greatly appreciated.
Diagnosed just over 3 years ago with an underactive thyroid, and had the misfortune to be under a very apathtic GP who put me on 50 mgs Levo and that was it...No bloods, no nothing I kept going back as I was becoming more unwell. I then found this site and started reading up on the illness, I then tried NDT for a while and started to improve, then hit a brick wall after a few months. Finally after much foot stamping I got to see an Endo, who prescribed T3 but that did not appear to work. In this time I have had to give up work and just exist day to day...Soooooooooo Dec last year with my new GP, in fact my 5th GP! I decided to go back on Levo and was being properly monitored, started on 50mgs and am now on 200mgs. After each increase I would feel nothing for a week or so and then I would have a few days of feeling more perky, my moods were much brighter and had energy to do things and go out and then that little opening closed up again and back to my now normal default setting. Have had all the usual bloods done, and folates and ferritins ok, B12 a little low but am boosting with high strength vits,Vit D was low but have been on really high dose of D Vit from GP. Current state of play with thyroid bloods are:
Free T3= 4.4
TSH = 0.5
Free T4= 20
Not too sure where my T3 should be level wise? I also had loads of other tests done and my Serum Anti-TPO antibodies are 809U/ml, the way the GP explained it I now have auto-immune thyroid, and due to the body attacking itself she is saying that I have Fibromyalgia! That did not go down well with me and with the advice to try and get out even if its only a 5 min walk to the shops. So is that it thats my life now, oh and I was offered anti depressants as she is concerned about my mental health. So from having a full,interesting, exciting life to this for the next 30/40 years. How can that be? Are there really no options left? I have just started mixing in some T3 20mgs and reduced my T4 to 100mgs, hoping it will give me a little boost but nothing so far. I live on my own and have no support in this area as I moved here just when I started becoming unwell. Any suggestions, anyone going through similar? The good thing with my GP is she is open to suggestions so if there are any other tests or consultants I could see that also would be helpful. I hope this makes sense as I am not happy bunny at the moment and am on auto pilot as I feel quite numb!