It is now 20 years since my thyroidectomy and loss of one or more parathyroids, requiring me to take meds for my lack of parathyroids.
I would like to know what other people take? I am on Alfacalcidol, VitD3, Magnesium for my bones.
Any suggestions as I would like to stop taking Alfacalcidol? Thank you.
Hi
You should be keeping an eye on your TSH. Normal is over 0.5 and under 4.3.
Otherwise you will be hypo over 4.2 or hyper under .5.
I had thyroid cancer papillary diagnosed along with Stroke, rapid and persistent AF. 2019.
To keep T3 in the normal level I take 2 brazil nuts daily, 1 meal of lambs fry a month and eat sardines sometimes for selenium.
Your T4 will tell you how much thyroxine you are taking. 22 highest.
Since stopping bisoprolol I have been able to reduce my Synthroid to 100.
You should be tested for calcium because of your parathyroid.
Keeping your Vit D level normal which includes sunshine, is optimine. Lots of sunshine in NZ.
I also take Diltiazem 120mg CD am for H/R control.
My regime is 100mg Synthroid early AM, leave an hour, and no milk or iron for 4 hours.
I take whole grain organic oats in water and add fresh fruit, blue berries, banana, rhubarb etc.
Kiwifruit is great to help normal working bowels.
On thyroxine no soy, no tofu, soy sauce or seaweed.
I'n at 5 years with this regime.
Did you have RAI treatment to kill your thyroid or post thyroidectomy?
My surgeon had a blue dye put through during the last hour before the op amd 1.1/2 saline drip starting at 5am that morning. There are lots of itens that get in the way. Read the Gary Clayman book on your op or what is there called "Atlas Head and Neck ". He is the top surgeon in the USA Thyroid Clinic.
Damage to Voice Boxm Parathyroid or damage to Oesophagus happens when your surgeon is not experienced enough or damage done having the RAI treatment.
I declined as I was classed as being Low risk for left or regrowing cancer to undergo it.
Also suppression. As cancer grows on the thyroglubin serum. My surgeon and I are using the serum level as a guide to cancer still there or growing.
I must remind you that I have stayed under my surgeon having had a bad experience with the Endocrinologist. She was told to respect my decisions by the surgeon. I keep my TSH at 1.7 as Mr Gary Clayman guides us into setting Low risk patients to normal low TSH.
I hope this gives you some information.
I've not heard of the meds you mention.
cheri JOY. 75. (NZ)
I won’t take calcium supplements. I rely on Vit D3/K2 and Magnesium to extract and absorb calcium from food. I take 400 mg Magnesium daily. I choose citrate as I have a tendency to constipation.
Thank you so much for your very helpful reply. How much D3/K2 do you take please?
I take 3000 IU (Nu U brand - with a 100 mg separate K2: both from Amazon). You can buy D3 combined with K2 but I particularly like the Nu U brand as it contains sunflower oil which, as a fat, aids absorption.
I keep my Vitamin D at about 100. As a rule of thumb, every 100 IU of Vitamin D raises your Vit D level by 10 points in 3 months.
My Vit D was 60 and I raised it to 100 in 3 months. It’s possible to buy higher dose Vit D which raise levels more quickly but I find this dose is good for me.
I hope you got your NDT sorted
Thank you so much for this information. Will look into it tomorrow, I have a glass of wine in my hand, so the brain will be muddled......
Yes, I ordered some from Thailand and it arrived yesterday,. Going to chance my arm tomorrow from another company also in Thailand, as one of the ladies on here, got it considerably cheaper.......Such fun!
