Ibd/ibs - we know our own Body!!

[Channytel88]

omg I’m up at this time trying to sort this out. I have autoimmune disease Hashimoto’s and suspected vasculitis. Had gp app & told any new onset symptoms to let her know!

I have these Cramps atleast once a month and usually buscopan and laxatives work have BUT This week the central stomach pain I got and cramps, literally crippled me even after bowel movement. (I am a healthcare worker) tried absolutely everything to prevent going to &to a&e buscopan (which usually work) antacids, heat pad (also tie something round waist as works for me) laxatives wind meds trying to walk it off massaging tummy, warm bath lots of fluid warm & cold you name it… I tried it.

I have a very high pain threshold but this was something else! So close to being taken to hosp (I am stubborn) but promised my mum as we’ve just suddenly lost my brother to get better, the last thing I took which was told I cannot take.. naproxen & the pain reduced altho still felt lower left flank pain, very fatigued! Still feeling very wiped out. Called drs on hold for over an hour finally got through…told them need gp, no appointments they gave me a nurse practitioner, who didn’t know history told symptoms etc, what meds iv tried ( she said she was going to give me colprelief I said I tried that. She said well I cannot give you Ns anti-inflammatory, I’m literally pleading at this point, begging for bloods to be done again.. they sent me to wrong place, got to right place.. they said couldn’t call in my behalf, by the time I git there they had shut shop. I just broke down they were very attentive and supportive unlike my surgery, finally got my bloods done yesterday.

it is just so frustrating that we have to fight to get the help we need. I felt for the people who are vulnerable & cannot voice their struggles I thought no wonder I and many people have mental health issues.

Awaiting results, getting myself better so I can get back out there to work & help those that need it.

Thanks for having a read of this x hopefully 🤞 someone benifits from this post 💜

[meadfoot]

So sorry to hear you are having all this to contend with. Its unbearable as I know myself only too well. Getting help is a nightmare. When we are at our lowest we need prompt support not to be fobbed off. I hope you feel better very soon but living with thus is beyond a trial. Best wishes, sending cyber hugs.

[Channytel88 in reply to meadfoot]

aww thank you, I found this website last night found very comforting ( not that I like so many of us are struggling) but felt heard and understood x like wise for yourself! Such as life.. I’m on a mission to get back out there to make sure people are given the support they need! Thanks again big hugs back… best wishes… we got this! 💪🏽xxx

[Carlettejaque]

You didnt say but If you are taking any PPI's like Omeprazole stop immediately. They can cause crippling stomach pain. If you arent then its down to managing the IBS with a change to diet. You need to go on the low Fodmap diet (a lot of fruit and fibre products can cause pain) and also try eliminating any intolerances you may now have. The top intolerances are dairy products, yeast and wheat. Try eliminating one at a time starting with milk. Switch to soy. It's not easy because it means not eating your favourite foods like chocolate, curry, cakes and biscuits even crisps contain lactose.I had this problem for 7 years before I discovered I had an I tolerance to milk/lactose.

Medication in my experience does little for IBS.

Good luck

[Wonderfullifeandmore]

hi, I really feel for you, words can’t really express what you are going through. I feel your frustration with the GP ‘s I suffer from health anxiety and do have a lot of medical problems, but never feel as though I am being taken seriously due to my H. Anxiety wish I’d never been honest and admitted having it. It hasn’t paid for me. Wishing you all the best. Xxxx

[Seniorgirl]

You have been given the advice to use Soya. People who have an underactive thyroid and taking Thyroxine are advised not to have Soya because it inhibits (can stop) the absorption of the Thyroxine medication.

[Clara25 in reply to Seniorgirl]

I was just about to reply with same. Do not take Soya if you have a Thyroid problem 😔

[Channytel88 in reply to Seniorgirl]

I did NOT know this so thank you, I was actually going to give it a go as partner was on soya but she was told no longer allowed since being diagnosed type 2 diabetes (not sure if that was the reason as he too has very complex medical issues. Very good at catering for gluten free/ dairy free etc and more strict when it comes to diet. Apparently greens especially celery I keep hearing for thyroid issues however I do believe that these symptoms are part of the recent EGPA vasculitis diagnoses. Thanks are, I am willing to try anything to avoid hospital, which is foolish of me but it’s last option if I cannot help myself… very bad life choice I have is eating to much Ben& jerrys cookie ice cream but I did not have any this week!! Lol xx

[dubella]

Sometimes I resort to a combo of buscopan, mebeverine and charcoal tabs, gives some relief.

[Zantecat]

Sounds like you need a antispasmodic, buscopan doesn’t work for me, seems it’s trial and error, only one works for me is spasmonal ( alverin), there are others .

[Pe36nny]

I have tried various meds Buscopan being one of them. The only thing that helps me is Amytriptilene 10mg taken at bedtime I aaalsotake Laxido if I feel I am constipated

[Channytel88]

I have taken all of these in 8Omg of amitriptiline at night laxities daily and usually have 1 buscopan which works almost immediately given by my ward manager. This recent episode was not resolved with my buscopan I even had two just because it usually my works… all of it tells me and I maybe be wrong but inflammation in that area at the time.. if you look into vasculitis, you can see it is inflammation of blood vessels and can target any organs in an episode flare up x