I’ve been lurking on this forum for some time now and finally decided it was time to post.
I’ve noticed that some people give background so will do this; I lost around 7 stone in weight (through calorie counting & exercise- only mentioning to rule out dumping syndrome from gastric band) 6/7 years ago then promptly feel pregnant with my 3rd- my problems started when I started a new job after maternity leave. At first it would be once every couple of months I’d have urgency a few times a day, mostly when stressed, which would last a day or two. Last year this became more regular and after bloods, stools & an ultrasound the doctor diagnosed IBS and advised prescribed meverine.
Since then there seems no rhyme or reason for attacks, very little time between them and it’s affecting my life big time. Since a near miss in June where I just about made it to a bucket in a shed it seems to have taken over my life completely. I’ve recently been put on Amitriptyline (low dose) by my gp to try and help and have been on those for almost 6 weeks now. She has also repeated stool tests (normal) and referred me to a dietician for FODmap which I’ve been trying to follow as best I can myself but it has led to weight loss. My first appointment with them is in 3 weeks which I am relieved is a telephone appointment otherwise I’d be worried about the journey.
We recently went on a 5 days break in the UK and my husband stopped at 4 service stations on the 3 hour drive there, every day we were there I woke with an upset tummy and didn’t want to leave the room, always planning where the nearest loo is when we did and we ended up leaving a day early because of my tummy.
I’d rather not leave my home at all now and when I do have to plan my route so I am never more than 5 minutes from a toilet which is really difficult when I don’t drive and lots of places have their toilets closed or queues to get in the building due to COVID. My youngest has just started school and I feel panicked when leaving to drop and pick up to the point when I almost got off the bus one morning because I felt sick, heart racing, hot and panicked and since then I have started taking Imodium before I leave. When I think I’ve nailed it down to stress I’ll have an attack when I’m perfectly calm, when Ive removed garlic, onions & lactose from my diet and had 7 good days bam it comes again out of no where! I’ve tried buscopan, miverine(sp?), peppermint tablets & tea, Imodium (which do seem to help after the horse has bolted), probiotics (which, after being on them for a week gave me the worst week of urgency yet) and diet changes.
Honestly, on my worst days I’ve considered all sorts because I feel like this is making me a useless mother and a burden. I think it might be making me depressed now as it’s pretty much all I think about and I’m crying a lot , if I’m not lurking in forums I’m googling remedies and articles. I’ve been on furlough since June and worry about returning to the office when the time comes if I have a job to go back to that is so I’ve more time on my hands to worry at the moment which I’m sure isn’t helping.
I’m not sure what I want anyone to say to be honest I’m just writing it all down in the hope that there is someone out there with some miracle cure I’m yet to discover.