Please can anyone help : Guys I’m really... - IBS Network

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Please can anyone help

Kate8433 profile image
38 Replies

Guys I’m really struggling.If any of you can relate to the following symptoms would you let me know:-

Gurgling

Feeling of going to the toilet but need to still go

Lots of burping and wind down below (sorry tmi)

Burping and having that weird egg smell/taste after

Scared to go to the toilet incase I see blood

Fatigued

Bloating

These are just a few of my symptoms and I’m starting to wonder if it’s sinister.

I know it sounds silly but I’ve googled cancer all day trying to come to terms with the fact I might have it. My head is all messed up and I’m feeling very sad.

I just wish I could understand what’s going on and pluck up the courage to see a dr and get more tests done. I just know the outcome will be awful. I feel so alone and just need to talk to people who understand :(

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Kate8433 profile image
Kate8433
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38 Replies
Forestina profile image
Forestina

Hello there. You are in an impossible situation. I know this because I am in a similar situation myself, fearing the worst but not going to the doctor. It is so scary. The only thing I try to convince myself is that diet does make a difference although I am still at the trial and error stage.

Have you tried cutting out foods to see if it has an effect?

Beckybexx profile image
Beckybexx

Hello,

I can honestly say I have every one of those and have done just the same, I even convinced my husband I have cancer. I really feel your pain and anxiety. I was virtually hysterical at times when I wasn’t exhausted. Do you have anyone for support?

I turned out to have a sliding hiatus hernia and gluten intolerance as well as a fatty liver. I was looking for an answer to explain everything but it turned out to be several!

Try to remember there are so many more much more likely explanations, maybe more than one even!! It’s taken me 5 months to get some answers, it’s a long and frustrating process sometimes. I still have other unexplained problems but you can do it! Find a positive everyday. I find giving myself an hour timeslot for worrying helps a bit.

Good luck x

Maureen1958 profile image
Maureen1958 in reply to Beckybexx

I think your idea of giving yourself a timeslot for worrying is a brilliant idea! Maureen.

Kate8433 profile image
Kate8433

Thanks ladies for your replies

b1b1b1 profile image
b1b1b1

I have IBS d with pretty much all of these symptoms. I am not a doctor, but it sounds to me like a digestive problem rather than cancer. You should see a gastroenterologist. There is not too much they can offer in terms of a cure, but they can certainly relieve your mind and reduce the worries. This in turn, together with diet, may reduce your symptoms.

Claire44 profile image
Claire44

Good morning

I also have IBS D and have exactly the same symptoms as you. I also suffer from pain in my tummy. It is scary but please go to the doctors to put your mind at rest, as stress can be a contributing factor, I know it is for me. I also seem worse at the beginning of my cycle, as for me hormones do play a part. I take mebervine and acidophilus which does help. Good luck xx

cj20uk profile image
cj20uk

Hi,

It sounds like a digestive issue such as IBS but it is best to get checked out. Stress can make symptoms worse, so worrying about it is not going to help. By going to the GP, you can put your mind at rest. One thing that is worth doing is to keep a food and symptoms diary to see if there is anything you are eating or drinking that make the symptoms worse.

Good luck

EiriniCENL profile image
EiriniCENL

Hey Kate,

I am sorry you are going through this. IBS can be very nasty.

Sounds eerily familiar to my IBS symptoms I'm afraid.

You will need to follow an elimination diet (like #whole30) and reduce your stress levels (download the Calm app). You can take a couple of days off work if you are working...

It is a very slow and painful process but every small change you make will be beneficial in the long run.

What's most important is not to worry about the smells :-) I take peppermint oil capsules, digestive enzymes and probiotics because they alleviate the gas when I am flaring up.

I hope this helps!

Take care :-)

Kate8433 profile image
Kate8433 in reply to EiriniCENL

Do you get the sulphur burps too? Thanks for your lovely reply

EiriniCENL profile image
EiriniCENL in reply to Kate8433

yes, I called them "the volcano burps" :-) I had to quit coffee and dairy for a couple of weeks for that one to go away.

Kate8433 profile image
Kate8433 in reply to EiriniCENL

Thanks for your reply xx

Eastbourne11 profile image
Eastbourne11

Dear Kate most of us suffering symptoms like yours thought we had cancer! There is now a blood test for IBS which is what it sounds like you have. Just ask for it. Next look at the FODMAP way of eating (list of foods available on the internet), follow it and also keep a food diary which will pin point your most aggresive foods. I think you can safely say it is IBS so please see your doctor and tell them how you feel, they are there to help you, they are public servants and are only there because of you. Let us know how you get on - we are all routing for you. Good luck

one-n-den profile image
one-n-den

Hi Kate,

I too would recommend looking into the FODMAP diet, either to help you identify ‘problem’ foods or, if you are more disciplined than I am, to eliminate all such foods and gradually re-introduce them to find the culprit(s).

If you Google FODMAPS you should find an explanation of the research from Monash University and a list of ‘High’ and ‘Low’ foods.

I also find that probiotics (Acidophilus) and peppermint oil (Colpermin) help. I take both first thing in the morning, with water, about 20 minutes apart - Acidophilus first.

Do go and see your doctor and, if possible, a gastro specialist, too!

I hope this helps, and that things soon improve for you.

jv50plus profile image
jv50plus

Please go and see your Dr. It's probably absolutely nothing to worry about, IBS or similar, as I have had all those symptoms. Not knowing is worse, because worrying is no good for you and will add to your stress. Good luck

in reply to jv50plus

Totally agree get an appointment with your dr immediately just in case it is something sinister and if turns out not to be then u have peace of mind Kate.

JAJJV profile image
JAJJV

If you are seeing any significant red blood in the toilet, this is not common to IBS, but it is common to IBD, inflammatory bowel disease. Can you tell us more about the blood you mentioned?

Kate8433 profile image
Kate8433 in reply to JAJJV

I didn’t get any blood in my stool

Kate8433 profile image
Kate8433 in reply to Kate8433

I said I was scared to go incase I did see blood

JAJJV profile image
JAJJV in reply to Kate8433

OK, I must have misunderstood your original post. With the absence of blood and the other symptoms you describe, it does sound like IBS or SIBO. It does not sound like colon cancer, but a colonoscopy would rule out anything serious

Kate8433 profile image
Kate8433 in reply to JAJJV

Thanks for taking the time to reply. Appreciate it

Viklou profile image
Viklou in reply to Kate8433

I see blood blood still IBS. Process of eliminating everything else gives you an ibs diagnosis. The only time I was really concerned about it was when the whole movement was liquid blood. As I wasn't still bleeding when I went to A&E and my bloods were ok I went home

Nina1983 profile image
Nina1983 in reply to Viklou

Hi viki

Are u still getting blood and with every bowel movement?

Viklou profile image
Viklou in reply to Nina1983

No not every movement just occasionally which isn't so bad. I used to take photos when it happened for reference. But I don't bother now

Nina1983 profile image
Nina1983 in reply to Viklou

Have u any idea what u may have . Sorry if I've missed previous posts

Viklou profile image
Viklou in reply to Nina1983

IBS

Nina1983 profile image
Nina1983 in reply to Viklou

Ok..I didn't really blood was a symptom of ibs

Viklou profile image
Viklou in reply to Nina1983

It's not but it could of come from anywhere. Just no one has told me. Probably haemorrhoids had the usual tests and all good so nowt to worry about xxx

majesticpinetree profile image
majesticpinetree

Try going on the Low FodMaps diet. You should notice a difference in a few days if you follow it strictly. If you aren't feeling better in a few days, then head to the Dr's. Your symptoms sound a lot like mine and I have IBS. Being nervous and worrying make all the symptoms worse..So relax, try out the diet first...

Pennylewis profile image
Pennylewis

Totally understand we have all bern there. After 25 years of IBS you still worry. Although we know deep down, it cant be cancer after that many years. See a doctor for your own peace of mind. You will be fine. Its sounds very much like IBS. Try not to worry. Good luck !!

lilredhen profile image
lilredhen

Hi Kate, it does sound like IBS, please see a doctor, you will feel so much better as Pennylewis said.

Just a note from my own experience, I had these symptoms and it turned out to be because I was taking Omezprazole for too long a time, it is now regarded as dangerous to be taking it for extended periods, it can cause all kinds of issues ...have you thought about a side effect of any med you may be taking? None of my doctors seemed to catch on to this, I only found out by reading an article in a medical journal. Take care, hope you feel better soon.

pajohns profile image
pajohns

I've not read all the replies here but I bet others have said the same, see your Dr!! It's most likely ibs or some other digestive trouble and not cancer but if it is cancer then catching it earlier the better. Also anxiety can make all of your symptoms worse or even be causing some in the first place. You need to see a Dr for reassurance!! Good luck, seeing a Dr may seem scary but it's the best thing you could do!

Bobbybobster profile image
Bobbybobster

I have the exact same symptoms. Are you on a statin? If so that causes this but also look for H Pylori!

AnnaKershaw profile image
AnnaKershaw

Hi Kate,

I have suffered with IBS for about 10 years now and im 35 so started quite young really, ive had every test and every bit of help I can from the NHS but now im on my own and I understand that feeling that you are on your own but your not. I have all your symptoms except the bleeding and it is both draining, frustrating and upsetting. The best advice i can give is start by going to see your GP as scary as that feels its a step in the right direction, you need to get a clear diagnosis so you know what your dealing with then you can act on it. If IBS then there is help and advice out there to start to try and reduce your symptoms its just knowing where to look. I don't mind talking to you about what I have done and what tests etc as I know how alone it feels. I feel like I am on the right path but its taken 10 years as i didnt think there was any help either. Just let me know if you'd like to chat.

Anna x

Kate8433 profile image
Kate8433

Thanks Anna for your reply. I don’t have any bleeding, I meant I don’t have that x

dg8867 profile image
dg8867

Since your post 2 years ago, I sure hope you are better now. I went thru just what you are going thru. In my case it is diverticulus(pockets in the colon) along with I.B.S C/D (constipation along with diarehea). The constant feeling of having to go to the bathroom for me was caused from internal hemroids. Have a gastro check for them. Mine were caused from the constipation, and they removed them thru a procedure called banding. After procedure I very rarely get those constant urges to have go. The gas and bloating is from possible diverticulus, along with bad gut flora(Bacteria).There is also a possibility you have a bacterial infection of the gut. You should give a stool sample, and request a colonoscopy from a gastro Doctor to see what is going on. There is an end to the insanity of it all, you just need to go see a gastro doctor for it and the help. Good luck, i hope this helps you.

mondlee6248 profile image
mondlee6248 in reply to dg8867

Actually dg8867, I do have the same thing but I went thru colonoscopy and MRI but both test are good so I don’t know whether mine is IBS a not

dg8867 profile image
dg8867 in reply to mondlee6248

Are you better now? Do you still get constant urge to go poo?Did they ever check you for internal hemeroids? Did you ever have stool checked for bacterial infection and so on? I hope you got those questions answered. anyways I hope you doing better.there are things i've done to make life easier in that area. If you have questions or need some input advice, feel free to ask anytime. all the best too you...

mondlee6248 profile image
mondlee6248 in reply to dg8867

Sometimes okay but not always, no hemeroids. Can I ask as you mentioned you did things to make life easier in that area, what things did you actually do

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