Hi, I'm Chloe, I'm 24 and I'm new here. This is the lowest point of my life, and I don't know where else to turn right now so I could do with a bit of reassurance and maybe some advice, most of all I just need to vent.
I first experienced IBS symptoms at the age of 10 and it went on for 13 years afterwards. It was unpleasant but nothing I couldn't handle. Then last year in Sep 2016 I suddenly experienced /agonising/ pain that came in waves for 4 hours. I called 111 and the nurse reckoned it was just a bug. The pains calmed and I put it to the back of my mind that it was just a bad bug (stupid, I know). 2 weeks later, it was back. This time I went to A&E where I was told the same thing. They gave me painkillers and sent me home. This time it took me 10 days to recover. Again the agony only lasted a few hours, but the days that followed was like recovery from a really bad bug.
Long story short, this keeps happening every few weeks or so. The flare-ups last anywhere between 3 days and several weeks. At the moment I have more stomach pain and nausea than I use to between these flare ups. I've seen a gastroenterologist who reckons it is likely IBS, he suggested strong pro-biotics (VSL#3). They gave me more time between a flare up than anything before (60 days). But now I'm experiencing a flare up longer than any before it.
I have so many symptoms, it's ridiculous. My main ones are really bad reflux (for which I've tried just about everything), nausea, sore throats at least once a month (got one right now), a feeling of something being squeezed in between that middle space of the ribs, things popping in and out under my lowest left rib, inability to laugh+cough because it hurts my middle so much, fatigue, chest pain that feels 'cold', a pressure and burning pain in the pelvis area, feelings of being bruised in all my intestines and like someone is pushing on them, no appetite whatsoever, blood in stool twice (for which I went to A&E), alternating bowel movements, sharp abdominal pains, twitching/spasms in abdomen (also in arms which I put down to anxiety), bloating ...there's more I'm sure. I'm on no long term medications.
As for tests I've had blood tests, urine samples, stool samples, colonoscopies, gastroscopies, scans... all of which showed nothing abnormal. On paper, I'm perfectly healthy and fit and well... expect I'm not. The only thing they found was that I have a very very long large intestine that is very loopy. I had a test to rule out food intolerances... turned out I was intolerant to several foods, so I've cut them out and went on a diet for months to help heal leaky gut if that was the case.
I feel ill all the time. I have no life, I can hardly spend time with my family. I feel absolutely defeated because I had just overcome several years of anxiety last August and was getting my life back on track. Then this happens. I'm on day 4 of spending all day in bed now because I'm so depressed and my anxiety has soared way back up again at this point after so many months of this nonsense, I even feel panicky around my family. I spent a good few months trying to be more positive and I was taking walks and going to new places with my boyfriend but I just feel so beaten down now. I got tired of coping instead of living and enjoying. I couldn't even get to my new psychotherapy appointment on Monday because I'm unwell and my anxiety is running wild. I just feel trapped. I don't feel like a person anymore, I feel like a vessel for this condition.
Sorry this is so long, it feels good to write it all down. It's not till October that I see my gastroenterologist again for new advice and tests, and I don't know if I'll be able to make it to psychotherapy or not. I feel scared about what is happening to me because I don't know if it's IBS or not. Even if it is I don't know how to control it despite trying so many things. And it just seems to be getting worse. The doctors just tell me to wait till October. Idk. Feels like this is what my whole life is going to be. Thanks for reading.