hi joined sometime ago but have only been reading so far so thought id introduce myself.
i was diagnosed with IBS many moons ago, but very mild alcohol spicy food triggered pain and being sick. I've also had depression, well managed on meds, since teenager.
so, about 2.5 to 3 years ago i started feeling ill after eating, pains cramps and nausea that would basically leave me immobile for the rest of the day. still have to work, so gradually it got later in day before i'd eat and the amount i could eat before triggering stuff got less.
got good GP and after losing 7 stones in about 10 weeks or less, and waking up on floor after passing out i had a meltdown and ended up in with gp after emergency app was made. within 4 weeks i was at hospital to start tests, symptoms were exactly the same as for bowel cancer so that's what they started looking for, over year an a half i had every scan, camera, blood test etc that they could do. the hospital where i live has the country's top IBS consultant there, so he took over case, which after more tests he diagnosed an extreme form of IBS-d+c with clear links between stress/anxiety and weight loss, anorexia due to seeing food as levels of pain, with a prognosis of better management of symptoms the best outlook. i had been taken off depression meds as they were aggravating IBS as side effect was constipation. and still haven't found antidepressant that works, i'm in tears a lot of nights when its top much and have isolated my self so much ive been diagnosed with agorophobia.
on a daily basis i'm feel like, what a lot of you describe as a flare up, permanently bloated, stomach cramps, and pain. the only food i can eat at all now is stuff like yogurts , custard, rice pudding or banana smoothies. im on prescription of build up drinks and fortisip juice. the medication combination that has me at what is tolerable compared to how bad it was, is, domperidone 20mg thre times a day, for nausea and to force stomach to push any food through quickly, alverine, and colpermine 3 times a day. 2 marcogol laxative drinks. olazanzapine, sertraline and zopiclone in the evening.
I've now been put on enhanced rates of disability benefits, and been put on ill health retirement, which has restrictions on what work i'd be allowed to do if i ever feel well enough to try working,
when my sons home from uni we get a fish from chip shop, which i eat over about 4 hours, ill start getting nauseous and fall asleep usually, any other time i'm too scared to even try eating like this as i'm on my own, and I've been lucky to not hurt myself before with falls due to dizziness.
this last week has been a reminder to how bad i can feel, all due to one stupid thing. went to bank on Wednesday to check my benefits were in as there may have been a change due to starting pension. less than half my usual amount had gone in.
i called office to be told that i must be getting confused as i didnt have a claim for benefits, after ages convinced her that i had been getting them for over a year and she promised id get a call back. when i checked online bank money that had been put in was job seekers allowance. so the meltdown started, didn't sleep for 2 night, panicking which just escalated when letter from council arrived telling me to start paying full rent as benefits had been stopped. by the time someone called me i hadn't slept in almost 3 days and couldn't remember when i last ate or had meds and couldn't move off couch due to pain. i,ve also lost a stone in weight in a week.
i was told that they were sorry but they had recorded my £80 pension as £800, so when this amount was flagged on system they just automatically cancelled all my benefits. so one persons stupid mistake caused me to totally lose control and the IBS to become unbearable again.
well, thanks for letting me rant here, and thanks for all your posts that do show that your not alone in this crappy illness.