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Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
7 months ago
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Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Hormone Replacement for Surgical Menopause
Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to natural menopause? I find that there’s no discussion or warning about the effects of surgical menopause prior to treatment and that no one seems
Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to natural menopause? I find that there’s no discussion or warning about the effects of surgical menopause prior to treatment and that no one seems
Doggies221
in
My Ovacome
10 months ago
Advice please On thyroxine & HRT with abnormal very low oestrogen levels.
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Maynan17
in
Thyroid UK
10 months ago
Prostrap & dry eye
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
CrochetCrayola
in
Endometriosis UK
10 months ago
Hypo with CKD & Bradycardia
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
SimbaT
in
Thyroid UK
10 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
10 months ago
Am I Hypothyroid?
Hi, can anyone give me any feedback on the blood results I have received please? I am nearly 5 years into Surgical Menopause, Ovaries removed. More than likely I have Oestrogen Dominance which could be suppressing thyroid function as my Prolactin is currently very high (975miu/l) and soon to be investigated
Hi, can anyone give me any feedback on the blood results I have received please? I am nearly 5 years into Surgical Menopause, Ovaries removed. More than likely I have Oestrogen Dominance which could be suppressing thyroid function as my Prolactin is currently very high (975miu/l) and soon to be investigated
FrankyBanx
in
Thyroid UK
10 months ago
IVF - First Round Fail
Hello, This is my first time on a forum so please bear with me.. My partner and I have started our IVF journey in September this year; initially the baseline scan was good and AFC count relatively okay so we were excited when the time came to start the injections. We had decided that I was going to
Hello, This is my first time on a forum so please bear with me.. My partner and I have started our IVF journey in September this year; initially the baseline scan was good and AFC count relatively okay so we were excited when the time came to start the injections. We had decided that I was going to
BlueSimba
in
Fertility Network UK
10 months ago
Aromatase Inhibitor Use?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
relap
in
SHARE Uterine Cancer Support
11 months ago
New and blue
Hi everyone. (and my mind goes blank on what to write...) I started exploring a possibly neurodivergent mind over a year ago and although I feel a bit more knowledgeable, I am no less lost. It's pretty unhelpful that traits of ADHD, Autism and HSP overlap but here I am. At this point I think I might
Hi everyone. (and my mind goes blank on what to write...) I started exploring a possibly neurodivergent mind over a year ago and although I feel a bit more knowledgeable, I am no less lost. It's pretty unhelpful that traits of ADHD, Autism and HSP overlap but here I am. At this point I think I might
starsallover
in
CHADD's Adult ADHD Support
11 months ago
Pirtobrutinib triple trial Cycle 7 update
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
SeymourB
in
CLL Support
11 months ago
Diagnosis ????
Hi everyone. My name is Rose, I have a history of autoimmune disease..sle, sgraves disease and previous stage 4 endometriosis and bowel adhesions with multiple polypoid ovarian tumours. Previous hysterectomy and salpingo oopherectomy with excision of endometriosis.I have suffered with bowel issues
Hi everyone. My name is Rose, I have a history of autoimmune disease..sle, sgraves disease and previous stage 4 endometriosis and bowel adhesions with multiple polypoid ovarian tumours. Previous hysterectomy and salpingo oopherectomy with excision of endometriosis.I have suffered with bowel issues
Redrose81
in
Crohn's and Colitis Support
11 months ago
Shocked and confused about gallbladder result
I apologize for how long this may end up...I am confused and in absolute panic (I also have serious health anxiety): Over the past nearly two years, I've had an enlarged liver with fatty infiltration, jaundice, weight loss, etc...and my gallbladder has had stones and a adenoma which had not changed
I apologize for how long this may end up...I am confused and in absolute panic (I also have serious health anxiety): Over the past nearly two years, I've had an enlarged liver with fatty infiltration, jaundice, weight loss, etc...and my gallbladder has had stones and a adenoma which had not changed
SerenityFirefly
in
British Liver Trust
11 months ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
9 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Questioning a Thyroid issue
Hi there, I've been in surgical menopause for almost 5 years after surgery for PMDD. Since surgery, I've been trying to find hormonal balance by adding back sex hormones. Throughout this period, my SHBG has continued to rise.In spite of adding back sex hormones (I still haven't found the balance which
Hi there, I've been in surgical menopause for almost 5 years after surgery for PMDD. Since surgery, I've been trying to find hormonal balance by adding back sex hormones. Throughout this period, my SHBG has continued to rise.In spite of adding back sex hormones (I still haven't found the balance which
Sunnyyellowlady
in
Women's Health
11 months ago
Questioning a Thyroid issue
Hi there, I've been in surgical menopause for almost 5 years after surgery for PMDD. Since surgery, I've been trying to find hormonal balance by adding back sex hormones. Throughout this period, my SHBG has continued to rise.In spite of adding back sex hormones (I still haven't found the balance
Hi there, I've been in surgical menopause for almost 5 years after surgery for PMDD. Since surgery, I've been trying to find hormonal balance by adding back sex hormones. Throughout this period, my SHBG has continued to rise.In spite of adding back sex hormones (I still haven't found the balance
Sunnyyellowlady
in
Thyroid UK
11 months ago
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