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Vanishing White Matter (VWM) disease
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PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
8 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
6 months ago
Rheumatology consultant with specialist interest in Lupus
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Jenfy34
in
LUPUS UK
6 months ago
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INR BLOOD
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Crock73
in
Anticoagulation Support
5 months ago
IBS and Coeliac
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
Mollydav
in
IBS Network
6 months ago
Any suggestions?
Any help for permanent afib after having three cardioversions which worked for the past two years last one only lasted two weeks. Taken off Multaq and on Lopressor 100 am & pm plus eliquis. Told ablation would more than likely not be successful. Should I get a second opinion. Do not feel that great
Any help for permanent afib after having three cardioversions which worked for the past two years last one only lasted two weeks. Taken off Multaq and on Lopressor 100 am & pm plus eliquis. Told ablation would more than likely not be successful. Should I get a second opinion. Do not feel that great
farewelltoarms
in
Atrial Fibrillation Support
5 months ago
Behcets + Personal Independence Payment (UK)
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
jaquarius
in
Behçet's UK
8 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
8 months ago
AFIB and my exercise
I am 81 years old and work out using HIT on average about 50 minutes a day usually for six days a week. My heart rate goes from 65 when I start to a max of 140, up and down durning the workout . Mostly resistant training with weights. About a week ago I noticed after my third set of exercises ,my Apple
I am 81 years old and work out using HIT on average about 50 minutes a day usually for six days a week. My heart rate goes from 65 when I start to a max of 140, up and down durning the workout . Mostly resistant training with weights. About a week ago I noticed after my third set of exercises ,my Apple
Stetson
in
AF Association
5 months ago
Can azathioprine cause chest pains?
Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side especially after excretion. I had various tests and scans but they are all negative. I had Covid last September and had to stop taking the azathioprine
Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side especially after excretion. I had various tests and scans but they are all negative. I had Covid last September and had to stop taking the azathioprine
JanJan63
in
LUPUS UK
5 months ago
Switching from Bisoprolol to Carvedilol - side affects, time to adjust?
Afternoon all, Background is I had 2 ablations in 2019 but Afib started coming back in 2021 so I was put onto flecainide and bisoprolol. The flec ended up causing more issues but since stopping flecainide and staying on bisoprolol I've been doing pretty well. I was on a very low does of 1.25mg daily
Afternoon all, Background is I had 2 ablations in 2019 but Afib started coming back in 2021 so I was put onto flecainide and bisoprolol. The flec ended up causing more issues but since stopping flecainide and staying on bisoprolol I've been doing pretty well. I was on a very low does of 1.25mg daily
kitenski
in
AF Association
5 months ago
Is it common to get laryngitis with aps?
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
Charts
in
Hughes Syndrome APS Forum
6 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
8 months ago
Weak positive
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Demilouise
in
LUPUS UK
6 months ago
GENERALLY! Is there a correct sleeping position, right recovery position, left recovery position, back, high back support, v pillow, etc?
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
Adlon57
in
Healthy Evidence
8 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
8 months ago
Patient Day coming to Baltimore, Saturday March 02
A unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation. You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE
A unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation. You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE
TracyAdmin
Partner
in
AF Association
5 months ago
Arrhythmia Alliance Patient Day coming to Baltimore, Saturday March 02
Unique opportunity to meet local experts to find out more about your heart health and in particular, heart rhythm conditions, such as SVT and AF You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE EKG https://heartrhythmalliance.org
Unique opportunity to meet local experts to find out more about your heart health and in particular, heart rhythm conditions, such as SVT and AF You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE EKG https://heartrhythmalliance.org
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
5 months ago
Heart rate monitor results - another update
We had our second private consultation today for mum. Mum had the Zio XT monitor for a week. She has permanent AF and HF and the past couple of months have been so difficult as mum hasn’t felt good pretty much every day. The consultant said mum’s average heart rate is around 80 bpm, but the monitor
We had our second private consultation today for mum. Mum had the Zio XT monitor for a week. She has permanent AF and HF and the past couple of months have been so difficult as mum hasn’t felt good pretty much every day. The consultant said mum’s average heart rate is around 80 bpm, but the monitor
Nickybhf
in
AF Association
5 months ago
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