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Vanishing White Matter (VWM) disease
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Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
7 months ago
Eltroxin Mercury Pharma
Hello I have been struggling with underactive thyroid and recently diagnosed with Benign nodules and had to come off 50mcg levothyroxine as it caused hoarse voice, goiter to swell etc. My recent lab results were TSH 5.79 and T4 10.8. I still am struggling with my thyroid swelling up. I have been for
Hello I have been struggling with underactive thyroid and recently diagnosed with Benign nodules and had to come off 50mcg levothyroxine as it caused hoarse voice, goiter to swell etc. My recent lab results were TSH 5.79 and T4 10.8. I still am struggling with my thyroid swelling up. I have been for
Chesterblue
in
Thyroid UK
5 months ago
Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
7 months ago
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Have you experience of Chemotherapy and underactive thyroid?
I have recently completed chemo following surgery for a bowel tumour. I was wondering if anyone has experience of chemotherapy and underactive thyroid? I have continued to take 75 T4 and 20 T3. It’s difficult to know if the fatigue / sleep problems are to do with the thyroid or chemo. many thanks.
I have recently completed chemo following surgery for a bowel tumour. I was wondering if anyone has experience of chemotherapy and underactive thyroid? I have continued to take 75 T4 and 20 T3. It’s difficult to know if the fatigue / sleep problems are to do with the thyroid or chemo. many thanks.
Mantras131
in
Thyroid UK
5 months ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
23 days ago
Does Flecainide Work for Persistent Afib
Hello. In February, I had a cardioversion after being in persistent afib for 5 months. While I was in NSR, I saw my cardiologist and he took me off of metoprolol and prescribed Ditilizem and Flecainide. Several days after I saw him, I went back into persistent afib, but had not yet started taking
Hello. In February, I had a cardioversion after being in persistent afib for 5 months. While I was in NSR, I saw my cardiologist and he took me off of metoprolol and prescribed Ditilizem and Flecainide. Several days after I saw him, I went back into persistent afib, but had not yet started taking
DogLover9987
in
Atrial Fibrillation Support
4 months ago
Blood test Results AST/GGT
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Koswecan
in
British Liver Trust
7 months ago
liver transplant : build up
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
Meanies
in
British Liver Trust
7 months ago
Steroid injection in the Bum
Hi , I had a steroid shot as I have rheumatoid Arthrits which I've had for 14 years But 2 days ago I had the steroid shot in my bottom I've had them before but that was maybe 8 years ago .2 days later I'm in pain again ..I can't remember if this is normal .
Hi , I had a steroid shot as I have rheumatoid Arthrits which I've had for 14 years But 2 days ago I had the steroid shot in my bottom I've had them before but that was maybe 8 years ago .2 days later I'm in pain again ..I can't remember if this is normal .
Trishfrog1
in
NRAS
5 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
Can anyone shed some light on Anti CCP antibodies result?
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Cheshirecatz
in
NRAS
5 months ago
Pip claim
Hi can you get pip for anxiety as well as fibromyalgia and angina.Thanjs
Hi can you get pip for anxiety as well as fibromyalgia and angina.Thanjs
Tazandoldie
in
Fibromyalgia Action UK
4 months ago
GGT Marker
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
Gaspereaux
in
British Liver Trust
1 month ago
PSA of <0.1 undetectable?
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
pj1121
in
Advanced Prostate Cancer
7 months ago
B1 therapy side effects
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
ashok200
in
Cure Parkinson's
7 months ago
Is inflammatory arthritis affecting your daily life?
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Aribah-NRAS
NRAS
in
NRAS
5 months ago
I have hypothyroidism…have I got autoimmune pancreatitis?
Thanks in advance to all you good people, who’ve already been so helpful. Since 2012, when diagnosed with Hypothyroidism after years of illness, I was never referred to an Endo. I assume I have Hashimoto’s… From childhood, I’ve had recurrent GI symptoms to alcohol and fatty foods. Last August, I had
Thanks in advance to all you good people, who’ve already been so helpful. Since 2012, when diagnosed with Hypothyroidism after years of illness, I was never referred to an Endo. I assume I have Hashimoto’s… From childhood, I’ve had recurrent GI symptoms to alcohol and fatty foods. Last August, I had
BlueMoon65
in
Thyroid UK
5 months ago
Morningside liothyronine 5mcg supply issues
I'm having problems to get Morningside liothyronine 5mcg. I have a regular script specifying Morningside Liothyronine 5mg which I take twice daily. Boots has been unable to get hold of it this month and their supplier is sending Viatris brand instead, which has mannitol that caused me serious problems
I'm having problems to get Morningside liothyronine 5mcg. I have a regular script specifying Morningside Liothyronine 5mg which I take twice daily. Boots has been unable to get hold of it this month and their supplier is sending Viatris brand instead, which has mannitol that caused me serious problems
KCFryer
in
Thyroid UK
4 months ago
Can i take vacation when already 5 years PSA < 0.01
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Vasili
in
Advanced Prostate Cancer
7 months ago
Stopping Bisoprolol & ramipril
Long story short! I’ve been on 2.5 of each now for over two years & im over 18months clear in sinus rhythm after a successful ablation in feb 22 I’ve recently had an eco which shows heart in full health, I’ve been through the genetics route which concluded no heart disease or family history to worry
Long story short! I’ve been on 2.5 of each now for over two years & im over 18months clear in sinus rhythm after a successful ablation in feb 22 I’ve recently had an eco which shows heart in full health, I’ve been through the genetics route which concluded no heart disease or family history to worry
GM1987
in
Atrial Fibrillation Support
4 months ago
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