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Vanishing White Matter (VWM) disease
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Not PCa related but sounds like a very promising approach
When I read "advanced pancreatic cancer" and "overall disease control of 94%" in the same document...I feel like smiling.... https://ascopost.com/news/april-2024/advanced-pancreatic-cancer-oncolytic-virus-based-immunostimulatory-gene-therapy-plus-chemotherapy/
When I read "advanced pancreatic cancer" and "overall disease control of 94%" in the same document...I feel like smiling.... https://ascopost.com/news/april-2024/advanced-pancreatic-cancer-oncolytic-virus-based-immunostimulatory-gene-therapy-plus-chemotherapy/
Maxone73
in
Advanced Prostate Cancer
4 months ago
Seronegative arthritis
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
PurpleDuckie
in
PMRGCAuk
2 months ago
High-intensity Exercise Can Reverse Neurodegeneration in Parkinson’s Disease
In fact, after six months of exercise, the neurons actually had grown healthier and produced stronger dopamine signals. Dopamine is a chemical that helps brain cells communicate with each other. The researchers published their findings in npj Parkinson’s Disease on February 9. https://medicine.yale.edu
In fact, after six months of exercise, the neurons actually had grown healthier and produced stronger dopamine signals. Dopamine is a chemical that helps brain cells communicate with each other. The researchers published their findings in npj Parkinson’s Disease on February 9. https://medicine.yale.edu
Farooqji
in
Cure Parkinson's
6 months ago
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The paradigm has shifted - castrate resistance.
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
fireandice123
in
Advanced Prostate Cancer
6 months ago
ALP AND RADIUM 223
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
NLondon43
in
Advanced Prostate Cancer
6 months ago
Sleep issues and melatonin
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Helliborous
in
Pernicious Anaemia Society
2 months ago
Naproxen
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
Mybirthday1975
in
NRAS
2 months ago
Neuroendocrine Prostate Cancer mLiver c
Found out my ademo morphed to NEPC (neuroendocrine prostate cancer). Hard to get research information on why this happened or treatment options. Any info would be great . My MO hasnt treated before and seems astonished since psa was <.1 for over a year. Says very rarely diagnoised . Thanks in advance
Found out my ademo morphed to NEPC (neuroendocrine prostate cancer). Hard to get research information on why this happened or treatment options. Any info would be great . My MO hasnt treated before and seems astonished since psa was <.1 for over a year. Says very rarely diagnoised . Thanks in advance
safari123
in
Advanced Prostate Cancer
6 months ago
Inflammatory arthritis & worse circulation
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
hazelcats
in
NRAS
2 months ago
Take part in the PLAN-HERACLES survey
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Aribah-NRAS
NRAS
in
NRAS
2 months ago
Newly diagnosed researching lifestyle changes
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Nwdx
in
Advanced Prostate Cancer
6 months ago
Pericardial effusion
I had taken Prednisone for about three and a half years for PMR and stopped about four months ago. In December a follow up CT scan for something else showed fluid in the pericardial sac. One of the causes listed for this to occur is an auto immune condition. I have never seen anyone on this forum speak
I had taken Prednisone for about three and a half years for PMR and stopped about four months ago. In December a follow up CT scan for something else showed fluid in the pericardial sac. One of the causes listed for this to occur is an auto immune condition. I have never seen anyone on this forum speak
Tiredofpmr555
in
PMRGCAuk
6 months ago
Thyroid antibodies
Hello everyone, Just asking for some advice or thoughts as I have the thyroid antibodies but ‘normal thyroid’. The thyroid antibodies were found when my first private endo ran tests for my hypoPARA. I have been confused about what they are going to do about it as all they have said it ‘your thyroid
Hello everyone, Just asking for some advice or thoughts as I have the thyroid antibodies but ‘normal thyroid’. The thyroid antibodies were found when my first private endo ran tests for my hypoPARA. I have been confused about what they are going to do about it as all they have said it ‘your thyroid
Owl84
in
Thyroid UK
2 months ago
Life Expectancy
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
godhelpus
in
Advanced Prostate Cancer
6 months ago
drug vacation
Who had PSA level come back all the way down after a drug vacation? I want to do a holiday when my Lupron wears off in a couple months. PSA now is .053. Been on Lupron and abi for six years.
Who had PSA level come back all the way down after a drug vacation? I want to do a holiday when my Lupron wears off in a couple months. PSA now is .053. Been on Lupron and abi for six years.
gsun
in
Advanced Prostate Cancer
6 months ago
I think I have Lupus but not diagnosed yet
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
Zephyrspurple
in
LUPUS UK
2 months ago
PSORIATIC ARTHRITIS
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
Cheylann
in
NRAS
2 months ago
Liver Results - Noone can tell me whats normal
Hi All, I'm generally very healthy (lots of exercise) although since I was approx 23 (I'm now 57) my GGT levels have been elevated to between 58-88. This concerned me a little (didn't really concern my Doc) although my ALT's & AST's have always been within normal range. I do drink quite a bit...but
Hi All, I'm generally very healthy (lots of exercise) although since I was approx 23 (I'm now 57) my GGT levels have been elevated to between 58-88. This concerned me a little (didn't really concern my Doc) although my ALT's & AST's have always been within normal range. I do drink quite a bit...but
BouncyCat
in
British Liver Trust
6 months ago
PSA flare Post SBRT
Does anyone know how long PSA ca flare after SBRT? Thanks
Does anyone know how long PSA ca flare after SBRT? Thanks
NDJIM
in
Advanced Prostate Cancer
6 months ago
Help with short synacthen test results
I originally posted this on the thyroid section of this site, but there appears to be some good experience of the short synacthen test here too, so I hope this is ok. Quick background, I’m 38 years old, male, and been experiencing pretty debilitating symptoms for about 6 years - fatigue, brain fog,
I originally posted this on the thyroid section of this site, but there appears to be some good experience of the short synacthen test here too, so I hope this is ok. Quick background, I’m 38 years old, male, and been experiencing pretty debilitating symptoms for about 6 years - fatigue, brain fog,
JonnyA
in
PMRGCAuk
6 months ago
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