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Update on my partner
Just wanted to say thank you to everyone. We are 4 weeks into EOD injections a local pharmacist showed me how to inject my partner and iv been doing them for him. Originally using panpharma but it was sold out so have just started with pascoe 1500. Much easier to draw up and inject and apparently no
Just wanted to say thank you to everyone. We are 4 weeks into EOD injections a local pharmacist showed me how to inject my partner and iv been doing them for him. Originally using panpharma but it was sold out so have just started with pascoe 1500. Much easier to draw up and inject and apparently no
Nic878
in
Pernicious Anaemia Society
5 months ago
New Blood results - still have brain fog
24 male, diagnosed with autoimmune hypo at 16. Was on 200mcg levothyroxine (Synthroid) for years and felt amazing, 0 symptoms. Blood test I have from past on 200mcg; FT4 18 (9-19), and tsh 1.46. Again, felt great, tons of energy. Went off meds for 16 days Nov 2022, felt like crap, tsh 224 and FT4
24 male, diagnosed with autoimmune hypo at 16. Was on 200mcg levothyroxine (Synthroid) for years and felt amazing, 0 symptoms. Blood test I have from past on 200mcg; FT4 18 (9-19), and tsh 1.46. Again, felt great, tons of energy. Went off meds for 16 days Nov 2022, felt like crap, tsh 224 and FT4
Johnfishman22
in
Thyroid UK
5 months ago
Please help me understand advanced thyroid test results
I’m returning here after following advice to get my mum a full thyroid check via medichecks as her GP had dismissed her previously marginal results. She is switching to a new surgery and we are hoping she will be taken more seriously, following these additional test results. I’m hoping someone can
I’m returning here after following advice to get my mum a full thyroid check via medichecks as her GP had dismissed her previously marginal results. She is switching to a new surgery and we are hoping she will be taken more seriously, following these additional test results. I’m hoping someone can
Roo32
in
Thyroid UK
5 months ago
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b12 and ferratin
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
Lee_maynard
in
Pernicious Anaemia Society
5 months ago
Side effects of Adderall XR
Has anyone else developed a sore throat or cough on Adderall XR? If so does regular Adderall have the same effect. I’ve recently (about 4-5 months ago) started ADHD meds after being off for about 8 years. I suffer from EDS (excessive daytime sleepiness) in addition to ADHD of the primarily inattentive
Has anyone else developed a sore throat or cough on Adderall XR? If so does regular Adderall have the same effect. I’ve recently (about 4-5 months ago) started ADHD meds after being off for about 8 years. I suffer from EDS (excessive daytime sleepiness) in addition to ADHD of the primarily inattentive
Naturegames
in
CHADD's Adult ADHD Support
3 months ago
vitamin d
can you advise a vitamin d please
can you advise a vitamin d please
Gullysully84
in
Thyroid UK
5 months ago
Schilling Test -or something else ?
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
5 months ago
Numb hands 😞
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Auntbessy
in
Thyroid UK
5 months ago
PA and FND
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
purpleabc
in
Pernicious Anaemia Society
5 months ago
2023: Your Successes and Failures
My mum is 83, has PD and dementia.
Successes
1. Constipation and digestive issues very much helped with the addition of Motilitone, a prokinetic. Once a day or every other day now. No strain. Zero stress around the issue now. Previously, there was a great deal. Abdominal pains have gone. (
My mum is 83, has PD and dementia.
Successes
1. Constipation and digestive issues very much helped with the addition of Motilitone, a prokinetic. Once a day or every other day now. No strain. Zero stress around the issue now. Previously, there was a great deal. Abdominal pains have gone. (
garygjs
in
Cure Parkinson's
5 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
5 months ago
B12 deficiency and bronchitis
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
Hatwindowwindow4
in
Pernicious Anaemia Society
5 months ago
Injecting with out of date B12 ampules
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
Cetus
in
Pernicious Anaemia Society
5 months ago
Peripheral neuropathy
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
puppy43
in
CLL Support
5 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
B12 Deficiency
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
MaryF
Administrator
in
Hughes Syndrome APS Forum
3 months ago
B1 effect?:)
Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?
Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?
realk
in
Cure Parkinson's
5 months ago
folate and b12
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
Confused1806
in
Pernicious Anaemia Society
3 months ago
Blood test results: what to do next plus should I tell my endo?
Thanks everyone for your advice here over the last months. I’ve been on 125mcg Levothyroxine and 10mcg T3 for 7 weeks now (up from 100mcg three days and 125mcg four days) and did this blood test last week, following your protocol: TSH: 0.01 (0.27 - 4.2) FT3: 5.5 (3.1 - 6.8) FT4: 21.6 (12 - 22) Iron
Thanks everyone for your advice here over the last months. I’ve been on 125mcg Levothyroxine and 10mcg T3 for 7 weeks now (up from 100mcg three days and 125mcg four days) and did this blood test last week, following your protocol: TSH: 0.01 (0.27 - 4.2) FT3: 5.5 (3.1 - 6.8) FT4: 21.6 (12 - 22) Iron
WaystarRoyco
in
Thyroid UK
5 months ago
Private testing for B12 and MMA (UK)
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Shoe2
in
Pernicious Anaemia Society
5 months ago
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