B1 effect?:): Hi everybody , I just started... - Cure Parkinson's

Cure Parkinson's

26,583 members27,897 posts

B1 effect?:)

realk profile image
19 Replies

Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?

Written by
realk profile image
realk
To view profiles and participate in discussions please or .
Read more about...
19 Replies
Gioc profile image
Gioc

It is a restorative effect, B1 improves the energy level of the brain cells affected by Parkinson’s disease. It depends a lot on the characteristic of the lesion. In other words, it is theorized that there are healthy cells, suffering cells, and dying cells, and the restorative effect of B1 restores the ability of the latter to produce dopamine, providing almost immediate relief. I suggest making a video of the old condition and the new one to remember this.

Gcf51 profile image
Gcf51

Yes, it is possible, stay on that dose for a few weeks. The largest improvements occur with time at sweet-spot.

Dap1948 profile image
Dap1948

I don’t want to cast a downer, and I’m delighted to hear you are seeing improvements but with such a quick reaction, you may find the dose a little high for you in the long run. I will explain… Contrary to the opinion of some doctors, we do not excrete B1 soon after we’ve taken it! It can take a couple of weeks before it leaves the body. This means that, as we are taking B1 daily, the level in our bodies continues to increase to a point when we begin to excrete it and we maintain a level. So my point is that if you have a reaction early on, encouraging though it may be, as you continue with your daily dose, you may go above your sweet spot and see worsening symptoms suggesting that the dose is too high for you. So just keep alert to the fact that if symptoms worsen, this signifies the dose is too high. IF this happens, take a break of 1-2 weeks to allow the B1 levels to drop and restart at a lower dose. I expect you’ve read my book - Parkinson’s and the B1 therapy. I also have a Facebook group ‘Parkinson’s B1 therapy’ on which you will find lots of information and support.

Markbit profile image
Markbit in reply toDap1948

I totally agree. I have seen this happen a few times before. Expect to lower your dose.

ThilakAiyer profile image
ThilakAiyer

Congrats!!!! As you mentioned, make sure its HCL (Hydrochloride) not any other combination

Glenn68 profile image
Glenn68

Usually not so fast. What will be the key is within the next 2-3weeks is that you find the correct balance. Do you take other products like Mucuna and vitamines?

realk profile image
realk in reply toGlenn68

I take good quality multivitamin, fish oil,ginko,reishi mushroom, garlic extract, cinnamon and magnesium

Glenn68 profile image
Glenn68 in reply torealk

Think to add Mucuna, it's important. As other said (but Daphne is THE reference), it's a long run process and once you find the good balance try to keep it as long as possible. But keep in mind that the disease continue to evoluate, with B1 slower but still, and you will have to adapt the dose every 6 months approximately. I am building the Age Institute in Geneva to analyse the best knowledge to extend life, it include stem cells for Parkinson.

Hope-full1970 profile image
Hope-full1970

I agree with Daphne. I am in week 9 of b1 .I was at 50 mg. 3 times per week. I just added a 4th day. I really want instant results but more than that, I don't want overdose.

I am just now seeing really encouraging results. I think in the long run it's better to go slow.

On a positive note, it looks like b1 is really going to help you with such a reaction

Specterishot profile image
Specterishot in reply toHope-full1970

Could you share with us what form of B1 you are taking? We are debating between the sublingual and the oral hcl form. Thanks. We plan to start low to avoid any increase in symptoms due to overdose

realk profile image
realk in reply toSpecterishot

just a cheap form of Thiamine Hcl

Hope-full1970 profile image
Hope-full1970 in reply toSpecterishot

Yes, Superior Source Sublingual 100 mg. I cut it in half with a pill cutter to make it 50 mg

FoieGras profile image
FoieGras

YES! Don't question it, just believe. All you have to do is get the dosing right. It can take a while, but clearly it works for you as it did for me. Do read Daphne Bryan's "user's guide".

Good luck,

Dan.

Astronomer90 profile image
Astronomer90

What brand you are using?

realk profile image
realk

Hi everybody, I have noticed another effect of B1 on my body.. This time objective... since I was using B1 over one month I gained amazing 6 kg of weight!My problem was low weight and muscle gain...I could eat anything but my weight was always low - about 73 kg/188cm, and was impossible to gain anything for over 12 years....now I have 79kg after one month on Thiamine..I also came across this:

austinpublishinggroup.com/n...

Esperanto profile image
Esperanto in reply torealk

What an eye-opener. Do you personally relate to any of the conclusions of this research? Did you also experience malnutrition due to a poor diet high in fat and sugar? In any case, it seems that thiamine plays a key role in the repair process. Perhaps that could also explain the success stories of B1 therapy. However, the conclusion here is that the underlying cause should be addressed with a good diet. That, in turn, explains the success of the MIND and Mediterranean diets…

realk profile image
realk in reply toEsperanto

This research is amazing, I never thought something like High Calorie Malnutrition exists and the role the TD plays.. especially like rate limiting factor!!oh my God...:)

realk profile image
realk in reply toEsperanto

Regarding the malnutrition...At the beginning I was trying to go vegetarian, but the wrong way.I just eliminated the meat and in order to fill myself with empty calories like rice, pasta or Pota to es with some seasoning or occasionaly some cheese.

Smieli profile image
Smieli in reply torealk

Thank you for posting this. It gives me (an emaciated female) some hope as I continue with B1 therapy. Weight loss began with the onset of PD.

Not what you're looking for?

You may also like...

vit B1 treatment

http://easyhealthoptions.com/italian-doctor-curing-parkinsons-disease-with-thiamine/ Dr....

B1 question

Has anyone had P D for 20 years or more? Will B1 therapy help me even if i have had .PD for...
maryalice profile image

B1 therapy

After trying 500mg of B1 for about 2wks, I decided to stop and instead try a B complex and...
Meramt profile image

Sublingual B1

I have added comments to other posts but not written specifically on the subject of taking B1...
Dap1948 profile image

Vitamin B1 (Thiamine HCl) and Parkinson's

There is no doubt in my mind that this site has the most complete and thorough description, use and...
PD-Golfer profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.