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My Platelets go down during the warmer months...
Hello everyone, I am new here--diagnosed in 2018 with JAK2+ ET, platelets currently in the low 600's. Here is my question: every year since I was diagnosed my platelets are much better in my May and September labs and then are much higher in December and March. For example, I was at 506 in September
Hello everyone, I am new here--diagnosed in 2018 with JAK2+ ET, platelets currently in the low 600's. Here is my question: every year since I was diagnosed my platelets are much better in my May and September labs and then are much higher in December and March. For example, I was at 506 in September
Plateletsgonewild
in
MPN Voice
5 months ago
Chlorella
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
Vonni7
in
Pernicious Anaemia Society
5 months ago
New to the group - looking for some realistic advice on recovery time after loading doses
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
ClaireWF1346
in
Pernicious Anaemia Society
5 months ago
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Medication for 5.5 yr old Adhd, anxiety and asd
Hello,. My 5.5 yr old was recently diagnosed with ADHD, ASD and anxiety. A Functional child, however can have behavioral outbursts. She's not in school because they want her in a therapeutic school setting, but she's very bright and social thar we feel it would cause regression. The psychiatrist
Hello,. My 5.5 yr old was recently diagnosed with ADHD, ASD and anxiety. A Functional child, however can have behavioral outbursts. She's not in school because they want her in a therapeutic school setting, but she's very bright and social thar we feel it would cause regression. The psychiatrist
Meddyteddy
in
CHADD's ADHD Parents Together
2 months ago
Advice
Hello, I have sub clinical hypothyroidism with positive tpo antibodies taken a long time ago . I did get in touch a while ago about starting on thyroxine and my dr was happy for me to start on a low dose as I also have many symptoms but not weight gain I must add .I also am on a immunosuppressant for
Hello, I have sub clinical hypothyroidism with positive tpo antibodies taken a long time ago . I did get in touch a while ago about starting on thyroxine and my dr was happy for me to start on a low dose as I also have many symptoms but not weight gain I must add .I also am on a immunosuppressant for
4youreyesonly
in
Thyroid UK
6 months ago
Folate supplements with B12 injections
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
La2016
in
Pernicious Anaemia Society
5 months ago
diet and Tinnitus
Came across this study and thought it may be of interest to some on here. Relationship Between Diet and Tinnitus: Korea National Health and Nutrition Examination Survey Here is the article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6102331/ below is the conclusion - Conclusion Reduced intake
Came across this study and thought it may be of interest to some on here. Relationship Between Diet and Tinnitus: Korea National Health and Nutrition Examination Survey Here is the article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6102331/ below is the conclusion - Conclusion Reduced intake
AnotherLevel
in
Tinnitus UK
5 months ago
low levels despite frequent injections?
My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone else? Any thoughts as to what it might be?
My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone else? Any thoughts as to what it might be?
Merlotponty
in
Pernicious Anaemia Society
5 months ago
High TSH (which keeps rising over the years) and consistently high T4 for 7 years with no major symptoms.
Hi, Over the last 7 years, my TSH has kept rising from around 5.88 and now it is at 11.9. My T4 has stayed consistently high at between 19 and 20 throughout this time. My antibodies test are normal with nearly non-existent antibodies and my T3 was normal in the middle of the range. All my other blood
Hi, Over the last 7 years, my TSH has kept rising from around 5.88 and now it is at 11.9. My T4 has stayed consistently high at between 19 and 20 throughout this time. My antibodies test are normal with nearly non-existent antibodies and my T3 was normal in the middle of the range. All my other blood
kev269
in
Thyroid UK
5 months ago
Latest blood results
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Sweetpea1157
in
Thyroid UK
5 months ago
levodopa or not levodopa
Hello nice people, I have been diagnosed 2 years ago, I have mild symptoms I believe, only left arm reduced movements and slowness of my all body movements. I have no pains , no nightmares, no constipation, no loss of smell and no to all other symptoms. I sleep 8 hours per night. My sister describes
Hello nice people, I have been diagnosed 2 years ago, I have mild symptoms I believe, only left arm reduced movements and slowness of my all body movements. I have no pains , no nightmares, no constipation, no loss of smell and no to all other symptoms. I sleep 8 hours per night. My sister describes
LorenzaS
in
Cure Parkinson's
5 months ago
Advice plesse t3 trial
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Soaping
in
Thyroid UK
5 months ago
Do Drs get a bonus for prescribing certain drugs ?
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Jillymo
in
Pernicious Anaemia Society
5 months ago
Blood Results
Hi, Following my last post, I have visited my GP due to ongoing palpitations. She was very sympathetic and did me a full run of blood tests. All came back ‘normal’ my TSH even slightly down to my last test. Bloods were taken at 9.15am as advised. I am not prescribed any thyroid medication and take 3000
Hi, Following my last post, I have visited my GP due to ongoing palpitations. She was very sympathetic and did me a full run of blood tests. All came back ‘normal’ my TSH even slightly down to my last test. Bloods were taken at 9.15am as advised. I am not prescribed any thyroid medication and take 3000
Johannab89
in
Thyroid UK
5 months ago
T3 only blood results
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
RydeBeach
in
Thyroid UK
5 months ago
So very grateful for Thyroid UK
I just have to express my gratitude to this forum and the admins who give of their time to help us who are or have been floundering with NHS input (or lack of input+even dismissiveness of our thyroid journey) with regard to our thyroid and other connected issues. My son will be 48 this year and that’
I just have to express my gratitude to this forum and the admins who give of their time to help us who are or have been floundering with NHS input (or lack of input+even dismissiveness of our thyroid journey) with regard to our thyroid and other connected issues. My son will be 48 this year and that’
Lottyplum
in
Thyroid UK
6 months ago
Hypothyroidism & Test Result help Plz
I’ve been having various problems over the years since 2019 ! I was diagnosed with Hypothyroidism back in 1995 & im now 54 & female. I have seen a private endocrinologist before & am thinking again of recontacting again because of how unwell I am. Had my Thyroid panel done on 25/03/2024 first thing
I’ve been having various problems over the years since 2019 ! I was diagnosed with Hypothyroidism back in 1995 & im now 54 & female. I have seen a private endocrinologist before & am thinking again of recontacting again because of how unwell I am. Had my Thyroid panel done on 25/03/2024 first thing
Toto88
in
Thyroid UK
5 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
6 months ago
Vitamin D
I’ve managed to raise my Vitamin D from 60 to 110 by taking for three months 3000 IU D3 with 100 mg K2. I’ve just begun to have unpleasant almost daily diarrhoea which I can only put down to the D3 - although it’s odd that it’s taken 3 months to become an issue. It was time for me to have a break
I’ve managed to raise my Vitamin D from 60 to 110 by taking for three months 3000 IU D3 with 100 mg K2. I’ve just begun to have unpleasant almost daily diarrhoea which I can only put down to the D3 - although it’s odd that it’s taken 3 months to become an issue. It was time for me to have a break
Hidden
in
Thyroid UK
5 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
5 months ago
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