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PALVE
I’m about to start b12 injections alternate days for two weeks then every 3 months. I appreciate this isn’t enough for neurological problems which I have. Should I ask for blood tests for folic acid before I start and then take every day .. and for how long? I’m not going down the path of SI for lots
I’m about to start b12 injections alternate days for two weeks then every 3 months. I appreciate this isn’t enough for neurological problems which I have. Should I ask for blood tests for folic acid before I start and then take every day .. and for how long? I’m not going down the path of SI for lots
Palum
in
Pernicious Anaemia Society
3 months ago
Stiff as a Post!
I rather like that play on words! I know that stiffness is a part of PMR but I have experienced stiffenss since my fifties. I remember going to a wholistic style GP who told me to take huge doses of Vitamin D and zinc tablets which I don't remember making a lot of difference. My brother, who I haven't
I rather like that play on words! I know that stiffness is a part of PMR but I have experienced stiffenss since my fifties. I remember going to a wholistic style GP who told me to take huge doses of Vitamin D and zinc tablets which I don't remember making a lot of difference. My brother, who I haven't
Louisa1840
in
PMRGCAuk
3 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
3 months ago
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Tinnitus almost gone… some hope to share (down to folate supplements?!)
I first joined this forum about 8 months ago and was in a very dark place with my pulsatile tinnitus. I went to ENT had tests and scans and told no obvious cause learn to live with it now. I did that with some success using CBT based app Oto, I brought myself a sit stand desk for work as found it was
I first joined this forum about 8 months ago and was in a very dark place with my pulsatile tinnitus. I went to ENT had tests and scans and told no obvious cause learn to live with it now. I did that with some success using CBT based app Oto, I brought myself a sit stand desk for work as found it was
PTNewbie
in
Tinnitus UK
3 months ago
Can you help me with an advice, please
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Geoegeta
in
Thyroid UK
3 months ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
3 months ago
High MMA
Hello I have just received the results of my urine MMA results Vitamin B12. MMA. Result 3.4. Range. 0-2.5 ug Symptoms are pins and needles in my hands and feet, numb feet and tinnitus. I also have Hashimotos I have been using B12 oils I would appreciate any advice Thank you
Hello I have just received the results of my urine MMA results Vitamin B12. MMA. Result 3.4. Range. 0-2.5 ug Symptoms are pins and needles in my hands and feet, numb feet and tinnitus. I also have Hashimotos I have been using B12 oils I would appreciate any advice Thank you
Bean101
in
Pernicious Anaemia Society
3 months ago
follow up to previous post. Help please.
Hi all, I previously posted on behalf of my Mom. TSH, B12, folate and vitamin D below was taken 21/12/23. GP prescribed 50,000 unit 1 a week for 6 weeks vitamin D caps. So we see the ones called calceous 400 unit with calcium 1 twice a day did not maintain her level. So that could be one reason why she
Hi all, I previously posted on behalf of my Mom. TSH, B12, folate and vitamin D below was taken 21/12/23. GP prescribed 50,000 unit 1 a week for 6 weeks vitamin D caps. So we see the ones called calceous 400 unit with calcium 1 twice a day did not maintain her level. So that could be one reason why she
Monalisa2023
in
Thyroid UK
3 months ago
Swap?
Admin edit: Please note that it is illegal to supply injectible B12 for medical purposes without a prescription in the UK - this post has been closed to further responses. Hi Would anyone like to swap a box of hydroxocobalamin 1mg/1ml 10 ampoules in exchange for Cyanocobalamin 1mg/1ml 10 ampoules for
Admin edit: Please note that it is illegal to supply injectible B12 for medical purposes without a prescription in the UK - this post has been closed to further responses. Hi Would anyone like to swap a box of hydroxocobalamin 1mg/1ml 10 ampoules in exchange for Cyanocobalamin 1mg/1ml 10 ampoules for
Davy28
in
Pernicious Anaemia Society
3 months ago
Trimethoprim - ET
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
Jelbea
in
MPN Voice
3 months ago
T3 and updates.
Hope everyone is having a good day and not pouring it down and misty as it is here. Managed to have a telephone consultation with my usual Dr. today that I feel was helpful. My T3 result was done with my last tests and is 4.5 which said in normal range. I only had one thyroid test prior to beginning
Hope everyone is having a good day and not pouring it down and misty as it is here. Managed to have a telephone consultation with my usual Dr. today that I feel was helpful. My T3 result was done with my last tests and is 4.5 which said in normal range. I only had one thyroid test prior to beginning
Benjipuss
in
Thyroid UK
3 months ago
lowered my dexa scores!
It is with great pleasure that I can tell this story! I had my 3yr dexa scan 2 weeks ago. Dreaded results as I’ve not taken drugs as when I initially tried them I was unwell (to say the least!) I improved my diet … cut way down on sugar, lowered carb intake, upped green veg, red meat, milk, yoghurt
It is with great pleasure that I can tell this story! I had my 3yr dexa scan 2 weeks ago. Dreaded results as I’ve not taken drugs as when I initially tried them I was unwell (to say the least!) I improved my diet … cut way down on sugar, lowered carb intake, upped green veg, red meat, milk, yoghurt
Tues
in
Bone Health and Osteoporosis UK
3 months ago
First IVF Cyle - Endo sufferer - What should I be doing to prepare?
Hi All! Just looking for some advice about what to do prior to a IVF cycle. Bit of background… I have stage 4 endometriosis, kissing ovaries, 5cm cyst on one ovary and a small fibroid. My partner and I have been TTC for 6 years. The years of lack of success led to a lot of weight gain as I took
Hi All! Just looking for some advice about what to do prior to a IVF cycle. Bit of background… I have stage 4 endometriosis, kissing ovaries, 5cm cyst on one ovary and a small fibroid. My partner and I have been TTC for 6 years. The years of lack of success led to a lot of weight gain as I took
Behind_Hazel_Eyes
in
Fertility Network UK
3 months ago
having bloods taken for Thyroid
I have my appointment at 8.40am for my bloods , is it best to take my thyroxine after my blood test. Or should I take it in the night. I have stopped my Biotin and Vitamin b complex for a couple of weeks. I only have this blood test annually so I want the best test results.
I have my appointment at 8.40am for my bloods , is it best to take my thyroxine after my blood test. Or should I take it in the night. I have stopped my Biotin and Vitamin b complex for a couple of weeks. I only have this blood test annually so I want the best test results.
Lolaknit
in
Thyroid UK
3 months ago
Reducing T3 - please help me understand
Hi all, I am baffled with my situation. I would be so grateful for any ideas. First, after being extremely sick for over 5 years I was finally diagnosed with mold exposure early in 2023 and now being treated by a top specialist at Cleveland Clinic in the US. Making progress. This doc warned me
Hi all, I am baffled with my situation. I would be so grateful for any ideas. First, after being extremely sick for over 5 years I was finally diagnosed with mold exposure early in 2023 and now being treated by a top specialist at Cleveland Clinic in the US. Making progress. This doc warned me
jstein1979
in
Thyroid UK
3 months ago
blood results
Hi, I have had my blood results back from blue horizon. The only one they said was low was the TSH at 0.06. I was expecting this as I’ve been self sourcing T3 . Little worried about what my endo will say when he reruns bloods next month, as he’s not keen to raise my levo above 50. Results are below,
Hi, I have had my blood results back from blue horizon. The only one they said was low was the TSH at 0.06. I was expecting this as I’ve been self sourcing T3 . Little worried about what my endo will say when he reruns bloods next month, as he’s not keen to raise my levo above 50. Results are below,
Clauds123
in
Thyroid UK
3 months ago
Help with results
Auto immune hypothyroid taking 100mcg Levo. Take iron tablets as ferritin usually 50-60 without. Suspected IBS and lots of gut issues. Feeling tired, aching weak feeling and some symptoms of low B12/folate but all results are in range and considered normal. Serum TSH level: 0.7 mIU/L (range 0.4
Auto immune hypothyroid taking 100mcg Levo. Take iron tablets as ferritin usually 50-60 without. Suspected IBS and lots of gut issues. Feeling tired, aching weak feeling and some symptoms of low B12/folate but all results are in range and considered normal. Serum TSH level: 0.7 mIU/L (range 0.4
pinklady756
in
Thyroid UK
3 months ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
3 months ago
Scartgabe13
My wife wss diagnosed with PA 3 years ago, after our daughter suggested she should have a blood test to find out if her b12 was low,it was36 ,our daughter who has had PA for 10 years, was right .my wife had loading doses then started to have one every3 months but recently noted she has,nt had one since
My wife wss diagnosed with PA 3 years ago, after our daughter suggested she should have a blood test to find out if her b12 was low,it was36 ,our daughter who has had PA for 10 years, was right .my wife had loading doses then started to have one every3 months but recently noted she has,nt had one since
scartgabe12
in
Pernicious Anaemia Society
3 months ago
Desperate for direction
I am diagnosed hypothyroid. I take 75mg levothyroxine a day. i have had my latest thyroid results from Monitor My Health. I think they use NHS ranges. 15/01/2024 3.7 pmol/L FT3 levels normal (normal range 3.1 - 6.8 pmol/L) thyroxine 15/01/2024 16.4 pmol/L FT4 levels normal (normal range 12 -
I am diagnosed hypothyroid. I take 75mg levothyroxine a day. i have had my latest thyroid results from Monitor My Health. I think they use NHS ranges. 15/01/2024 3.7 pmol/L FT3 levels normal (normal range 3.1 - 6.8 pmol/L) thyroxine 15/01/2024 16.4 pmol/L FT4 levels normal (normal range 12 -
Bluekipper
in
Thyroid UK
3 months ago
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