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Lack of Information
I just recently found out I am in Stage 3b. I am a 71 year old female. If I hadn't pointed out my unusual lab results to my family doctor, I might still not know. I had been told for years that they were "going to keep an eye on it." Yet no one did. I had to request to see a specialist. Now that
I just recently found out I am in Stage 3b. I am a 71 year old female. If I hadn't pointed out my unusual lab results to my family doctor, I might still not know. I had been told for years that they were "going to keep an eye on it." Yet no one did. I had to request to see a specialist. Now that
JESUSHASGOTTHIS
in
Kidney Dialysis
3 months ago
Blood test results - anxiety
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
ci00aaj
in
Thyroid UK
3 months ago
Strange, possibly hopeful realisation
This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they haven't prescribed. So, I am dealing with the second recurrence and looking at third line treatment. And wondering why my cancer (clear cell and
This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they haven't prescribed. So, I am dealing with the second recurrence and looking at third line treatment. And wondering why my cancer (clear cell and
candyapplegrey
in
My Ovacome
5 months ago
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B12 website - Norway (Norge / Noreg)
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
Sleepybunny
in
Pernicious Anaemia Society
3 months ago
hopefully getting somewhere!!
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
AtoZ24
in
Thyroid UK
3 months ago
Poor GP response for years!
Hello. First time poster here Long story short I have been taking Levothyroxine for around 8 years and within this time I have had a constant battle with my GP to manage my symptoms. Unfortunately I have found that it does depend on which GP you get as to whether they will increase Levothyroxine.
Hello. First time poster here Long story short I have been taking Levothyroxine for around 8 years and within this time I have had a constant battle with my GP to manage my symptoms. Unfortunately I have found that it does depend on which GP you get as to whether they will increase Levothyroxine.
Pinknosenena
in
Thyroid UK
5 months ago
Experience with Covid and hypo/hashis
Hi all, I’ve been quite stable for a number of years now. I was on NDT and doing ok but not perfect, adding a small amount of Levo to my NDT at the end of 2019 made me feel really well, pulling my FT4 up in the range a bit made a big difference. At the beginning of May this year I thought I caught
Hi all, I’ve been quite stable for a number of years now. I was on NDT and doing ok but not perfect, adding a small amount of Levo to my NDT at the end of 2019 made me feel really well, pulling my FT4 up in the range a bit made a big difference. At the beginning of May this year I thought I caught
Littledancingtiger
in
Thyroid UK
3 months ago
A Blip in time!
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
Barney50
in
MPN Voice
3 months ago
Could a member please explain the T3 feedback loop?
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
BlueGreenHealer
in
Thyroid UK
3 months ago
GP has asked for data/study on safety of frequent B12 injections
Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her understanding of the recommendation of 1mg per 3 months and anymore is unsafe...arghh! My current GP is asking for information - thank heavens!!
Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her understanding of the recommendation of 1mg per 3 months and anymore is unsafe...arghh! My current GP is asking for information - thank heavens!!
auldreekie
in
Pernicious Anaemia Society
3 months ago
Folate brand
I'm going to start taking Folate, any recommendations for a brand or strength please? Last folate result was: Serum Folate 19.10 range 8.83-60.8
I'm going to start taking Folate, any recommendations for a brand or strength please? Last folate result was: Serum Folate 19.10 range 8.83-60.8
Espeegee
in
Thyroid UK
3 months ago
pernicious anemia
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Lucymay82
in
Pernicious Anaemia Society
3 months ago
After some info on cardio exercise and B12 deficiency.......
I little bit of my B12 history: diagnosed 7½ years ago, been self injecting for 7 years, and am currently SI'ing every 3 days. With this protocol I have no symptoms. I can walk for miles every day, I can do weight training at the gym 2 to 3 times a week, I work, I go out, I have a happy, healthy marriage
I little bit of my B12 history: diagnosed 7½ years ago, been self injecting for 7 years, and am currently SI'ing every 3 days. With this protocol I have no symptoms. I can walk for miles every day, I can do weight training at the gym 2 to 3 times a week, I work, I go out, I have a happy, healthy marriage
BeachArt
in
Pernicious Anaemia Society
3 months ago
Starting levothyroxine- which brand?
Hi, I have been asked by the end to start on 75mcg Levothyroxine today. I am gluten free and have reactive hypoglycaemia so avoid sugar/ carbs; is there a particular brand of Levothyroxine that might be good for me? I also take a bunch of supplements; Vit D, B complex, selenium, magnesium, iron;
Hi, I have been asked by the end to start on 75mcg Levothyroxine today. I am gluten free and have reactive hypoglycaemia so avoid sugar/ carbs; is there a particular brand of Levothyroxine that might be good for me? I also take a bunch of supplements; Vit D, B complex, selenium, magnesium, iron;
RuthNelson
in
Thyroid UK
3 months ago
Thyroid Test Results
As a result of my GP pressurising me to reduce Levothyroxine intake I have had tests carried out privately. My weight justifies the dosage of 200mcg daily that is currently prescribed. (1.6mcg/kg) However this dosage results in incredibly low TSH levels. My GP seeks to raise TSH levels. Results are
As a result of my GP pressurising me to reduce Levothyroxine intake I have had tests carried out privately. My weight justifies the dosage of 200mcg daily that is currently prescribed. (1.6mcg/kg) However this dosage results in incredibly low TSH levels. My GP seeks to raise TSH levels. Results are
Eccleston
in
Thyroid UK
3 months ago
advice - thyroid results and feelings
Hi all, So i've been under private thyroid care for just over and year and a half. I was on 75mcg a day from about 18 years old to 42 years old, had bloods checked and all 'in range' but I didn't feel good. Tired a lot and sluggish and constipation, cold sensitiveness. After changing to private,
Hi all, So i've been under private thyroid care for just over and year and a half. I was on 75mcg a day from about 18 years old to 42 years old, had bloods checked and all 'in range' but I didn't feel good. Tired a lot and sluggish and constipation, cold sensitiveness. After changing to private,
Melody79
in
Thyroid UK
3 months ago
low TSH
I have autoimmune thyroid disease diagnosed 23yrs ago and have been on the hypothyroid treadmill since. Yet again GP wants to reduce my levothyroxine and liothyronine as my TSH is 0.12. this happens regularly and my TSH never changes. Many years ago an ultrasound of my thyroid showed it was “shrivelled
I have autoimmune thyroid disease diagnosed 23yrs ago and have been on the hypothyroid treadmill since. Yet again GP wants to reduce my levothyroxine and liothyronine as my TSH is 0.12. this happens regularly and my TSH never changes. Many years ago an ultrasound of my thyroid showed it was “shrivelled
vsloan1
in
Thyroid UK
3 months ago
Time to add t3 (results)
hi these are my latest results and im having a bit of a tough time losing weight, even with calories kept quite low 15-1600 calories a day im 111kg , is it time to add t3 as my t4 is top of range ? im taking 125 mcg of t4. TSH- 0.688 (0.27 - 4.2. ) FT4: 20.9 pmol/l (Range 12 - 22) 89.00% FT3: 5.3
hi these are my latest results and im having a bit of a tough time losing weight, even with calories kept quite low 15-1600 calories a day im 111kg , is it time to add t3 as my t4 is top of range ? im taking 125 mcg of t4. TSH- 0.688 (0.27 - 4.2. ) FT4: 20.9 pmol/l (Range 12 - 22) 89.00% FT3: 5.3
ali2341
in
Thyroid UK
5 months ago
Blood test for following do I need to stop taking supplements
Hi All I an due a blood test Thursday morning at 8am and I am getting tested for the following FULL IRON PANEL ZINC SELERIUM T3 CORTISOL MAGNESIUM AND CHOLESTEROL (TRYIN TO GET THIS ADDED ON) IF THE NURSE WILL ALLOW. I am takikg the follow supplements. Vit c effervescent 1200mg Vit D with K2 3000iug
Hi All I an due a blood test Thursday morning at 8am and I am getting tested for the following FULL IRON PANEL ZINC SELERIUM T3 CORTISOL MAGNESIUM AND CHOLESTEROL (TRYIN TO GET THIS ADDED ON) IF THE NURSE WILL ALLOW. I am takikg the follow supplements. Vit c effervescent 1200mg Vit D with K2 3000iug
Tinkerbell_84
in
Thyroid UK
4 months ago
Resent Test Results
Help and thoughts on my test results 5/6/24 - 9-45am Free T4 (fT4) 14 pmol/L (9.1 - 17.6) Triiodothyronine 3.8 pmol/L (2.4 - 6.0) TSH 0.26 mIU/L (0.32-4.9) I'm taking 125 & 150 Levothyroxine every other day my test results 11/12/23 - morning Free T4
Help and thoughts on my test results 5/6/24 - 9-45am Free T4 (fT4) 14 pmol/L (9.1 - 17.6) Triiodothyronine 3.8 pmol/L (2.4 - 6.0) TSH 0.26 mIU/L (0.32-4.9) I'm taking 125 & 150 Levothyroxine every other day my test results 11/12/23 - morning Free T4
SilkyLegs
in
Thyroid UK
4 months ago
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