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graves journey update
Thought I’d follow up post endocrinology appointment. New blood tests came back FT4 11.5 (range 11-22) TSH > 0.01 So whilst my FT4 is making great strides in reduction and the 20mg carbimazole is working, TSH still needs to wake up. All hyperthyroid symptoms have gone. Feel the least anxious I
Thought I’d follow up post endocrinology appointment. New blood tests came back FT4 11.5 (range 11-22) TSH > 0.01 So whilst my FT4 is making great strides in reduction and the 20mg carbimazole is working, TSH still needs to wake up. All hyperthyroid symptoms have gone. Feel the least anxious I
Hungryallthetimes
in
Thyroid UK
4 months ago
good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
4 months ago
supplements with essential thrombocyethemia
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated interferon for a number of years. Just wondered what supplementation anyone would recommend for our conditions - having a terrible time health wise and had burning leg and weakness issues - I had a car accident in February
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated interferon for a number of years. Just wondered what supplementation anyone would recommend for our conditions - having a terrible time health wise and had burning leg and weakness issues - I had a car accident in February
BeckyDing
in
MPN Voice
4 months ago
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‘I couldn’t walk’: GP’s personal story of vitamin B6 toxicity
‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products, particularly when taken in combination,’ https://www1.racgp.org.au/newsgp/clinical/i-couldn-t-walk-gp-s-personal-story-of-vitamin-b6
‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products, particularly when taken in combination,’ https://www1.racgp.org.au/newsgp/clinical/i-couldn-t-walk-gp-s-personal-story-of-vitamin-b6
Farooqji
in
Cure Parkinson's
4 months ago
Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Update on my daughter's GP call today. So angry.
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
Otto11
in
Thyroid UK
4 months ago
New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
4 months ago
High cortisol hashimotos hypothyroid high B12 high magnesium T4 T3 Cushings? Help
Hi I had a load of private bloods done as had to give up work as getting worse. I stopped B12 supplements 5 weeks before test and bloods taken at 9am fasted before taking Levothyroxine and Liothyronine. I self medicate the Liothyronine (T3) as I have the DIO2 gene and not funded in my area. Endocrinologist
Hi I had a load of private bloods done as had to give up work as getting worse. I stopped B12 supplements 5 weeks before test and bloods taken at 9am fasted before taking Levothyroxine and Liothyronine. I self medicate the Liothyronine (T3) as I have the DIO2 gene and not funded in my area. Endocrinologist
HealthySam
in
Thyroid UK
4 months ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
4 months ago
folate injection Australia
does anyone know how to get the above in Australia?
does anyone know how to get the above in Australia?
Inquiringmind12
in
Pernicious Anaemia Society
4 months ago
MTHFR gene / supplementation
In my quest to optimise my health and better understand my ADHD brain and the impact of my lifestyle choices, I have stumbled across a possible link between MTHFR gene mutation and ADHD. Gary Brecka human biologist (ref Geo et all 2018) and bio hacker and ADD Magazine both link these. If I understand
In my quest to optimise my health and better understand my ADHD brain and the impact of my lifestyle choices, I have stumbled across a possible link between MTHFR gene mutation and ADHD. Gary Brecka human biologist (ref Geo et all 2018) and bio hacker and ADD Magazine both link these. If I understand
ADDandMe
in
CHADD's Adult ADHD Support
5 months ago
Help with T3
I would really appreciate some advice please. I have included my original post below. So last week I went to see another Endocrinologist, they confirmed what I was told by the first Endocrinologist who I saw earlier that week - basically as my TSH levels are within range, I did not need an increase
I would really appreciate some advice please. I have included my original post below. So last week I went to see another Endocrinologist, they confirmed what I was told by the first Endocrinologist who I saw earlier that week - basically as my TSH levels are within range, I did not need an increase
Flo1000
in
Thyroid UK
5 months ago
One more question about folate
If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's system? Thanks again! Nancy
If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's system? Thanks again! Nancy
ndodge
in
Pernicious Anaemia Society
4 months ago
Folder levels high
Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based multi with 800 mcg of folate, pretty much just on the days I inject. My naturopath doctor prescribed methyl folate. I took a1000mcg dose and
Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based multi with 800 mcg of folate, pretty much just on the days I inject. My naturopath doctor prescribed methyl folate. I took a1000mcg dose and
ndodge
in
Pernicious Anaemia Society
4 months ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
4 months ago
Advice following GP visit please
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
TheMudRunner
in
Thyroid UK
4 months ago
Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
4 months ago
Guess what? Your body has changed and will never be the same.
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
OldGuysRule
in
Advanced Prostate Cancer
4 months ago
normal TSH help.
I am about to go to the doctors in an hour to speak about some blood tests I had done last week. To me the results are on the higher side. From what I’m reading most doctors don’t like to do antibody tests and t3 and t4. How can I persuade them to do these just to check my levels? I had lots of other
I am about to go to the doctors in an hour to speak about some blood tests I had done last week. To me the results are on the higher side. From what I’m reading most doctors don’t like to do antibody tests and t3 and t4. How can I persuade them to do these just to check my levels? I had lots of other
GLDMJP14
in
Thyroid UK
4 months ago
Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
4 months ago
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