My Current Criteria for dosage, form and frequency of injections.

[WIZARD6787]

I have always been about I should not inject any more or more often than is appropriate for my body. I have also been about I should not inject less although I was overly influenced by the EOD methodology. Any less than EOD I quickly decided made no sense to inject less unless I was symptom free. Determining the correct amount was on my shoulders and weighed on me heavily.

As I write I now understand that what I was doing on some level all along was injecting more as I felt that is what my body was telling me. Over riding the internal prosecutor within. The internal prosecutor having much support from those that told me about me or scientific generalities rather than sharing about themselves. The doctors needs were met.

I in a way was lucky in that if I was B12 deficient was never an issue once it got so bad I almost died and the doctors in the USA could no longer be in denial. Well they could deny they misdiagnosed my whole life then deny their treatment was 60 years old and they did not even know how to follow their flow chart.

I did spend a year plus searching for a doctor that was current and could comprehend a flow chart. I always held out hope I would come across one for 2.5 years until I came to understand I needed more B12 than any doctor would reasonably take the risk to their livelihood to treat my body in a way that would prevent suffering. That was 7 months ago.

I was also lucky in that in the USA the standard is the minimal treatment necessary to avoid a lawsuit and a lawsuit only effective if a felony or gross misconduct and damage could be proved. Pain by itself is OK. The maximum treatment is oral and one injection a month at the facility where I was treated so I stopped hoping for help in the USA for the most part.

So 7 months ago I discovered that if I injected three times a day 1 mg than I suffered less although not immediate. This with a two month disruption from Covid morphed in to 1 mg of hydroxocobalamin SC and 1 mg of methylcobalamin SC along with 6 mg SL adenasolcobalamin 4 +- in a 24 hour period lead to weekly improvement.

I have recently found that I can substitute cyanocobalamin for the methylcobalamin to achieve the same results.

Sourcing the different forms of B12 I wanted to try and shipping has been a chaotic battle all along and limited what I could do with my trials. Nothing for that. The expense and angst has been detrimental to my healing and life.

I can not express the relief and comfort in having a regiment that if I can source the forms of B12 my body needs I can expect to experience improvement/relief. Nor can I express the angst when I cannot source what my body needs in time or the fear of authority taking that possibility from me.

I recently established the 4 mg of methylcobalamin 4 +- times a day injected in two different injection sites each time was too much at least for now as healing was too rapid and the amount of sleep and rest needed was not sustainable in my current situation.

So what I came to understand that right now my 'tell' is that I start to think I can reduce frequency. Pretty much I am doing well enough so I don't have the feeling of needing more B12 and that has been my main motivation all along.

I still have more work on what combination of forms might be best. As there are four commercially available there are many possible combinations. (Retention times as currently tested have no validity with regards to my decisions.Nor does might be more bio-available. ) My trials do suggest that methylcobalamin with adenasolcobalamin to be the most effective. It is not definitive as there is always an overlap in trials although I am getting better at evaluating as the lengths of disruption are shorter.

I do other supplements and other than not wanting to take them are in a place I am ok with.

I still work with the concept that I or anyone else cannot perfectly supplement or meet nutritional needs and that is not necessary. My body which is unique can adapt to a certain point. As I wrote I came to understand I have a blind spot with regards to injections which was born of the false hope given to me that all I had to do was inject hydroxocobalamin EOD and wait then reduce.

While I am on a roll. Severity of symptoms and length of time of symptoms do exist. That this has any known meaning with regards to appropriate treatment does not. It seems like it might and there is yet unknown why people that fall under the category of B12D are different and need different treatment. There is likely a reason the tests currently done do not establish the reason(s) it is unknown.