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Vitamin B12 deficiency
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Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
4 months ago
New here, undiagnosed, Normal TSH Low T4
Hi Long story short - I have had many Hypothyroid symptoms for many years and after having had some private bloods done I finally managed to get my NHS GP to request a T4 test which she accepts is low and confusing for her as my TSH is normal. She has said she will ask an endocrinologist for advice
Hi Long story short - I have had many Hypothyroid symptoms for many years and after having had some private bloods done I finally managed to get my NHS GP to request a T4 test which she accepts is low and confusing for her as my TSH is normal. She has said she will ask an endocrinologist for advice
Spritze
in
Thyroid UK
9 months ago
Furious/ Upset
I had a G.p appointment on 12th October who reinstated my b12 prescription. Caused much stress as have had many rounds of this. Always a lottery which Gp you get and may not be reinstated . This morning looking for result of recent screening. My B12 prescription has been cancelled AGAIN Again by
I had a G.p appointment on 12th October who reinstated my b12 prescription. Caused much stress as have had many rounds of this. Always a lottery which Gp you get and may not be reinstated . This morning looking for result of recent screening. My B12 prescription has been cancelled AGAIN Again by
Nackapan
in
Pernicious Anaemia Society
9 months ago
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When Might I See Progress with B12 Injections?
I don't have a diagnosis of PA or even deficiency because I have been supplementing B12 for years, one way or another. I have hypothyroidism too and Atrial Fibrillation all the time. I have horrible peripheral neuropathy in my feet and it's spreading up my legs. My legs are restless and painful.
I don't have a diagnosis of PA or even deficiency because I have been supplementing B12 for years, one way or another. I have hypothyroidism too and Atrial Fibrillation all the time. I have horrible peripheral neuropathy in my feet and it's spreading up my legs. My legs are restless and painful.
FancyPants54
in
Pernicious Anaemia Society
9 months ago
Levo being reduced, but feeling under medicated.
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Bbmamma
in
Thyroid UK
4 months ago
Recent blood test – Why do I feel so tired?
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Zazbag
in
Thyroid UK
1 month ago
Some more results
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
Lollipop93
in
Thyroid UK
4 months ago
Time for you all to take another bow.
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Blood results
I was diagnosed with Hashimotos in 2015. I was treated with 50 micrograms of levothyroxine daily until this March when my Tsh finally crept above the Normal range.(0.55- 4.78). My dose was raised to 75 micrograms. At my 6 month checkup my Tsh had dropped from 4.91 to 0.38. Thanks to the information
I was diagnosed with Hashimotos in 2015. I was treated with 50 micrograms of levothyroxine daily until this March when my Tsh finally crept above the Normal range.(0.55- 4.78). My dose was raised to 75 micrograms. At my 6 month checkup my Tsh had dropped from 4.91 to 0.38. Thanks to the information
flower365
in
Thyroid UK
9 months ago
Hi all
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
Doris11
in
Pernicious Anaemia Society
4 months ago
Do I need to increase folic acid/folate intake with B12 shots?
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
JazzSoprano
in
Pernicious Anaemia Society
4 months ago
Alcohol and B12/folate deficiency
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
ClaireWF1346
in
Pernicious Anaemia Society
4 months ago
Recent bloods .. help
Hi everyone Been having problems over years on levothyroxine , think conversion low . Decided to see private endo for t3 supplementing as nhs would not prescribe . Since December 23 , he lowered my thyroxine dose which was then 125 /150 alternate days but I was having most of the typical hypo symptoms
Hi everyone Been having problems over years on levothyroxine , think conversion low . Decided to see private endo for t3 supplementing as nhs would not prescribe . Since December 23 , he lowered my thyroxine dose which was then 125 /150 alternate days but I was having most of the typical hypo symptoms
Mazste97
in
Thyroid UK
4 months ago
finally an appointment!
ok so after nearly 3 months I have an appointment with an endo in a few weeks. I wondered if anyone could help me on what I need to push for and ask? Symptoms are; anxiety and depression, Epigastric pain, nausea, severe fatigue (couldn’t get out of bed yesterday) dry skin and eyes, restlessness, feeling
ok so after nearly 3 months I have an appointment with an endo in a few weeks. I wondered if anyone could help me on what I need to push for and ask? Symptoms are; anxiety and depression, Epigastric pain, nausea, severe fatigue (couldn’t get out of bed yesterday) dry skin and eyes, restlessness, feeling
Lollipop93
in
Thyroid UK
4 months ago
Injecting in the middle of the night.
Currently injecting SC methyl 1 mg/ml Cynao 1mg/ml one ml each with adeno 6mg SL 4 to 5 times a day. I now start counting at midnight. If I wake up in the middle of the night than I inject and found this to be very beneficial. I came upon injecting if I woke up when suffering utilizing EOD. I
Currently injecting SC methyl 1 mg/ml Cynao 1mg/ml one ml each with adeno 6mg SL 4 to 5 times a day. I now start counting at midnight. If I wake up in the middle of the night than I inject and found this to be very beneficial. I came upon injecting if I woke up when suffering utilizing EOD. I
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Sourcing Hydroxocobalamin, help please
Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in spite of several indications. I now need to buy more hydroxocobalamin but haven't kept a note of where I've previously bought from, in Germany.
Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in spite of several indications. I now need to buy more hydroxocobalamin but haven't kept a note of where I've previously bought from, in Germany.
JMN2017
in
Pernicious Anaemia Society
9 months ago
Where can I order B12 Hydroxocobalamin ampules from 🤔
Hey all - where do y’all order your B12 ampules from - I always ordered from Versandapo in Germany but when I checked out it said the shipping address is not permitted. Thank you ☺️
Hey all - where do y’all order your B12 ampules from - I always ordered from Versandapo in Germany but when I checked out it said the shipping address is not permitted. Thank you ☺️
Mandymoos8
in
Pernicious Anaemia Society
9 months ago
Health Anxiety or MS
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Muef
in
Anxiety and Depression Support
4 months ago
B1 Therapy INSTAGRAM live
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
Markbit
in
Cure Parkinson's
4 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
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