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Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
Help!!
Hey Everyone, Really hoping someone can help been going round in circles for sooo long. I get constant mouth sores it has been going on for over a year now, but they are not always the typical mouth full of ulcers people seem to get with Bechet's, sometime the ulcers are just one at a time , some times
Hey Everyone, Really hoping someone can help been going round in circles for sooo long. I get constant mouth sores it has been going on for over a year now, but they are not always the typical mouth full of ulcers people seem to get with Bechet's, sometime the ulcers are just one at a time , some times
Helend1234
in
Behçet's UK
2 years ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
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introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
FDA Approves Cell Therapy for Patients with Blood Cancers to Reduce Risk of Infection Following Stem Cell Transplantation- Released 4/17/23
Today [4/17/23], the U.S. Food and Drug Administration approved Omisirge (omidubicel-onlv), a substantially modified allogeneic (donor) cord blood-based cell therapy to quicken the recovery of neutrophils (a subset of white blood cells) in the body and reduce the risk of infection. The product is intended
Today [4/17/23], the U.S. Food and Drug Administration approved Omisirge (omidubicel-onlv), a substantially modified allogeneic (donor) cord blood-based cell therapy to quicken the recovery of neutrophils (a subset of white blood cells) in the body and reduce the risk of infection. The product is intended
PhysAssist
in
MPN Voice
1 year ago
'Astonishing' Results: Skip Salvage Chemo, Go Straight to HSCT from ASH 2022 [For Refractory AML/Relapsed AML]
NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
PhysAssist
in
MPN Voice
1 year ago
mouth sores
Hi all Just a quick question about mouth sores which, are apparently a feature of lupus. I have had these intermittently on the roof of my mouth for as long as I can remember. I always assumed it was cold sores which I very occasionally get on my lip. But now I'm not sure. They first come up as
Hi all Just a quick question about mouth sores which, are apparently a feature of lupus. I have had these intermittently on the roof of my mouth for as long as I can remember. I always assumed it was cold sores which I very occasionally get on my lip. But now I'm not sure. They first come up as
Brychni
in
LUPUS UK
2 years ago
Hi, im new here
Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment for blood cancer by having a stem cell transplant (14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin
Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment for blood cancer by having a stem cell transplant (14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin
Marchhare7
in
Fibromyalgia Action UK
1 year ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
Rupa88
in
Cure Parkinson's
1 year ago
Bone Marrow Transplant
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
sicklecellnews
in
Sickle Cell Society
1 year ago
Preagablin and hair loss and sore gums
Hi guys, I haven’t posted in a while. I have been getting loads of hair shedding loads I have lost about 60% of my hair. My gums are sore sand swollen. I have found out it could be the preg. I have been on 350mg daily for 10 years or so. Are there any others out there that have suffered with hair loss
Hi guys, I haven’t posted in a while. I have been getting loads of hair shedding loads I have lost about 60% of my hair. My gums are sore sand swollen. I have found out it could be the preg. I have been on 350mg daily for 10 years or so. Are there any others out there that have suffered with hair loss
GillyGangGong
in
Fibromyalgia Action UK
2 years ago
Important to know, but sucks to have: TP53 Mutations Confer High Risk in Patients With Myelofibrosis Undergoing HSCT
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
PhysAssist
in
MPN Voice
1 year ago
Bone marrow transplant possibility and leriglitazone update
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
JShough
in
AMN EASIER
1 year ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
Baron1
in
Cure Parkinson's
1 year ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
Very dry mouth
Since Covid in October 2022 I have had a dry mouth with a sore tongue and sore roof of mouth. I am now thinking it is nothing to do with Covid but maybe related to Mercury thyroxine? I have struggled for years trying to find a brand that agrees with me, ever since the original Eltroxin I by Glaxo disappeared
Since Covid in October 2022 I have had a dry mouth with a sore tongue and sore roof of mouth. I am now thinking it is nothing to do with Covid but maybe related to Mercury thyroxine? I have struggled for years trying to find a brand that agrees with me, ever since the original Eltroxin I by Glaxo disappeared
Goldpurple
in
Thyroid UK
2 years ago
You are what you breath - but what you breath varies...
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
Timberman
in
Lung Conditions Community Forum
1 year ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
Levo doses and side effects
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Stevensnj87
in
Thyroid UK
2 years ago
Allogenic Stem Cell Transplant
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
GarciaB
in
MPN Voice
2 years ago
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