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Experiences with
Venetoclax
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Leukaemia Care Webinar 8th April - a bit more information
Venetoclax
has the disadvantage of having a bigger negative impact on neutrophils and the need for close monitoring at the start/ramp up phase so unlikely to start on this in the current situation.
Venetoclax
has the disadvantage of having a bigger negative impact on neutrophils and the need for close monitoring at the start/ramp up phase so unlikely to start on this in the current situation.
Jm954
Administrator
in
CLL Support
4 years ago
Anticipating starting venetoclax
Coupled with this is that I’m starting
venetoclax
next Monday - my stomach is flipping a bit - so I spent the weekend sorting out the lower bathroom - sorry if you live in Cheshire and can’t find any paper 😳
Coupled with this is that I’m starting
venetoclax
next Monday - my stomach is flipping a bit - so I spent the weekend sorting out the lower bathroom - sorry if you live in Cheshire and can’t find any paper 😳
Sepsur
in
CLL Support
4 years ago
TO ISOLATE OR NOT?
I was due to start
Venetoclax
therapy tomorrow (Monday) but my consultant phoned on Friday to advise me that in view of the ever increasing cases of coronovirus in the UK, my treatment has been postponed indefinitely for fear of me becoming infected in the hospital environment with a further compromised
I was due to start
Venetoclax
therapy tomorrow (Monday) but my consultant phoned on Friday to advise me that in view of the ever increasing cases of coronovirus in the UK, my treatment has been postponed indefinitely for fear of me becoming infected in the hospital environment with a further compromised
jaypax
in
CLL Support
4 years ago
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Taking venetoclax and having a difficult time
They started me on
venetoclax
and ramped it up to 50. My counts got so bad the doctor has temporary taken me off
venetoclax
. How long on
venetoclax
before you get to feeling better. This medicine is something else. I have never been so sick.
They started me on
venetoclax
and ramped it up to 50. My counts got so bad the doctor has temporary taken me off
venetoclax
. How long on
venetoclax
before you get to feeling better. This medicine is something else. I have never been so sick.
Jamstev71
in
CLL Support
4 years ago
Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)
"In conclusion,
venetoclax
and ibrutinib-based therapy as NA1 provide comparable OS outcomes in R/R CLL patients treated outside of trials.
"In conclusion,
venetoclax
and ibrutinib-based therapy as NA1 provide comparable OS outcomes in R/R CLL patients treated outside of trials.
avzuclav
in
CLL Support
5 years ago
Dr. Mato on Sequencing and what is CLLAN
Mato presents some reassuring data that when we use
venetoclax
, namely that we still have some good options when it stops working in this interview from ASH 2019 (https://cllsociety.org/2020/02/ash-2019-dr-mato-on-sequencing-of-chronic-lymphocytic-leukemia-cll-therapies-after-
venetoclax
/).
Mato presents some reassuring data that when we use
venetoclax
, namely that we still have some good options when it stops working in this interview from ASH 2019 (https://cllsociety.org/2020/02/ash-2019-dr-mato-on-sequencing-of-chronic-lymphocytic-leukemia-cll-therapies-after-
venetoclax
/).
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Treatment does not have to be something to dread
I got the
venetoclax
arm of the trial but the irritating issues I was dealing with were eliminated before I even started
venetoclax
. My point is, I was dreading and stressed about treatment and was clueless about the positive impact it could have.
I got the
venetoclax
arm of the trial but the irritating issues I was dealing with were eliminated before I even started
venetoclax
. My point is, I was dreading and stressed about treatment and was clueless about the positive impact it could have.
aquafinn
in
CLL Support
5 years ago
An Early Look at When CAR-T Therapy Fails Patients With CLL
Patients whose disease progressed
during
treatment with ibrutinib and treatment with
venetoclax
before CAR-T therapy lived only a median of 7 months after CAR-T therapy.
Patients whose disease progressed
during
treatment with ibrutinib and treatment with
venetoclax
before CAR-T therapy lived only a median of 7 months after CAR-T therapy.
Jm954
Administrator
in
CLL Support
4 years ago
Low LY#?
(PS: before the labs, I ramped-up
Venetoclax
to 50mg today, & got 1000 of Obinutuzumab)
(PS: before the labs, I ramped-up
Venetoclax
to 50mg today, & got 1000 of Obinutuzumab)
DRM18
in
CLL Support
5 years ago
O + V & Antibiotics?
Does anyone here know which—if any—antibiotics someone being treated with Obinutuzumab &
Venetoclax
should avoid? Just curious. Read something about that once, but can’t seem to remember it, nor re-find it. —Dave!
Does anyone here know which—if any—antibiotics someone being treated with Obinutuzumab &
Venetoclax
should avoid? Just curious. Read something about that once, but can’t seem to remember it, nor re-find it. —Dave!
DRM18
in
CLL Support
5 years ago
VENETOCLAX
Btw he had some side effects of Imbruvica so that is why the
VENETOCLAX
Btw he had some side effects of Imbruvica so that is why the
VENETOCLAX
Gogldn
in
CLL Support
5 years ago
Distinct immune composition in lymph node and peripheral blood of CLL patients is reshaped during venetoclax treatment
Venetoclax
combination treatment reduces immunosuppressive features of CLL, suggesting immune recovery after elimination of tumor cells.
Venetoclax
combination treatment reduces immunosuppressive features of CLL, suggesting immune recovery after elimination of tumor cells.
cllady01
Volunteer
in
CLL Support
4 years ago
What to expect from v + o initial treatment
I am a 77 year old male about to start
venetoclax
+ obinutuzumab. What should I be aware of during the first stages of the treatment? I'm obviously concerned and would like to go in as psychologically prepared as I can be. Thank you in advance for your advice.
I am a 77 year old male about to start
venetoclax
+ obinutuzumab. What should I be aware of during the first stages of the treatment? I'm obviously concerned and would like to go in as psychologically prepared as I can be. Thank you in advance for your advice.
ronsolo306
in
CLL Support
5 years ago
CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, &
venetoclax
.
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, &
venetoclax
.
username-the-dude
in
CLL Support
5 years ago
Please share experience of venetoclax plus obinutuzimab or acalabrutinib mono treatment in an important survey
Venetoclax
(Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) monotherapy for first-line treatment of CLL/SLL Acalabrutinib (Calquence) monotherapy for treatment of relapsed
Venetoclax
(Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) monotherapy for first-line treatment of CLL/SLL Acalabrutinib (Calquence) monotherapy for treatment of relapsed
Jm954
Administrator
in
CLL Support
5 years ago
O + V: Update Two!
Took my 1st-ever dose of
Venetoclax
this morning. 5:30am, to be precise. (No Obinutuzumab infusion this week: not until next Friday.) Got IV hydration at the clinic at 10am, just to be safe. (Dr’s orders.) Got a blood draw at 12:30pm, checking for Tumor Lysis, of which there were no signs.
Took my 1st-ever dose of
Venetoclax
this morning. 5:30am, to be precise. (No Obinutuzumab infusion this week: not until next Friday.) Got IV hydration at the clinic at 10am, just to be safe. (Dr’s orders.) Got a blood draw at 12:30pm, checking for Tumor Lysis, of which there were no signs.
DRM18
in
CLL Support
5 years ago
Zicam
I’m on Ibrutinib, obintuzinab, and
venetoclax
.
I’m on Ibrutinib, obintuzinab, and
venetoclax
.
aquafinn
in
CLL Support
5 years ago
Remission on Acalabrutinib and Venetoclax
Hi everyone I’ve been on Ace cll 311 trial for 3 1/2 months after my latest CT scan my Dr has told me I am in remission I have to keep taking both tablets to get to a deeper remission I feel very lucky and privileged to be a part of this wonderful trial
Hi everyone I’ve been on Ace cll 311 trial for 3 1/2 months after my latest CT scan my Dr has told me I am in remission I have to keep taking both tablets to get to a deeper remission I feel very lucky and privileged to be a part of this wonderful trial
Yidarmy69
in
CLL Support
5 years ago
My two year on ibrutinib check up
I thought he would add
venetoclax
, that was always Keating’s plan for me. Thompson wants to wait for FDA approval.
Venetoclax
has some approval now, but not frontline with ibrutinib.
I thought he would add
venetoclax
, that was always Keating’s plan for me. Thompson wants to wait for FDA approval.
Venetoclax
has some approval now, but not frontline with ibrutinib.
cajunjeff
in
CLL Support
5 years ago
Please share experience of venetoclax plus obinutuzimab or acalabrutinib treatment in a survey that may help others gain access?
WE NEED YOUR HELP You may have seen and responded to this request for help in this survey lead by Canadian CLL groups, it was posted a while back by CLLPAG https://healthunlocked.com/cllsupport/posts/142434850/survey-for-cll-patients-having-taken-
venetoclax
-or-acalabrutinib IF YOU ARE IN THE UK OR IN
WE NEED YOUR HELP You may have seen and responded to this request for help in this survey lead by Canadian CLL groups, it was posted a while back by CLLPAG https://healthunlocked.com/cllsupport/posts/142434850/survey-for-cll-patients-having-taken-
venetoclax
-or-acalabrutinib IF YOU ARE IN THE UK OR IN
HAIRBEAR_UK
Administrator
in
CLL Support
5 years ago
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