Remission on Acalabrutinib and Venetoclax

[Yidarmy69]

Hi everyone I’ve been on Ace cll 311 trial for 3 1/2 months after my latest CT scan my Dr has told me I am in remission I have to keep taking both tablets to get to a deeper remission I feel very lucky and privileged to be a part of this wonderful trial

[AussieNeil Administrator]

My wife and I are very encouraged by your reports. I'm 1 1/2 months behind you and just starting the venetoclax ramp up. In two months my nodes shrank by 78% and my enlarged spleen is now fully protected by my rib cage for the first time in 11 years.

Neil

[Yidarmy69 in reply to AussieNeil]

Brilliant news for you we will get there

[Varney in reply to AussieNeil]

Congratulations to you, Neil. How great is that. I wish you continued success. Take care.

Varney

[Mystic75 in reply to AussieNeil]

Great news, Neil - so happy to see your are experiencing such positive results!

[1ofakind]

So happy for you !

Enjoy your good news!!

[Yidarmy69 in reply to 1ofakind]

Thank you

[bhayes84]

Congrats Yidarmy69!

I think eventually this will be the std treatment for all of us.

Thanks for being one of the pioneers helping to make that happen.

[Yidarmy69 in reply to bhayes84]

Thank you

[dmmck]

Good to hear the great news!

[Yidarmy69 in reply to dmmck]

Thank you

[Fran57]

Fantastic news! You must be so thrilled.

Fran 😉

[Yidarmy69 in reply to Fran57]

Thank you I am over the moon

[Smakwater]

Good For You Yidarmy69,

BAM!

JM

[Yidarmy69 in reply to Smakwater]

Thank you

[Mystic75]

Congratulations, Yidarmy!! That is wonderful - and after only 3 1/2 months!

All the best to you for continue success on the trial!

D.

[HikerBiker]

Hi Yidarmy 69,

Just checking in to see how you are doing on your trial. Still feeling well and good test results? Have you experienced any side effects? How was the ramp up on the venetoclax -I've read that some people have had difficulties with that. Nausea? Neutropenia?

Thank you for your feedback,

Rick (HikerBiker)

[Yidarmy69 in reply to HikerBiker]

Hi I just remembered that during ramp up I was closely monitored for TLS which could occur but you drs and nurses will monitor you for this I had no symptoms if you are in the at risk group and show signs in U.K. you would be admitted to hospital during this time

[Yidarmy69]

Hi I can honestly say I am doing brilliantly still bloods everything in normal range I suffered no side effects that hasn’t changed during ramp up I was monitored expertly by my nurses all through this I never even took an anti sicknesses tablet that’s how good the treatment has been for me hope this helps you if you are thinking of this treatment

[Canuck901 in reply to Yidarmy69]

Excellent. Results. Are you going to get a flow cytometry test done or MRD test done soon ?

[Yidarmy69 in reply to Canuck901]

Hi I have aBMB scheduled for 2 months time I will ask nurses about flow cytometry

[Canuck901 in reply to Yidarmy69]

Excellent , excited to hear your news , keep us posted