Search
Search
About
Log in
Join
Experiences with
Venetoclax
Posts
Communities
995 public posts
Filter results
What to do
How do I know if my husbands sx are from the
VENETOCLAX
or the CLL. He is ext. fatigued, no interest. No appetite. He has been on the med for 3 wks. Prior to starting the med he manifested the same sx only slightly less. He is going down hill before my eyes.
How do I know if my husbands sx are from the
VENETOCLAX
or the CLL. He is ext. fatigued, no interest. No appetite. He has been on the med for 3 wks. Prior to starting the med he manifested the same sx only slightly less. He is going down hill before my eyes.
Gogldn
in
CLL Support
4 years ago
Australians have your say in getting CLL medicines approved
Venetoclax
in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
Venetoclax
in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
lymphomaoz
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
Put another way, people with unmutated cll starting out on ibrutinib and
venetoclax
as a first treatment are doing just as well as those with mutated cll.
Put another way, people with unmutated cll starting out on ibrutinib and
venetoclax
as a first treatment are doing just as well as those with mutated cll.
cajunjeff
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Platelets and neutrophils dropping
After my taking Ibrutinib and
venetoclax
for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks
After my taking Ibrutinib and
venetoclax
for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks
Ninagram
in
CLL Support
4 years ago
Ibrutinib & venetoclax
Only another 5yrs 363 days to go 😀
Only another 5yrs 363 days to go 😀
Sepsur
in
CLL Support
4 years ago
Bone marrow looking for MRD getting a surprise in the blood test, plus Dr. Kipps on fixed duration front line therapy
Kipps discusses how he approaches first CLL treatments with a heavy focus on fixed duration
venetoclax
based therapies. Read: https://cllsociety.org/2020/01/iwcll-2019-dr-thomas-kipps-on-frontline-treatment-in-cll-chronic-lymphocytic-leukemia/ Stay strong. We are all in this together.
Kipps discusses how he approaches first CLL treatments with a heavy focus on fixed duration
venetoclax
based therapies. Read: https://cllsociety.org/2020/01/iwcll-2019-dr-thomas-kipps-on-frontline-treatment-in-cll-chronic-lymphocytic-leukemia/ Stay strong. We are all in this together.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
going downhill
He was started on
VENETOCLAX
and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of the med. I just hope that he adjusts to the med. Anyone out there who has had a difficult time with adjusting to the med?
He was started on
VENETOCLAX
and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of the med. I just hope that he adjusts to the med. Anyone out there who has had a difficult time with adjusting to the med?
Gogldn
in
CLL Support
4 years ago
Dimly Lit Awakenings
Starting
Venetoclax
on Valentine’s Day. Feeling great, better than I have in years, as I’ve posted elsewhere. Awake in bad last night (thanks, IV steroids!), I dimly reflected back a bit on my CLL journey. 1st four years or so, I was oblivious I was on a CLL journey at all (lol).
Starting
Venetoclax
on Valentine’s Day. Feeling great, better than I have in years, as I’ve posted elsewhere. Awake in bad last night (thanks, IV steroids!), I dimly reflected back a bit on my CLL journey. 1st four years or so, I was oblivious I was on a CLL journey at all (lol).
DRM18
in
CLL Support
4 years ago
Started Treatment (O + V)
Don't start
Venetoclax
until the 22nd day of treatment. (Today is day 9.) Miraculous already: all of my visible nodes are now nearly if not totally invisible. In only a week! Welcome back, pencil neck!
Don't start
Venetoclax
until the 22nd day of treatment. (Today is day 9.) Miraculous already: all of my visible nodes are now nearly if not totally invisible. In only a week! Welcome back, pencil neck!
DRM18
in
CLL Support
4 years ago
Real-World Sequence Patterns of Novel Agents in CLL
Venetoclax
was used in at least 1 line of therapy in 101 patients (28.5%), and they were most likely to receive this drug in the 3rd-line setting.
Venetoclax
was used in at least 1 line of therapy in 101 patients (28.5%), and they were most likely to receive this drug in the 3rd-line setting.
Jm954
Administrator
in
CLL Support
4 years ago
CLL Updates From the 2019 ASH Annual Meeting
Combination ibrutinib plus
venetoclax
: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Combination ibrutinib plus
venetoclax
: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Jm954
Administrator
in
CLL Support
4 years ago
Time for treatment decision
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and Ibrutinib (imbruvica) and the other 320 patients get these two drugs along with
venetoclax
. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and Ibrutinib.
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and Ibrutinib (imbruvica) and the other 320 patients get these two drugs along with
venetoclax
. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and Ibrutinib.
harley2018
in
CLL Support
4 years ago
Just got MRD negative 🎉
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on Ibrutinib and
Venetoclax
.
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on Ibrutinib and
Venetoclax
.
Catnap7
in
CLL Support
4 years ago
I was diagnosed 8 years ago today
I will be following closely the
Venetoclax
results people have because that will be where I will end up, but I think we will attempt to watch and wait for a few months and take a dose of IVIG on a monthly basis, as one of my problems is ITP.
I will be following closely the
Venetoclax
results people have because that will be where I will end up, but I think we will attempt to watch and wait for a few months and take a dose of IVIG on a monthly basis, as one of my problems is ITP.
KevinCLLITP
in
CLL Support
4 years ago
Bloodshot eyes with Ibrutinib and venetoclax.
My husband has been on Ibrutinib and
venetoclax
for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem like this?
My husband has been on Ibrutinib and
venetoclax
for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem like this?
Pinhead1
in
CLL Support
4 years ago
Richter Transformation Testimonials. Survivors
Dr V was going to consult with Dr Awan and added
venetoclax
to my R-EPOCH. I have successfully had 3 more rounds with
venetoclax
for 10 days each time added. The 3rd round I had neutropenia fever and returned to hospital with no infections, but received antibiotics for 2 days.
Dr V was going to consult with Dr Awan and added
venetoclax
to my R-EPOCH. I have successfully had 3 more rounds with
venetoclax
for 10 days each time added. The 3rd round I had neutropenia fever and returned to hospital with no infections, but received antibiotics for 2 days.
Priss69
in
CLL Support
4 years ago
Survey for CLL patients having taken Venetoclax or Acalabrutinib
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey:
Venetoclax
(Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey:
Venetoclax
(Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
cllpag_canada
in
CLL Support
4 years ago
Middle of Venetoclax and Gazyva combo MDA
Now on
Venetoclax
only. Just working hard these days. Labs still excellent. Just anemia. Keep having faith and hope! Loving almost normal lives! LoveCures John and Steffie
Now on
Venetoclax
only. Just working hard these days. Labs still excellent. Just anemia. Keep having faith and hope! Loving almost normal lives! LoveCures John and Steffie
LovecuresCLL
in
CLL Support
4 years ago
classes of drugs for cll
BCI-2-
venetoclax
4. ROR1- circumuzamab 5. monoclonal anti- Gazyva
BCI-2-
venetoclax
4. ROR1- circumuzamab 5. monoclonal anti- Gazyva
Hidden
in
CLL Support
4 years ago
Curious lumps
Through this website I learned that the imbruvica
venetoclax
was not FDA approved he will go to bat for me and argue my case to get approval. Even if they do not approve the drug combination, the
venetoclax
was no where near as expensive as the imbruvica.
Through this website I learned that the imbruvica
venetoclax
was not FDA approved he will go to bat for me and argue my case to get approval. Even if they do not approve the drug combination, the
venetoclax
was no where near as expensive as the imbruvica.
Italianpainter
in
CLL Support
4 years ago
1
...
30
31
32
...
50
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
CLL Support
950 results
CLL America Support
23 results
Leukaemia CARE
10 results
View top 10 communities
Sort by
Most Relevant
Newest