Experiences with

Vascular conditions

Hi I've had ibs c for so so long. Over the years I've learnt what does and doesn't suit me with my diet. I'm now mainly ok in comparison but also as I've got older I get bouts of diarrhea which I know are from eating foods that don't agree with me. I had a fair amount of cream cake over Christmas I'm

I have had symptoms of a UTI since 31st October. I had Nitrofuration twice at the start of all this and things started to settle until I had a bath. I was then given 7 days of trimethoprim- I felt no real difference with this. Dipstick tests never really show infection so 3 urines have been sent to lab

Yesterday was the first day both my eyes hurt. I have been having dry eyes and drops are not doing too much. The pain in both eyes feel like pressure or strain pain. I am worried not knowing if it’s just dry eyes or my GCA acting up. Currently taking 10 mg if prednisone since the last GCA temple pain

HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to

My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.

Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's

there a differences of views on left atrial appendage closure primarily due to the purpose of the left appendage not being known. This is an interesting research paper bringing together all the studies - study looks at LAA closure alone and not with a mini maze or catheter ablation specifically

There is a high frequency of posts that mention endometriosis here, so I am posting this article for all those people affected. The author posits a “brain-uterus axis” as a hypothesis that can explain why women suffer much more from auto-immune conditions than men do: https://amp.theguardian.com/society

hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise

Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as

Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016

Hello ! My name is Jess and I have been dealing with Gastroperesis for over 25 years. I am SOOOO tired of it! I constantly get a distended bloated stomach, some from gas and some from the slow digestion and not be able to go. I also have IBS-C ( constipation) so this makes matters worse. I take

In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She

I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car

hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s

I’m a little confused about these two. My SIL doesn’t have the JAK2 tho I do have it. I don’t understand the differences between the two diagnoses 😊 I am 60 and my SIL is 42. She is on drugs as well for Ulcerative Colitis. They are anti rejection drugs. She was diagnosed with ET a year or 2 ago

Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.

I have been taking Desogesterel since March and at first it was fine, I still had a monthly bleed on it which was not painful. In July I discussed future conception with a GP who told me that i would be fine coming off the pill and ignored my endo diagnosis because i had it done privately.. I came off

Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not

Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.