Blood Donaton: I have PBC and take Ursofalk... - PBC Foundation

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Blood Donaton

stevie1 profile image
11 Replies

I have PBC and take Ursofalk. I went to donate blood tonight but they said I was not suitable due to PBC. is this correct?

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stevie1 profile image
stevie1
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11 Replies
Ballymahon2 profile image
Ballymahon2

Yes

butterflyEi profile image
butterflyEi

Yes this also happened to me. Although not given an explanation I wrongly or rightly put it down to them not knowing if giving blood would be detrimental to our liver and bile ducts.

stevie1 profile image
stevie1 in reply tobutterflyEi

The charge nurse gave me the impression he wasn't sure how it would effect the recipient of my blood. I understand that but deep down I felt a little bit insulted. Felt it could have said better

cazer profile image
cazer

think that is right... you would be passing on the dodgy antibodies... a free gift i don't think anyone would want... ha ha!!!!

Coco21 profile image
Coco21

Hey! I was a blood donor for many years but PBC is an autoimmune disorder. We are no longer welcome to donate blood. I was diagnosed in 2016. I was thanked for all my previous donations but unfortunately and rightly so, PBC people can no longer donate blood.

dollydaydreams profile image
dollydaydreams

Yes and makes me wonder why i got ill after having 4 pints given to me.

PBC2002 profile image
PBC2002

That’s how i learned i had PBC. i kept giving blood but was always told my blood was not acceptable because of the elevated liver enzymes. I can no longer donate blood.

Danteskid profile image
Danteskid

Interesting....was just wondering the same thing. ThNks for saving me a trip to the blood bank.

Lisa15 profile image
Lisa15

Hi all! I don’t know if different states/regions etc have different guidelines but I was diagnosed with PBC in 2015 and I am still able to donate blood. The Red Cross was very knowledgeable about PBC.

Becca75 profile image
Becca75

yep I was told it was because of the autoimmune component

PBC2002 profile image
PBC2002

Correct. I was denied simply because if my elevated levels. Denied for life

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