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Ursofalk
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Nausea
Im on
Ursofalk
and Entocort for PBC & AIH for a the past few months and have been feeling ok after the first couple of weeks. However, I started on Imuran about 2 weeks ago and ever since, my stomach feels bloated, I have indigestion, and feel sick quite alot.
Im on
Ursofalk
and Entocort for PBC & AIH for a the past few months and have been feeling ok after the first couple of weeks. However, I started on Imuran about 2 weeks ago and ever since, my stomach feels bloated, I have indigestion, and feel sick quite alot.
normaM
in
PBC Foundation
10 years ago
cross over liver diseases
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
normaM
in
Liver4Life
10 years ago
cross over liver diseases
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
normaM
in
LIVErNORTH
10 years ago
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cross over liver diseases
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
normaM
in
British Liver Trust
10 years ago
Cross over liver diseases
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
Apparently it is uncommon to have both and I will be starting medication shortly
Ursofalk
and Entocort steroids. Anyone else out there in a similar position and does anyone have any idea whats ahead of me??
normaM
in
PBC Foundation
10 years ago
Drug trial NGM282
It is aimed at people between 18 and 75 who have a PBC diagnosis with raised levels of ALP that have not come down using
Ursofalk
(my ALP at last blood test was 730 for example). You need to have been on a stable dose of
Ursofalk
for the last year and have these raised ALPs.
It is aimed at people between 18 and 75 who have a PBC diagnosis with raised levels of ALP that have not come down using
Ursofalk
(my ALP at last blood test was 730 for example). You need to have been on a stable dose of
Ursofalk
for the last year and have these raised ALPs.
skippydownunder
in
PBC Foundation
10 years ago
Hi I have pbc I am on250m ursogal 3 times aday
I was just wondering if any one else also has scleoderma, as I am awaiting a consultant appointment as my pbc consultant things due to my pbc I may have scleoderma. I am finding it really hard to accept as I feel so tired .itchy my feet keep swelling and blistering my hands keep swelling .I can not stand
I was just wondering if any one else also has scleoderma, as I am awaiting a consultant appointment as my pbc consultant things due to my pbc I may have scleoderma. I am finding it really hard to accept as I feel so tired .itchy my feet keep swelling and blistering my hands keep swelling .I can not stand
hettie01
in
PBC Foundation
10 years ago
Which one is the culprit for depression? I am currently on ursofalk 250 x 3, solupred 5 mg x 1, zyloric x1, and eltroxin 50 mg x 1 daily.
Since my doctor would not do it, I did; I am gradually withdrawing from solupred, and instead of taking
ursofalk
three times daily, I am taking two, and sometimes one. Zyloric I completely stopped two weeks ago. The eltroxin I only started a month ago and intend to keep on taking it.
Since my doctor would not do it, I did; I am gradually withdrawing from solupred, and instead of taking
ursofalk
three times daily, I am taking two, and sometimes one. Zyloric I completely stopped two weeks ago. The eltroxin I only started a month ago and intend to keep on taking it.
Batatis
in
PBC Foundation
10 years ago
I've just started on urso, I've taken it for 1 week now , and I feel terrible. Heart burn, stomach cramps, diarrhea, flatulance
I take
ursofalk
250 hard caspules my dose is 2 tablets twice a day, but I'm taking 1 3 times a day at the moment
I take
ursofalk
250 hard caspules my dose is 2 tablets twice a day, but I'm taking 1 3 times a day at the moment
Lucylongstockings
in
PBC Foundation
10 years ago
Teenager with pbc/aih overlap
My specialist only has me on
Ursofalk
right now until he has a more detailed account of my condition. However when i took
Ursofalk
i developed a bad nettle rash and had to reduce my
Ursofalk
just to two a day. Basically i was wondering what other medicine is common for people like me to be on.
My specialist only has me on
Ursofalk
right now until he has a more detailed account of my condition. However when i took
Ursofalk
i developed a bad nettle rash and had to reduce my
Ursofalk
just to two a day. Basically i was wondering what other medicine is common for people like me to be on.
RebeccaM
in
British Liver Trust
10 years ago
Newly diagnosed. How does PBC impact existing health problems?
So I did all the practical stuff, I read the leaflets, improved my diet, took my
Ursofalk
and bar a few stomach upsets it was business as usual. From what I've read at this point I was considering myself pretty lucky. In parallel to this I have degenerate disc disease.
So I did all the practical stuff, I read the leaflets, improved my diet, took my
Ursofalk
and bar a few stomach upsets it was business as usual. From what I've read at this point I was considering myself pretty lucky. In parallel to this I have degenerate disc disease.
CheshireEm
in
PBC Foundation
10 years ago
PBC and melasma
I didnt feel unwell but, since starting on the
ursofalk
tablets I am feeling better in myself. I think this condition progresses so slowly that the physical changes such as tiredness and poor digestion become normalised.
I didnt feel unwell but, since starting on the
ursofalk
tablets I am feeling better in myself. I think this condition progresses so slowly that the physical changes such as tiredness and poor digestion become normalised.
Mayflower53
in
PBC Foundation
11 years ago
Key questions to ask heptologist?
I was diagnosed with pbc about 5 yrs ago and have been on
ursofalk
ever since. I also have suspected sjorgdens syndrome. The pbc seemed under control until about 6m ago when I started experiencing weight loss, v pale frequent stools, v dark urine, jaundice and more extreme fatigue.
I was diagnosed with pbc about 5 yrs ago and have been on
ursofalk
ever since. I also have suspected sjorgdens syndrome. The pbc seemed under control until about 6m ago when I started experiencing weight loss, v pale frequent stools, v dark urine, jaundice and more extreme fatigue.
Waxxy99
in
PBC Foundation
11 years ago
Do you take 3 ursofalk tablets a day in one go or 1 in the morning, 1 at lunchtime and 1 in the evening?
I am taking them spread throughout the day but, I keep forgetting them. I'm a little worried about taking them altogether. In case they make me feel unwell.
I am taking them spread throughout the day but, I keep forgetting them. I'm a little worried about taking them altogether. In case they make me feel unwell.
Mayflower53
in
PBC Foundation
11 years ago
Methotrexate combined with Ursofalk seems to be improving bilirubin levels and other blood tests.
I am taking 15mg per week in one dose as well as 1250mg
Ursofalk
daily. You also have to take Megafol (high dosage folate) 6 days per week on the day you don't take the methotrexate. I feel fine with it.
I am taking 15mg per week in one dose as well as 1250mg
Ursofalk
daily. You also have to take Megafol (high dosage folate) 6 days per week on the day you don't take the methotrexate. I feel fine with it.
skippydownunder
in
PBC Foundation
11 years ago
Feeling alone and needing help
He has been taking 1500 mg of
Ursofalk
and has been relatively okay until now. Infuriatingly the gastroenterologist would not put him on the transplant list then, even though his Bilorubin count was at 300.
He has been taking 1500 mg of
Ursofalk
and has been relatively okay until now. Infuriatingly the gastroenterologist would not put him on the transplant list then, even though his Bilorubin count was at 300.
rollerteam
in
PBC Foundation
11 years ago
Improved blood tests after a month on methotrexate
I am still taking 1250mg of
Ursofalk
per day as well. Hopefully this combination therapy is working and proves to be a breakthrough. Is anyone else out there trying this combo? Have heard some doctors don't agree with using methotrexate.
I am still taking 1250mg of
Ursofalk
per day as well. Hopefully this combination therapy is working and proves to be a breakthrough. Is anyone else out there trying this combo? Have heard some doctors don't agree with using methotrexate.
skippydownunder
in
PBC Foundation
11 years ago
Has anybody's blood tests become worse after starting on Ursofalk?
Have another appointment on July 1st and I am continuing to take the
Ursofalk
, 2 morning and 3 at night. All you can do is wait and see I suppose........ Skippy (still hopping along)
Have another appointment on July 1st and I am continuing to take the
Ursofalk
, 2 morning and 3 at night. All you can do is wait and see I suppose........ Skippy (still hopping along)
skippydownunder
in
PBC Foundation
11 years ago
Ursofalk is working
Doc prescribed me
Ursofalk
which I have been taking since the beginning of March. I tested my ggt levels this week and results are back. 75!!! These are the lowest I've ever had. Do you think I suffer from PBC?
Doc prescribed me
Ursofalk
which I have been taking since the beginning of March. I tested my ggt levels this week and results are back. 75!!! These are the lowest I've ever had. Do you think I suffer from PBC?
pax80a
in
PBC Foundation
11 years ago
Statin's
Do anyone of you take
Ursofalk
with Statin's my Cholesterol is going up and might have to take a low dose Statin. Thanks
Do anyone of you take
Ursofalk
with Statin's my Cholesterol is going up and might have to take a low dose Statin. Thanks
cavi
in
PBC Foundation
11 years ago
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