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Ursofalk
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Confused
I was diagnosed with PBC last year been taking
ursofalk
twice daily. Anyway after 4 cancelled appointments I got to see him today got really confused I told him about feeling tired the forgetness and other things he told me point blank that none of this is to doing with the liver ok I said.
I was diagnosed with PBC last year been taking
ursofalk
twice daily. Anyway after 4 cancelled appointments I got to see him today got really confused I told him about feeling tired the forgetness and other things he told me point blank that none of this is to doing with the liver ok I said.
Dese
in
PBC Foundation
8 years ago
Weight gain
Hi I was diagnosed with pbc in June but been on
ursofalk
since April in June my dose was higered to 500mg twice a dau and I weighed 10 stone but since then my weight has been going up very quickly and im now 11 stone I do litslitsif walking and lifting abd running around 4/5 days a week as I'm a nursery
Hi I was diagnosed with pbc in June but been on
ursofalk
since April in June my dose was higered to 500mg twice a dau and I weighed 10 stone but since then my weight has been going up very quickly and im now 11 stone I do litslitsif walking and lifting abd running around 4/5 days a week as I'm a nursery
Lilbear89
in
PBC Foundation
8 years ago
Questions for Gp - newly diagnosed
Consultant who gave diagnosis very matter of fact prescribed
Ursofalk
3 times a day which I have started taking. I am guessing that I have had this condition undiagnosed for a while.
Consultant who gave diagnosis very matter of fact prescribed
Ursofalk
3 times a day which I have started taking. I am guessing that I have had this condition undiagnosed for a while.
jemlola
in
PBC Foundation
8 years ago
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Just diagnosed
I have been out of hospital now just over a month and on my second out patient appointment was told I had pbc I have been on
ursofalk
250mg three times a day and am now on 500mg twice a day.
I have been out of hospital now just over a month and on my second out patient appointment was told I had pbc I have been on
ursofalk
250mg three times a day and am now on 500mg twice a day.
Lilbear89
in
PBC Foundation
8 years ago
Fexofenadine Hydrochloride
I had an increase in the
Ursofalk
earlier this year and since then the itch seems to be worse. I have had two different types of antihistamines before which removed most of the uncontrollable desire to scratch .
I had an increase in the
Ursofalk
earlier this year and since then the itch seems to be worse. I have had two different types of antihistamines before which removed most of the uncontrollable desire to scratch .
butterflyEi
in
PBC Foundation
8 years ago
Scan results
said that my PBC has not affected my liver as yet and I have got to go back and see him in 6 mouths but I then got a appointment for a years time so this must be good news he said for me to carry on as normal and to live my life I did have some more blood test done to see if I am responding to the
ursofalk
said that my PBC has not affected my liver as yet and I have got to go back and see him in 6 mouths but I then got a appointment for a years time so this must be good news he said for me to carry on as normal and to live my life I did have some more blood test done to see if I am responding to the
ursofalk
Cherry69
in
PBC Foundation
8 years ago
Thin hair with my PBC
Morning can anyone tell me if you have thinning hair since being on
ursofalk
if so can anyone tell me what to use. I have fine hair anyway but now it's so thin. Been on tablets 9 months. 🙁🙁
Morning can anyone tell me if you have thinning hair since being on
ursofalk
if so can anyone tell me what to use. I have fine hair anyway but now it's so thin. Been on tablets 9 months. 🙁🙁
Dese
in
PBC Foundation
8 years ago
Any implications taking Ursofalk without food
The medication advises to take with food, anyone know of any implications of taking
Ursofalk
without food? Any side effects etc? Thanks
The medication advises to take with food, anyone know of any implications of taking
Ursofalk
without food? Any side effects etc? Thanks
amt50
in
PBC Foundation
8 years ago
Does ursodiol/actigall/ursofalk give you foggy head?
Hi all, recently my bloodwork showed positive AMA and I was prescribed ursodiol. I also take Creon as well because I've found it helps with digestion. I find ursodiol gives me a foggy head. Does this happen for anyone else? I'm asking because I'm trying to determine whether I have "regular" PBC or
Hi all, recently my bloodwork showed positive AMA and I was prescribed ursodiol. I also take Creon as well because I've found it helps with digestion. I find ursodiol gives me a foggy head. Does this happen for anyone else? I'm asking because I'm trying to determine whether I have "regular" PBC or
oscarmild
in
PBC Foundation
8 years ago
Is this normal
I have blood tests every 3 months but haven't seen a consultant for 9 months and am just wondering if this is normal.I want to ask why I still need steroids and why I'm on
ursofalk
without being told I have PBC ?
I have blood tests every 3 months but haven't seen a consultant for 9 months and am just wondering if this is normal.I want to ask why I still need steroids and why I'm on
ursofalk
without being told I have PBC ?
guineapig1
in
British Liver Trust
9 years ago
Primary biliary cirrhosis
I was told I have Primary biliary cirrhosis in June 2015 and prescribed
ursofalk
500 twice a day. I am struggling to take the full amount because of the side effects, ie nausea, bloating, etc.
I was told I have Primary biliary cirrhosis in June 2015 and prescribed
ursofalk
500 twice a day. I am struggling to take the full amount because of the side effects, ie nausea, bloating, etc.
Moppit
in
PBC Foundation
9 years ago
Leg cramps? Another new symptom for me....
Gone up to 1000mg of
ursofalk
now. Rifamplin 300mg for itch and entocort steroids twice a day and now quinnie sulphate for my cramps .... has anyone used this before ? I'm stage 4 with cirrhosis /enlarged spleen & 2 varices just found last month. Dx with pbc almost 11 yrs now !
Gone up to 1000mg of
ursofalk
now. Rifamplin 300mg for itch and entocort steroids twice a day and now quinnie sulphate for my cramps .... has anyone used this before ? I'm stage 4 with cirrhosis /enlarged spleen & 2 varices just found last month. Dx with pbc almost 11 yrs now !
lynda75
in
PBC Foundation
9 years ago
Anemic again
I had exxtra iron, levels improved, I have taken
ursofalk
over a year now and I am a lot better. Then two months ago I started feeling exhausted again. Now my iron levels are down and a new investigation is under way. Anyone else anemic? Why does this keep happening? I am sooo tired all the time.
I had exxtra iron, levels improved, I have taken
ursofalk
over a year now and I am a lot better. Then two months ago I started feeling exhausted again. Now my iron levels are down and a new investigation is under way. Anyone else anemic? Why does this keep happening? I am sooo tired all the time.
Jojowen
in
PBC Foundation
9 years ago
Help needed: health, biopsy and lab contradict
On
Ursofalk
since December 2013, December 2014 Alat,Asat, ggt improved, phosphates stayed equally high: 190 2 other tests in 2014: AMA negative January 2014: Gastroenterologist decided to take me off urso to do biopsy after three months when liver is inflamed. All values went up again.
On
Ursofalk
since December 2013, December 2014 Alat,Asat, ggt improved, phosphates stayed equally high: 190 2 other tests in 2014: AMA negative January 2014: Gastroenterologist decided to take me off urso to do biopsy after three months when liver is inflamed. All values went up again.
martinap
in
PBC Foundation
9 years ago
Hot, red, itchy palms at a flare.
I am on five 250mg
Ursofalk
a day and also prednisalone and am due a top up steroid injection soon so symptoms have been increasing as the old injection wears off.
I am on five 250mg
Ursofalk
a day and also prednisalone and am due a top up steroid injection soon so symptoms have been increasing as the old injection wears off.
cuttysark
in
PBC Foundation
9 years ago
PBC
Just found out I have PBC and just started on
ursofalk
on Monday night.. I have been having bloods taken since Jan this year.. Still trying to get my head around it all and trying to understand what is going on..
Just found out I have PBC and just started on
ursofalk
on Monday night.. I have been having bloods taken since Jan this year.. Still trying to get my head around it all and trying to understand what is going on..
Shaz0000
in
PBC Foundation
9 years ago
The good news!
Her treatment was harsh,very high doses of propranolol and
ursofalk
and imurel. last year she had no varices and last week she was at the gastroenterologists. no varices this time either! And because of that her medication was lowered! she has no AIH either!
Her treatment was harsh,very high doses of propranolol and
ursofalk
and imurel. last year she had no varices and last week she was at the gastroenterologists. no varices this time either! And because of that her medication was lowered! she has no AIH either!
kiki1980
in
PBC Foundation
9 years ago
Recently diagnosed
In addition to
Ursofalk
she has put me on 30 mg of zinc citrate every day. She told me that a problem with Urso is, that it allows copper to accumulate in our body over time, and this is toxic.
In addition to
Ursofalk
she has put me on 30 mg of zinc citrate every day. She told me that a problem with Urso is, that it allows copper to accumulate in our body over time, and this is toxic.
Lisbeth_66
in
PBC Foundation
9 years ago
Gaining weight
It might just be a coincidence but since starting
Ursofalk
two years ago I've slowly put on weight. A pound here and a pound there until its two stone and climbing. My diets the same, my exercise is the same albeit it's next to nothing but I've never been one for all that running around.
It might just be a coincidence but since starting
Ursofalk
two years ago I've slowly put on weight. A pound here and a pound there until its two stone and climbing. My diets the same, my exercise is the same albeit it's next to nothing but I've never been one for all that running around.
stevie1
in
PBC Foundation
9 years ago
AMA test showed negative
I am wondering why I am still on
ursofalk
if my AMA test showed negative recently.
I am wondering why I am still on
ursofalk
if my AMA test showed negative recently.
Batatis
in
PBC Foundation
10 years ago
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