Experiences with

Ursofalk

From the start I was on Ursofalk but this month the prescription I have just collected is Cholurso. Are they all the same and it’s just a generic name from a manufacturer? Should I stay on the exact same brand that I’ve been on or is it okay to switch if that’s what’s currently available?

now she only takes Ursofalk. If you have experiances or you now sombedy that lives with the same please write me , i am scared that my mom soon will die...

Doktor saw her on ultrazvuk or i dont know how u call it, ultrasound, sad hepar it is ok, no need for biopsy, but for preventive for Alcal Ph. he gave her Ursofalk and Hepafar. As she started taking Urso, the third night of take, started itching...

I changed to Ursofalk and have been happy with it for over 20 years. Today the generic was dispensed and I was told it was the same and cheaper and with the state the NHS was in I should have it.

I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery.

I started taking Ursofalk since 3 weeks,all above decreased to a normal level,but now I feel pain in the liver area,like it's burning, never had any physical discomfort in the liver before. I wounder if the Ursofalk dose it's too much for my weight. I have 50 kg and 155 cm 3 x 250.

I’m 31  and have had raised ALT on and off and GGT (ever since my first pregnancy ) (GGT highest 98 and alt highest 37) and a bit elevated cholesterol,no scaring of the liver (did a fibroscan) , every where i have looked it says your ALP level will decrease if Ursofalk is working.

Hi PBC friends i went to a acupuncturist and a dr in Chinese medicine He knows a lot about autoimmune diseases and recommended me to take two herbs and that they would work very good with the ursofalk anyone has similar experience? thank you

I’ve been successfully on Ursofalk since diagnosis in 2014. The active ingredients are the same but the tablet core and coating are different. Has anyone else changed manufacturers? Any issues with the new formulation?

I am trying to find a balance as I have two very small kids and I hope and pray there will be a cure with Ursofalk or at least a way go reverse it , the doctor said there is no way for them to know if ursofalk will stop the progression although it is usually slow , to scar the liver though even though

What is Ursofalk made from? I have no clues what I am putting in my system!

I’ve had another appointment with gastroenterologist and he’s told me to try Ursofalk again but start with 250mg as this is the best treatment for PBC, I’m just hoping it doesn’t affect me second time round.

What are the common side effects you have to this drug?

Now after about more than two years, at last back to officially diagnosed with PBC but no medications fore me since I get very bad rashes from Ursofalk. It is somehow comforting to know even without medications. Hoping for all to be doing well and your medications are working for you.

I started medication at the beginning of December 2019- I was on ursofalk and now my doctor has put me on ursotan? Can this make a big change?

Does anyone know if you can take oxbile with ursofalk. . I don’t have a gallbladder and find it hard to digest fats. I take a digestive enzyme and HCL

I asked the pharmacist why there was a generic one instead of Ursofalk and she told me the doctors have told them to give out generic medicine unless otherwise stated by them because of Brexit. The medicine was made in Latvia. Has anyone else had this happen to them?

My GP called to tell me although my ALT is still raised it has dropped 10 + points in a month after steadily rising over the last 12 months the only thing I have done differently over the last 6 weeks is to take Ursofalk instead of the cheaper generic version although the drug is the same as in Ursofalk

I was put on Ursofalk, which relieved a little, but not much, of the itching. I was happily taking my Ursofalk until 2017, when my Consultant told me I was virtually a non-responder and that he was going to try me on Bezafibrate as well as Ursofalk. The Bezafibrate I take is called Bezalip.

I had a massive flare up of the AIH in December 2018 which until then was well under control with 150mg Azathioprine & 1250mg Ursofalk But I got pleurisy & my consultant thinks being given Doxycycline caused the flare up.