I have AIH (2017) & PSC (2005) with Crohn’s disease (1998) and not in a good way this year with the liver. I had been having pain in my URQ for some time and then due to the PSC, had to have my gallbladder removed in 2017 and a few months later I was diagnosed with the crossover of AIH & PSC after the gallbladder was removed I had a lot of relief from the constant pain I was suffering but I’m getting a similar pain again, not anywhere near as bad mind you, and my liver specialists can’t understand why I have this pain. I had a massive flare up of the AIH in December 2018 which until then was well under control with 150mg Azathioprine & 1250mg Ursofalk But I got pleurisy & my consultant thinks being given Doxycycline caused the flare up. Kings then took me off the Azathioprine and it continued to get worse and worse, I’m now on 100mg Azathioprine and 10mg Prednisone and he wants to introduce me into PROGRAF 1mg twice daily to start but apparently it’s so expensive most gps don’t like to prescribe it and it has many side affects. I only have one kidney, pelvic & born like it but wonder if anyone else is currently on or has been on PROGRAF before and could share any experiences you may have had with it, good or bad. Also if anyone else has had this stabbing pain in their liver area too?
Thanks in advance!