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Urso
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PBC
Been on
Urso
since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs every now and then?
Been on
Urso
since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs every now and then?
Lekkerbek
in
PBC Foundation
8 years ago
Fibro myalgia and PBC
I am now on
urso
but it is quite late and my lfts are pretty raised and my liver was marked as 12.5 on the fibroscan.....,,but my back is somewhat better now I have given up gluten. When members of this site day they have bone pain..what is that exactly please?.
I am now on
urso
but it is quite late and my lfts are pretty raised and my liver was marked as 12.5 on the fibroscan.....,,but my back is somewhat better now I have given up gluten. When members of this site day they have bone pain..what is that exactly please?.
bobbycat
in
PBC Foundation
8 years ago
My Experience so far with PBC
My first question is: Is it the PBC or the
Urso
that causes that? Do any of you have the occasional glass of wine? My doctor says it's okay once or twice a month. I used to love my wine. FYI.
My first question is: Is it the PBC or the
Urso
that causes that? Do any of you have the occasional glass of wine? My doctor says it's okay once or twice a month. I used to love my wine. FYI.
PLB21
in
PBC Foundation
8 years ago
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Blood pressure pills and urso
I take it in the morning just before taking the
Urso
? Any ideas? Thx
I take it in the morning just before taking the
Urso
? Any ideas? Thx
Oscardog
in
PBC Foundation
8 years ago
statins
I have had a prescription review today at my doctors surgery with the pharmacist he has suggested I might want to start taking statins as preventative medicine I am going to be 70 in April I was diagnosed with PBC a few years ago my liver function has always been normal I do not take
urso
yet my
I have had a prescription review today at my doctors surgery with the pharmacist he has suggested I might want to start taking statins as preventative medicine I am going to be 70 in April I was diagnosed with PBC a few years ago my liver function has always been normal I do not take
urso
yet my
chrissey7
in
PBC Foundation
8 years ago
Urso- how long does it take to work?
I've been on
urso
for almost a month and LFTs havnt changed much. How long does it take for LFTs to start to decline? I have normal bilirubin and I'm Ama negative.
I've been on
urso
for almost a month and LFTs havnt changed much. How long does it take for LFTs to start to decline? I have normal bilirubin and I'm Ama negative.
RB28
in
PBC Foundation
8 years ago
Hubby just doesn't get it!
I take my
Urso
and folic acid in the morning and I throw in a capsule of oil of primrose as I also have arthritis of the spine. These I take in the morning. My folic acid levels were low and this can contribute to fatigue.
I take my
Urso
and folic acid in the morning and I throw in a capsule of oil of primrose as I also have arthritis of the spine. These I take in the morning. My folic acid levels were low and this can contribute to fatigue.
SuzCurran
in
PBC Foundation
8 years ago
breast pain
As I mentioned in a previous post, I was diagnosed with PBC in 2013, and have been managing my condition with
URSO
. A week ago I began having pain in my left breast, so badly that it woke me up in the night.
As I mentioned in a previous post, I was diagnosed with PBC in 2013, and have been managing my condition with
URSO
. A week ago I began having pain in my left breast, so badly that it woke me up in the night.
Seajeanie
in
British Liver Trust
8 years ago
First Post and a Thank You
I have been taking the
URSO
for nearly one month with no issues. Why is it so darned expensive? I have another blood test scheduled in a couple months. I guess this will now be part of the routine.
I have been taking the
URSO
for nearly one month with no issues. Why is it so darned expensive? I have another blood test scheduled in a couple months. I guess this will now be part of the routine.
MK3117
in
PBC Foundation
8 years ago
Promising response to fenofibrate
After a sudden increase in all of my liver enzymes last year and exclusion of AIH by biopsy my specialist felt my response to
Urso
was no longer optimal. He started me on fenofibrate which I have been taking for 2 months now. I have just had repeat bloods which showed a remarkable improvement!
After a sudden increase in all of my liver enzymes last year and exclusion of AIH by biopsy my specialist felt my response to
Urso
was no longer optimal. He started me on fenofibrate which I have been taking for 2 months now. I have just had repeat bloods which showed a remarkable improvement!
Puddles
in
PBC Foundation
8 years ago
Pbc/aih
Hi besides the dreaded itch not sleeping taking
urso
plus steroids started to have terrible headaches plus when I am in my bed have like heart palpitations have also osteoporosis and osteoarthritis and just getting over a broken arm to boot are these other issues normal .
Hi besides the dreaded itch not sleeping taking
urso
plus steroids started to have terrible headaches plus when I am in my bed have like heart palpitations have also osteoporosis and osteoarthritis and just getting over a broken arm to boot are these other issues normal .
jimshe
in
PBC Foundation
8 years ago
Amount of urso taken
I was diagnosed in June 2015 after having liver biopsy started on
urso
,I did,not have any symptoms before biopsy just blood test showing something wrong ,when all the results of the biopsy were back I found out I was at stage 3 which supprised me as I was thinking I would only be in the early stages.I
I was diagnosed in June 2015 after having liver biopsy started on
urso
,I did,not have any symptoms before biopsy just blood test showing something wrong ,when all the results of the biopsy were back I found out I was at stage 3 which supprised me as I was thinking I would only be in the early stages.I
Mozzamo
in
PBC Foundation
8 years ago
Concerned
i workout 4x a week and im very active, even though im constantly tired.... is there anything i may be doing wrong, or is it the side effect of
Urso
, been on it for 6 years ?? Anyone have that same problem with swelling? If so any suggestions that may help are appreciated.
i workout 4x a week and im very active, even though im constantly tired.... is there anything i may be doing wrong, or is it the side effect of
Urso
, been on it for 6 years ?? Anyone have that same problem with swelling? If so any suggestions that may help are appreciated.
Rosairobles
in
PBC Foundation
8 years ago
Support NE Scotland
She really wishes she could talk directly to someone in her area especially now been told they don't think the
Urso
doing its job for her. She doesn't drive and the chronic fatigue limits ability to travel.
She really wishes she could talk directly to someone in her area especially now been told they don't think the
Urso
doing its job for her. She doesn't drive and the chronic fatigue limits ability to travel.
coutryquine
in
PBC Foundation
8 years ago
PBC DVD for CDN Lady
After she passed, I still put off starting
URSO
since I didn't feel to bad. Within a few months I was in a terrible state and smartened up. I really noticed a remarkable difference with absolutely no side effects. If you've been prescribed
URSO
, start it right away!
After she passed, I still put off starting
URSO
since I didn't feel to bad. Within a few months I was in a terrible state and smartened up. I really noticed a remarkable difference with absolutely no side effects. If you've been prescribed
URSO
, start it right away!
Seajeanie
in
PBC Foundation
8 years ago
scared the urso will make me gain weight
I don't always take my
urso
because I feel the side effect of weight gain is too scary for me. I had a gastric sleeve done 2 years ago and lost 80 lbs. Im terrified I will gain it back.
I don't always take my
urso
because I feel the side effect of weight gain is too scary for me. I had a gastric sleeve done 2 years ago and lost 80 lbs. Im terrified I will gain it back.
sherikaye
in
PBC Foundation
8 years ago
New here
I am on
Urso
which reduced counts from 690 to 297 in 3 mths, but when I went back for appt 3 mths later #s were up to 308 (pooh). So now I have bloodwork monthly for 3 mths and then back to Gastro guy - unless it starts to rise - which means a biopsy and possible steroids.
I am on
Urso
which reduced counts from 690 to 297 in 3 mths, but when I went back for appt 3 mths later #s were up to 308 (pooh). So now I have bloodwork monthly for 3 mths and then back to Gastro guy - unless it starts to rise - which means a biopsy and possible steroids.
LindaVillanova
in
PBC Foundation
8 years ago
Urso
Hi all how long after a positive AMA blood test Should you be taking the medication, and is everyone prescribed it? Thanks.
Hi all how long after a positive AMA blood test Should you be taking the medication, and is everyone prescribed it? Thanks.
Twinkle26
in
PBC Foundation
8 years ago
Anyone been diagnosed with hypothyroidism since they've had PBC?
I was having a 6 month break off
URSO
to see if it affected my ALT and ALP as they were fairly borderline go starting it in the first place. They have worsened a bit and I'm waiting for my consultant appointment now. I assume this TSH means I have an under active thyroid.
I was having a 6 month break off
URSO
to see if it affected my ALT and ALP as they were fairly borderline go starting it in the first place. They have worsened a bit and I'm waiting for my consultant appointment now. I assume this TSH means I have an under active thyroid.
Mumoftwo81
in
PBC Foundation
8 years ago
Still confused!!
As I have said before I was diagnosed In May 2015, was given
Urso
and still waiting for treatment, only help I have had and explanation is with you guys , thankyou
As I have said before I was diagnosed In May 2015, was given
Urso
and still waiting for treatment, only help I have had and explanation is with you guys , thankyou
Sandie1
in
PBC Foundation
8 years ago
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