I usually don't vent but this is aggravating. I have stage 4 pbc have for the past 2 years. I don't sleep more than 4 hours at a time. I stay nauseated all the time. My eyes have started turning yellow and my skin is now gray. Unfortunately I'm not a good responder to urso. I stay tired all the time. What really gets me is my husband. He doesn't understand any of it and doesn't seem to try. All I hear out of him is if you would sleep all night you would feel better and not be so tired. I wish that worked. It would be great. But that has not happened in years. I cant explain it to him anymore or try to get him to understand it anymore. I'm tired of fighting him for my naps and not going all the time cause it just wears me out even more. I have went days without taking a nap just trying to get more than 4 hours of sleep it doesn't work. I have tried sleep aids the drs have tried sleeping pills. Nothing works. Does anyone else have this sleeping problem and nasuea problem? I just really don't have the energy to try to work it out with the hubby that I'm just about ready to leave. I'm mean really what the hell happened to throu sickness and health.
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