Foundation services

[DonnaBoll]

PBC Foundation Patient Services I want everyone to be aware of all The PBC Foundation offers to its members. I strongly encourage everyone to not only join but utilize these amazing sites for information, answers, self care suggestions, and some just for fun. We are so much more than PBC!

Helpline 0131 556 6811 or Email [e-mail]

Social Media – Facebook, Instragram and X (Twitter)

Please engage with these posts, like and share to increase our reach.

1. Q&As with clinicians which are held within ClickMeeting but also streamed live on

Facebook.

2. Patients can join us in the ClickMeeting for more privacy as the attendees or chat from that

session are not shown on Facebook.

3. Choose Me Tuesday Self-Care sessions which are now only on ClickMeeting so that patients

can engage and open up in a private and protected space.

4. We also have our more social events such as our weekly quizzes or music sessions - these are held just on Facebook.

5. ClickMeeting is free. No download needed if using computer or laptop

6.Download mobile app (meeting ID needed if using mobile app either on phone or tablet)

7. PBC TV on YouTube PBC Foundation - YouTube Again a free resource, no login needed but you can subscribe to be notified of any new videos that we post. Videos for newly diagnosed, specials for itch and fatigue. Our weekly Q&A’s are also uploaded here.

8. Bear Facts Magazine issued quarterly

9. Website We have our new website up and running and looking fab! Any username password issues please reach out to us. It includes our Information Resources these can also be available printed if required

PBC Compendium

EASL / AASLD Guidelines

Urso calculator

Information Leaflets

Previous editions of the Bear Facts

10. Mobile App New app is on it’s way which we’re really excited about.

11. Events page Details of all our events

Regional support meetings both face to face and on-line

Q&;A sessions

Choose Me Tuesday - Self-Care Sessions

Self-care sessions which we deliver in the UK and have taken across the world to places including Israel, Japan, Romania, Canada and the US.