Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,380 public posts
Filter results
Fenofibrate?
This would suggest
urso
not working. It says on the leaflet in the tablet box that you shouldn't take fenofibrate if you have liver disease. I read a bit more into this and while it does bring readings down there seems to be uncertainties about long term effects.
This would suggest
urso
not working. It says on the leaflet in the tablet box that you shouldn't take fenofibrate if you have liver disease. I read a bit more into this and while it does bring readings down there seems to be uncertainties about long term effects.
Jo53
in
PBC Foundation
7 years ago
AMA and ANA question
Hi, I was diagnosed in February and started on
URSO
. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
Hi, I was diagnosed in February and started on
URSO
. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
youaremysunshine
in
PBC Foundation
7 years ago
Green lipped muscle powder
I was diagnosed with PBC 10 years ago and take 2,000 mg of
Urso
daily. Thank you
I was diagnosed with PBC 10 years ago and take 2,000 mg of
Urso
daily. Thank you
Lozzy30
in
PBC Foundation
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pbc progressing ?
After initial shock I started on
urso
responded well .
After initial shock I started on
urso
responded well .
tessiecat
in
PBC Foundation
7 years ago
Bezafibrate
I have been on
Urso
for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 ! Is anyone else on this , I still have the terrible itch x
I have been on
Urso
for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 ! Is anyone else on this , I still have the terrible itch x
Melwoods
in
PBC Foundation
7 years ago
Ocaliva cost??
I just hope
URSO
works for me.
I just hope
URSO
works for me.
marty102
in
PBC Foundation
7 years ago
Milk thistle question
Hi, I was diagnosed in Dec 2012 after I had a liver biopsy, since then I'm suffering from extreme fatigue, I'm not working at the moment either, I have to admit I couldn't take the
urso
medicine it smells & tastes disgusting so for 3 years I didn't take this, I'm now on tablets, I had a ultrasound scan
Hi, I was diagnosed in Dec 2012 after I had a liver biopsy, since then I'm suffering from extreme fatigue, I'm not working at the moment either, I have to admit I couldn't take the
urso
medicine it smells & tastes disgusting so for 3 years I didn't take this, I'm now on tablets, I had a ultrasound scan
Shazzamattaz
in
British Liver Trust
7 years ago
Just need to vent
The
Urso
gives me horrible headaches about once a week. I just found out I'm Diabetic, I have Lung nodules, Sicca syndrome, high blood pressure it hit me all at once. I'm sorry I'm feeling sorry for myself today, I just needed to vent...
The
Urso
gives me horrible headaches about once a week. I just found out I'm Diabetic, I have Lung nodules, Sicca syndrome, high blood pressure it hit me all at once. I'm sorry I'm feeling sorry for myself today, I just needed to vent...
Hidden
in
PBC Foundation
7 years ago
Depressed and anxious
I was put on
urso
and I am seen every 6 months for blood tests. I feel I have deteriorated physically and definitely (Mentally) since the upset with my youngest son. Twill x
I was put on
urso
and I am seen every 6 months for blood tests. I feel I have deteriorated physically and definitely (Mentally) since the upset with my youngest son. Twill x
Twill
in
Anxiety Support
7 years ago
Don't know what to do.
I've been diagnosed two or three yrs ago now and it just doesn't seem to get any better I'm on
Urso
, but now my knees and hip hurt having Gynelogical problems. My Depression and anxiety have started to make its presence felt, I'm worn out and just don't know what to do....
I've been diagnosed two or three yrs ago now and it just doesn't seem to get any better I'm on
Urso
, but now my knees and hip hurt having Gynelogical problems. My Depression and anxiety have started to make its presence felt, I'm worn out and just don't know what to do....
Leighton56
in
PBC Foundation
7 years ago
Bloods
Was diagnosed with pbc 3 years ago, bloods at the time were very high but after taking
urso
they have got better over the past couple years, but when I have my lfts done they often fluctuate and it worries me , is it diet I hardly ever drink alcohol, does this happen to anyone else ? Many thanks
Was diagnosed with pbc 3 years ago, bloods at the time were very high but after taking
urso
they have got better over the past couple years, but when I have my lfts done they often fluctuate and it worries me , is it diet I hardly ever drink alcohol, does this happen to anyone else ? Many thanks
Ginnymax
in
PBC Foundation
7 years ago
Synthroid levels and Urso
Been on 600mg
Urso
. Here's my question- has anyone else had problems with Thyroid levels (TSH test numbers) changing dramatically after being on
Urso
? I had total thyroidectomy in 2010 and my TSH blood work had been same for 5 years.
Been on 600mg
Urso
. Here's my question- has anyone else had problems with Thyroid levels (TSH test numbers) changing dramatically after being on
Urso
? I had total thyroidectomy in 2010 and my TSH blood work had been same for 5 years.
EileenUSA
in
PBC Foundation
7 years ago
Blood results
At first Lfts were very high but have been a lot better since talking
urso
, but my blood tests fluctuate and this worries me , does anyone know why they do this ? Can it be diet ? I hardly drink alcohol one or two glasses of wine a year ! Or is this common in pbc . Many thanks,
At first Lfts were very high but have been a lot better since talking
urso
, but my blood tests fluctuate and this worries me , does anyone know why they do this ? Can it be diet ? I hardly drink alcohol one or two glasses of wine a year ! Or is this common in pbc . Many thanks,
Ginnymax
in
British Liver Trust
7 years ago
PBC
Went to my specialist on 9th May, delighted to hear that my blood test results have greatly improved the 3 months I am on
URSO
.....Don't go back to see him now for a year, GP for bloods in 6mths. Dexoscan to check my bone density.....
Went to my specialist on 9th May, delighted to hear that my blood test results have greatly improved the 3 months I am on
URSO
.....Don't go back to see him now for a year, GP for bloods in 6mths. Dexoscan to check my bone density.....
shebalion
in
PBC Foundation
7 years ago
Why my doctor won't give me Urso?
(gallbladder is removed due to small stones) It is said that starting
Urso
early can slow the progress. I am not sure why my doctor won't prescribe it to me. Is there any harm to take
Urso
before PBC is fully diagnosed? Thanks, Jane
(gallbladder is removed due to small stones) It is said that starting
Urso
early can slow the progress. I am not sure why my doctor won't prescribe it to me. Is there any harm to take
Urso
before PBC is fully diagnosed? Thanks, Jane
JaneIng
in
PBC Foundation
7 years ago
LDN a strong anti-inflammatory??
No drug interactions with them, or with the
URSO
either if you also have PBC like I do too. Just strange LDN didn't help with the RA. Stella Dx PBC 10/16 Dx Seronegative RA 4/17
No drug interactions with them, or with the
URSO
either if you also have PBC like I do too. Just strange LDN didn't help with the RA. Stella Dx PBC 10/16 Dx Seronegative RA 4/17
Ktltel
in
LDN Research Trust
7 years ago
Pain on both sides
I have had pain in both my sides for over two years now, was diagnosed 2 weeks ago and on
URSO
for two weeks...it does not go away and gets worse when I'm standing ( specifically at work standing 6-12hr shifts). What can I take for this?
I have had pain in both my sides for over two years now, was diagnosed 2 weeks ago and on
URSO
for two weeks...it does not go away and gets worse when I'm standing ( specifically at work standing 6-12hr shifts). What can I take for this?
tonia66
in
PBC Foundation
7 years ago
PBC confirmed
I read that a side effect of the
urso
is diarrhea but it seems to have has the opposite effect and I have constipation. Is there anyone who has experienced the same? I drink water and have prunes with breakfast every day is there anything else I can do or take?
I read that a side effect of the
urso
is diarrhea but it seems to have has the opposite effect and I have constipation. Is there anyone who has experienced the same? I drink water and have prunes with breakfast every day is there anything else I can do or take?
RoxyP
in
PBC Foundation
7 years ago
Not the worst thing I've had to live with....
My Alk-phos progressively got worse as time passed and pretty much stayed around 415-460 taking five 300ml
Urso
/day. In December, my doctor put me on Ocaliva WITH the
Urso
. It took Alk-phos down to 270ish BUT I broke out in an itchy rash.
My Alk-phos progressively got worse as time passed and pretty much stayed around 415-460 taking five 300ml
Urso
/day. In December, my doctor put me on Ocaliva WITH the
Urso
. It took Alk-phos down to 270ish BUT I broke out in an itchy rash.
Suzi8
in
PBC Foundation
7 years ago
Update
She said to him, I should keep taking the
Urso
at correct strength and the Questran (Boooo), but not the steroids yet. She says we have not got the whole picture as yet, it is a AI liver issue, my weight loss is a concern.
She said to him, I should keep taking the
Urso
at correct strength and the Questran (Boooo), but not the steroids yet. She says we have not got the whole picture as yet, it is a AI liver issue, my weight loss is a concern.
Jo_Br
in
PBC Foundation
7 years ago
1
...
40
41
42
...
69
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1249 results
British Liver Trust
74 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest