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Urso
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Burning eyes
Hi everyone I have a question....I have always had dry eyes but since I have been on
Urso
my eyes start burning anytime they get “wet”. Crying, yawning, or using my eye drops. Has anyone experienced this? Not sure if it’s something I should go see the doc about or just wait for my apt in April.
Hi everyone I have a question....I have always had dry eyes but since I have been on
Urso
my eyes start burning anytime they get “wet”. Crying, yawning, or using my eye drops. Has anyone experienced this? Not sure if it’s something I should go see the doc about or just wait for my apt in April.
Rottiemommy
in
PBC Foundation
5 years ago
Appointment with Gastro today
I am currently on
Urso
since Dec 24th alsong with Hydroxy for my Sjogrens Syndrome.
I am currently on
Urso
since Dec 24th alsong with Hydroxy for my Sjogrens Syndrome.
Shashwoo
in
PBC Foundation
5 years ago
Anyone else have their PBC itch stop?
Still take
URSO
.
Still take
URSO
.
kp1234
in
PBC Foundation
5 years ago
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Am I rejecting Urso
Has anyone ever rejected
Urso
after 2 years because of stomach/digestive issues
Has anyone ever rejected
Urso
after 2 years because of stomach/digestive issues
Jennyhadenough
in
PBC Foundation
5 years ago
Natural treatment for PBC?
A lot of questions: Okay, reading here is making me overcome my aversion to taking
URSO
, especially since I was diagnosed 6 years ago and for the past three weeks my liver has been aching a lot, right under that lowest front right rib.
A lot of questions: Okay, reading here is making me overcome my aversion to taking
URSO
, especially since I was diagnosed 6 years ago and for the past three weeks my liver has been aching a lot, right under that lowest front right rib.
scthompson
in
PBC Foundation
5 years ago
Muscle Aches
I was diagnosed a year ago and been on
URSO
ever since, my lfts are now within range thankfully. My lfts had been raised slightly since 2015 but PBC wasn’t picked up even though l have lupus and sjogrens. I have mild fibrosis and mild scarring of my liver.
I was diagnosed a year ago and been on
URSO
ever since, my lfts are now within range thankfully. My lfts had been raised slightly since 2015 but PBC wasn’t picked up even though l have lupus and sjogrens. I have mild fibrosis and mild scarring of my liver.
kingsnorth
in
PBC Foundation
5 years ago
My Endocrinologist won’t refer me for my PBC
Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need
Urso
in until I have symptoms And he doesn’t feel it does anything anyway, I had early signed picked up through endoscopy to look at gall bladder and ducts in 2015 all liver
Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need
Urso
in until I have symptoms And he doesn’t feel it does anything anyway, I had early signed picked up through endoscopy to look at gall bladder and ducts in 2015 all liver
Joanneconnor
in
PBC Foundation
5 years ago
Meds put up
Hiya guys my
urso
has been increased today from 750 to 1000 a day. Is that a lot?
Hiya guys my
urso
has been increased today from 750 to 1000 a day. Is that a lot?
BabyK
in
PBC Foundation
5 years ago
Alp levels
I have been on
urso
for almost a year. My alp is still high. 225. Is this normal?
I have been on
urso
for almost a year. My alp is still high. 225. Is this normal?
Tootoot
in
PBC Foundation
6 years ago
Cost of urso. Where can I order it?
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
Triciawc
in
PBC Foundation
5 years ago
Does it matter what time of the day I take my medication?
I’m on
urso
and ocaliva. I started a year ago for not responding to
urso
. In the beginning I gradually increased ocaliva dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare!
I’m on
urso
and ocaliva. I started a year ago for not responding to
urso
. In the beginning I gradually increased ocaliva dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare!
Gilz1702
in
PBC Foundation
6 years ago
Ursodiol
Has anyone experienced problems with chemists getting your
urso
prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.?
Has anyone experienced problems with chemists getting your
urso
prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.?
Mrsfancypants
in
PBC Foundation
6 years ago
Experiences of Ocaliva
Also, do you take with
Urso
or instead of it? Best wishes Hilary 💕
Also, do you take with
Urso
or instead of it? Best wishes Hilary 💕
Hils67
in
PBC Foundation
6 years ago
PBC Stage 0, no medication
Am I the only one with PBC and not taking
URSO
? I'm only taking Vitamin D, magnesium citrate and zinc...every day. Thank you.
Am I the only one with PBC and not taking
URSO
? I'm only taking Vitamin D, magnesium citrate and zinc...every day. Thank you.
Beatris03
in
PBC Foundation
6 years ago
Happy with first follow up labs
Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on
urso
.
Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on
urso
.
Sona_akb
in
PBC Foundation
6 years ago
Urso not working?
I started
Urso
November 7, and just had first labs to check. The alk. phos. level went up by over 25 points!! Has anyone else had this happen? Thanks, Lilygrower
I started
Urso
November 7, and just had first labs to check. The alk. phos. level went up by over 25 points!! Has anyone else had this happen? Thanks, Lilygrower
lilygrower
in
PBC Foundation
6 years ago
The Itch
Once I stop the tablets or should say ran out I went back by this time the doc had rang my consultant and he said I may have to change from the
Urso
Ive been taking but in the mean time to carry on with the anti histamines until I see consultant next month.
Once I stop the tablets or should say ran out I went back by this time the doc had rang my consultant and he said I may have to change from the
Urso
Ive been taking but in the mean time to carry on with the anti histamines until I see consultant next month.
Jude1
in
PBC Foundation
5 years ago
Cholesterol rising
Taking
urso
300 mg 2x a day. My alt and ast are now within normal range and my all pho’s is 161. But....my cholesterol is up to 250. I eat well and have never had cholesterol issues before. Can it bE related to the disease or the
urso
?
Taking
urso
300 mg 2x a day. My alt and ast are now within normal range and my all pho’s is 161. But....my cholesterol is up to 250. I eat well and have never had cholesterol issues before. Can it bE related to the disease or the
urso
?
jplitt
in
PBC Foundation
6 years ago
Specialist referral
My main concern is that I’m not responding to
URSO
...the only times my numbers come down is when I take my herbal tincture, but my GP refuses to acknowledge that it’s the herbal working not the
URSO
. Best wishes and Happy New Year to everyone. Hilary xx
My main concern is that I’m not responding to
URSO
...the only times my numbers come down is when I take my herbal tincture, but my GP refuses to acknowledge that it’s the herbal working not the
URSO
. Best wishes and Happy New Year to everyone. Hilary xx
Hils67
in
PBC Foundation
6 years ago
Urso and rapid weight gain
I was diagnosed with PBC in October and have been on
urso
for about 10 weeks now. In the last 10 weeks, I seem to have gained a lot of weight quite quickly. I'm almost 14lbs heavier than I was before starting
urso
, and this is starting to worry me - I can't keep gaining at this rate!
I was diagnosed with PBC in October and have been on
urso
for about 10 weeks now. In the last 10 weeks, I seem to have gained a lot of weight quite quickly. I'm almost 14lbs heavier than I was before starting
urso
, and this is starting to worry me - I can't keep gaining at this rate!
Rachie34
in
PBC Foundation
6 years ago
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