Experiences with

Urostomy

He has a urostomy bag because the PC had spread to his bladder and caused damage there. He's also down to one kidney for the same reason.

brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers

They performed the surgery (8.5 hrs) removing the bladder and creating a stoma opening in the abdomen from a bowel resection and created a a little pocket for the ureters to flow into which then flows into the urostomy bag outside on the abdomen.

As a result I've had a urostomy bag for best part of 45 years! (This does not bother me at all its part of me 😀). Since then I've been admitted to hospital for numerous problems. I've had a kidney removed, part of my bowel removed. A testical removed😅.

This is a friendly environment for people who have a colostomy, ileostomy or urostomy because of ovarian cancer to speak with others in similar circumstances.

My husband is about to have a urostomy surgery. He is scared, of course. He is 68 and needs the urostomy because of irreparable damage from post radiation strictures after prostate cancer treatment. Just wondering if anyone has any advice for someone about to go down this road.

This is a friendly environment for people who have a colostomy, ileostomy or urostomy because of ovarian cancer to speak with others in similar circumstances.

If it hasn’t healed enough Dan will have a urostomy. Just wondering if anyone else has been down this road and what their experience was?

Its never gotten any higher than that and constantly drops sometimes as low as 14.i had a urostomy performed about 20 years ago due to bladder disease and the slow degeneration of my kidney function may be as a result of that but no definitive cause has ever been found.

Fnd occured after mesh removal in2019 urostomy in 2020 diagnosis 2021 what foods have people successfully retained ok please. I live in new zealand im 56

I had a Ileostomy a few years bk then 4 months ago had to have my bladder taken away so ended up with a Urostomy , for some reason it’s caused a complication with my digestive system causing blockages which means I eat for 2 days then haved to have those lovely supplement drinks for 3-4 days !

I also have two stomas (colostomy and an urostomy). I was told in April that I would need an ileostomy, so I would have 3 stomas and this was reiterated over the weekend. I am home now but I get a lot of pain with wind.

I have 2 stomas (colostomy and an urostomy). The urostomy is fine but the colostomy does what it wants. My colostomy is very slow and there isn’t much poo in my stoma bag. I think it is constipation because with a bowel obstruction I get terrible pain.

I have a colostomy and an urostomy. I have a fistula which constantly leaks, PTSD and I have recently been diagnosed with radiation enteritis. The fistula leaks all sorts including a.bit of blood.

Irrigation & Faecal Collectors Catheters Changing Mats Disposable Pads Drainage Bags Female Devices Home Delivery & Prescription Services Male Devices – Including Penile Sheaths & Bodyworn Urinals Odour Control Pelvic floor Equipment Probiotics Skin Care Stoma Care & Accessories – Colostomy, Ileostomy, Urostomy

You can get this, as well as information and advice, from your stoma nurse, the Ileostomy and Internal Pouch Association, The Colostomy Association and The Urostomy Association, including certificates in different languages. The links to their information are at the bottom of this post.

Information and support for people with urostomies is available from the Urostomy Association at https://urostomyassociation.org.uk/ . A stoma can be permanent or temporary.

You can get this, as well as information and advice, from your stoma nurse, the Ileostomy and Internal Pouch Association (https://iasupport.org/about/publications/factsheets/travel-tips/), The Colostomy Association (http://www.colostomyuk.org/information/travel-advice/) and The Urostomy Association (

very keen to read peoples experiences and just see how much courage people really have .I have been in the care sector for over 30yrs and have always been the one who looked after people now people are looking after me as I am a lady who is 5wks after having bladder removal due to cancer and having a urostomy

Those organs were removed, they created a urostomy and it was hoped that I might be "cured". My next scans showed that my cancer had metastasized to my lungs. At this point, my doctors thought I had a year or two to live.