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Update
Just thought I’d give a little update! So I’d had a stent fitted to relieve a 90% blockage in my LAD artery in November 2021. I was therefore started on Prasugrel (antiplatelet med) in addition to the 75mg daily aspirin I was already taking. They then found I have a moderately leaky aortic valve. Being
Just thought I’d give a little update! So I’d had a stent fitted to relieve a 90% blockage in my LAD artery in November 2021. I was therefore started on Prasugrel (antiplatelet med) in addition to the 75mg daily aspirin I was already taking. They then found I have a moderately leaky aortic valve. Being
simplysal
in
British Heart Foundation
2 years ago
Besremi side effects.
Hi, I’ve read everyone of your posts for the last year and a half, and I really don’t know how I would have managed without you all. Hunter told me to get a specialist, and I did - Kuykendall at Moffitt in Tampa. I have my intown hematologist who I like and trust completely. She and Kuykendall are in
Hi, I’ve read everyone of your posts for the last year and a half, and I really don’t know how I would have managed without you all. Hunter told me to get a specialist, and I did - Kuykendall at Moffitt in Tampa. I have my intown hematologist who I like and trust completely. She and Kuykendall are in
TheaterCrazy
in
MPN Voice
2 years ago
PV Haematologist Discussion**UPDATE**
***Firstly I would like to thank everyone’s input all much appreciated. I can confirm that I have an appointment to get bloods done tomorrow at 11:30 and have secured the first appointment available with Dr Drummond MPN specialist on 10th October. On attendance for bloods I will get to the bottom of
***Firstly I would like to thank everyone’s input all much appreciated. I can confirm that I have an appointment to get bloods done tomorrow at 11:30 and have secured the first appointment available with Dr Drummond MPN specialist on 10th October. On attendance for bloods I will get to the bottom of
Hocus58
in
MPN Voice
2 years ago
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First Hematologist visit
27 M Symptoms Migraines w/ aura Itchy after shower (dont really get it anymore, but have in the past) Fatigue No history of Bleeding or Blood clots . About a month ago my PCP scheduled me a random blood test Platelets came back high at 1019, so I am scheduled to see a Hema. For the following
27 M Symptoms Migraines w/ aura Itchy after shower (dont really get it anymore, but have in the past) Fatigue No history of Bleeding or Blood clots . About a month ago my PCP scheduled me a random blood test Platelets came back high at 1019, so I am scheduled to see a Hema. For the following
Keanu808
in
MPN Voice
2 years ago
Besremi - CBC after the 9th dose at 175 mcg (25mcg lower than previous); no CBC test after the 8th dose
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 9th dose (results of 6/23/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 9th dose (results of 6/23/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Had my scratch, we are good to go
So my thyroid has come right down, 2.57 from 10 in 3 weeks and I’m estatic. I had my scan there’s no lumps or bumps anywhere so I then had my scratch. I’m not gonna lie it hurt like hell. I thought it would be exactly like the biopsy for my NK cells but this just hurt that bit more- I felt sick 🤢
So my thyroid has come right down, 2.57 from 10 in 3 weeks and I’m estatic. I had my scan there’s no lumps or bumps anywhere so I then had my scratch. I’m not gonna lie it hurt like hell. I thought it would be exactly like the biopsy for my NK cells but this just hurt that bit more- I felt sick 🤢
JudithSS
in
Fertility Network UK
2 years ago
Last 2 embryos - what to do …
We started our IVF journey in June 2020 and have had 7 transfers … 5 failed , 1 chemical in December 2021 and a miscarriage in April this year . We have 1 more chance so am happy to try anything … after a review with the doctor they are keeping me on the same protocol and just adding in aspirin if it
We started our IVF journey in June 2020 and have had 7 transfers … 5 failed , 1 chemical in December 2021 and a miscarriage in April this year . We have 1 more chance so am happy to try anything … after a review with the doctor they are keeping me on the same protocol and just adding in aspirin if it
XxMrsBXx
in
Fertility Network UK
2 years ago
TET2 Mutation
I have ET JAK2 pos and take hydroxycarbamide and low dose aspirin. After a routine blood test I've been informed that I have another mutation known as TET2. Can anyone throw any light on this please, what is it and what does it mean? Thanks Ian
I have ET JAK2 pos and take hydroxycarbamide and low dose aspirin. After a routine blood test I've been informed that I have another mutation known as TET2. Can anyone throw any light on this please, what is it and what does it mean? Thanks Ian
Trueblue8
in
MPN Voice
2 years ago
Post Triple CABG - 1 year medication review
Hi everyone, I'm 1 year post-operation and feeling pretty good in recovery (57 years old), About to contact my cardio doctor for my 1 year post-op medication review, currently my regime consists of: Morning: Omeprazole (20mg) / Amlodepine (5mg) / Bisoprolol (1.25mg) / Aspirin (75mg dispersible)
Hi everyone, I'm 1 year post-operation and feeling pretty good in recovery (57 years old), About to contact my cardio doctor for my 1 year post-op medication review, currently my regime consists of: Morning: Omeprazole (20mg) / Amlodepine (5mg) / Bisoprolol (1.25mg) / Aspirin (75mg dispersible)
Andrew_H
in
British Heart Foundation
2 years ago
Ibuprofen and aspirin
I have ET and normally take a 75mg aspirin alongside my Anagrelide, however my severe arthritis is having a major flare up, co-codamol isn’t touching it so I have had to take Ibuprofen for a couple of days. I haven’t taken my aspirin as I didn’t want to overdo the thinning drugs. It’s starting to calm
I have ET and normally take a 75mg aspirin alongside my Anagrelide, however my severe arthritis is having a major flare up, co-codamol isn’t touching it so I have had to take Ibuprofen for a couple of days. I haven’t taken my aspirin as I didn’t want to overdo the thinning drugs. It’s starting to calm
lizzziep
in
MPN Voice
2 years ago
What pain killers can I take when on HU?
I am experiencing terrible pain in my left hip/ thigh and leg and slept for only one hour last night. I had an X-ray and blood tests on Wednesday and await the X-ray results. Nothing was broken luckily. But meanwhile I am taking paracetamol every four hours which really doesn’t do much. As I’m on Hydroxycarbamide
I am experiencing terrible pain in my left hip/ thigh and leg and slept for only one hour last night. I had an X-ray and blood tests on Wednesday and await the X-ray results. Nothing was broken luckily. But meanwhile I am taking paracetamol every four hours which really doesn’t do much. As I’m on Hydroxycarbamide
Michali45
in
MPN Voice
2 years ago
Can I still cycle?
I was recently diagnosed with severe right aorta heart disease (moderate on the left). I've been put on various meds (statin, aspirin, anti-anginal). When my doctor explained what was happening I asked about exercise as I cycle quite a bit. He told me that I could continue but shouldn't cycle up hills
I was recently diagnosed with severe right aorta heart disease (moderate on the left). I've been put on various meds (statin, aspirin, anti-anginal). When my doctor explained what was happening I asked about exercise as I cycle quite a bit. He told me that I could continue but shouldn't cycle up hills
DegsyWilton
in
British Heart Foundation
2 years ago
Pre diabetic
Hello. I had a mild heart attack in October and now have been told I'm pre diabetic. Would the tablets I'm on have anything to do with this? Candesartan, Bisoprolol, Aspirin, Eplerenone, Omeprazole, Ticagrelor & newly started Rosuvastatin (as ALT level was high on previous statin)?
Hello. I had a mild heart attack in October and now have been told I'm pre diabetic. Would the tablets I'm on have anything to do with this? Candesartan, Bisoprolol, Aspirin, Eplerenone, Omeprazole, Ticagrelor & newly started Rosuvastatin (as ALT level was high on previous statin)?
Duvetdays15
in
British Heart Foundation
2 years ago
Hydroxyurea and aspirin.
Who else taking hydroxyurea and aspiriN for treatment et? Is it safe taking both.
Who else taking hydroxyurea and aspiriN for treatment et? Is it safe taking both.
shiela23
in
MPN Voice
2 years ago
Finally, my first Pegasys injection!
Hi all! After waiting for 3 months for a drug change, I finally had my first Peg injection this past Tuesday. My local hem/onc doc prescribed 90mcg for my first and my next injection in 14 days and 135mcg and then up to 185 in another 14 days. Not sure why she is going every other week. 🤷🏻♀️ I did
Hi all! After waiting for 3 months for a drug change, I finally had my first Peg injection this past Tuesday. My local hem/onc doc prescribed 90mcg for my first and my next injection in 14 days and 135mcg and then up to 185 in another 14 days. Not sure why she is going every other week. 🤷🏻♀️ I did
Wewo01
in
MPN Voice
2 years ago
Aspirin
When I started taking Aspirin I noticed all sorts of strange colours coming up on my arms . A bump would lead to a huge reddish bruise. Well now I don’t seem to have any of that two years later. Does anyone else encounter this
When I started taking Aspirin I noticed all sorts of strange colours coming up on my arms . A bump would lead to a huge reddish bruise. Well now I don’t seem to have any of that two years later. Does anyone else encounter this
Pollypuss
in
British Heart Foundation
2 years ago
Is it common to get chest pains with thyroid problems?
I saw a post today from someone who was having chest pain with their thyroid problem and was wondering if my pain could indicate I have the same. I have been in A&E today for the second time in 10 days with ongoing short, sharp pain on the left hand side of my chest with palpitations. Last week they
I saw a post today from someone who was having chest pain with their thyroid problem and was wondering if my pain could indicate I have the same. I have been in A&E today for the second time in 10 days with ongoing short, sharp pain on the left hand side of my chest with palpitations. Last week they
MrsSuzuki
in
Thyroid UK
2 years ago
Post angiogram
Hi all feeling very confused today. I had a Ct Angiogram a few months back suggested I required a stent, I commenced a lot of medications and was put forward for angioplasty . I went into hospital yesterday for angiogram/ angioplasty yesterday, I didn’t require a stent, the surgeon has reported mild
Hi all feeling very confused today. I had a Ct Angiogram a few months back suggested I required a stent, I commenced a lot of medications and was put forward for angioplasty . I went into hospital yesterday for angiogram/ angioplasty yesterday, I didn’t require a stent, the surgeon has reported mild
sickandsore
in
British Heart Foundation
2 years ago
Stomach Problems: Heart medication or late onset IBS?
Hi, Has anybody suffered from stomach cramps, gurgling, bloating and wind as a result of any of the following medicines? Ticagrelor 90mg, Atorvastatin 80mg, Lansoprazole 30mg or dispersible aspirin. I am 7 months into taking medication after my stent and everything was fine until about 3 weeks ago. Now
Hi, Has anybody suffered from stomach cramps, gurgling, bloating and wind as a result of any of the following medicines? Ticagrelor 90mg, Atorvastatin 80mg, Lansoprazole 30mg or dispersible aspirin. I am 7 months into taking medication after my stent and everything was fine until about 3 weeks ago. Now
HedgeHogHome
in
British Heart Foundation
2 years ago
Blood Test
So have been experiencing fatigue, dizziness and my restless legs have become worse. All since starting new meds since my cardiac stent was put into my LAD in Nov 2021. After the stent, was put on daily aspirin, an anti-platelet drug Prasugrel, Atorvastatin, Propranolol, Omeprazole. Was already on Thyroxine
So have been experiencing fatigue, dizziness and my restless legs have become worse. All since starting new meds since my cardiac stent was put into my LAD in Nov 2021. After the stent, was put on daily aspirin, an anti-platelet drug Prasugrel, Atorvastatin, Propranolol, Omeprazole. Was already on Thyroxine
simplysal
in
British Heart Foundation
2 years ago
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