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There is still HOPE
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
yo207
in
My Ovacome
8 months ago
MRD testing not offered
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
xpetes
in
CLL Support
8 months ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
8 months ago
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CMV PCR for blood <2.0E+2 IU/mL
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
rcusher
in
CLL Support
8 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
8 months ago
Tara, a chatbot that matches patients to clinical trials
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
CLL and mRNA Vaccines
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
BWHR
in
CLL Support
8 months ago
Parkinson's Disease Pipeline, Clinical Trials Assessment, and FDA Approvals 2023 (Updated)
https://www.benzinga.com/pressreleases/23/09/ab34834243/parkinsons-disease-pipeline-clinical-trials-assessment-and-fda-approvals-2023-updated?utm_source=dlvr.it&utm_medium=twitter
https://www.benzinga.com/pressreleases/23/09/ab34834243/parkinsons-disease-pipeline-clinical-trials-assessment-and-fda-approvals-2023-updated?utm_source=dlvr.it&utm_medium=twitter
Farooqji
in
Cure Parkinson's
8 months ago
moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
8 months ago
ELON MUSK's BRAIN invention to (hopefully) restore movement to those who are paralyzed!
"The first human patient will soon receive a Neuralink device. This ultimately has the potential to restore full body movement," Musk posted on X, the social media platform formerly known as Twitter. " "In a blog post, Neuralink announced that recruitment is open for the first-in-human clinical trial
"The first human patient will soon receive a Neuralink device. This ultimately has the potential to restore full body movement," Musk posted on X, the social media platform formerly known as Twitter. " "In a blog post, Neuralink announced that recruitment is open for the first-in-human clinical trial
PDWarrior1900
in
Cure Parkinson's
9 months ago
Online discussion opportunity about Patient Initiated Follow Up (PIFU)
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
Aribah-NRAS
NRAS
in
NRAS
9 months ago
Xtandi vs Orgovyx
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Captj440
in
Advanced Prostate Cancer
9 months ago
September 17 2023 11:20 AM EST
That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent injections rather than higher amounts only. I came up with that after reading clinical trials, protocols used, and many papers, books, case studies
That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent injections rather than higher amounts only. I came up with that after reading clinical trials, protocols used, and many papers, books, case studies
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
ERX-41
Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at present paid for clinical trials, as I understand in the UK offering those of a certain age a reward of a little over £7000. Posted this because
Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at present paid for clinical trials, as I understand in the UK offering those of a certain age a reward of a little over £7000. Posted this because
Hidden
in
My Ovacome
9 months ago
New ED Gell FDA Approved
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
Cancer2x
in
Advanced Prostate Cancer
9 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
9 months ago
Adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Here4ivfinfo
in
Fertility Network UK
9 months ago
Clinical trial results on 17p & tp53 variants in treatment naïve & relapsed patients by Dr. Furman - Oct 2022 to medical professionals
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
lankisterguy
Volunteer
in
CLL Support
9 months ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
9 months ago
💔 I have lost to many people recently to RLS Let their deaths not be in-vain.I’ve have a plan to bring more exposure. Will u help me X
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
Shumbah
in
Restless Legs Syndrome
9 months ago
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