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Tricuspid valve disease
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Caffeine
I’m on 87.5mcg levo for now (have been prescribed 100mcg, but am increasing slowly) and I plan to test again in another couple of weeks with MMH to see how my levels are doing. Over the past two weeks I’ve felt really well and have been out and about more - walking, shopping, out for coffee (only ever
I’m on 87.5mcg levo for now (have been prescribed 100mcg, but am increasing slowly) and I plan to test again in another couple of weeks with MMH to see how my levels are doing. Over the past two weeks I’ve felt really well and have been out and about more - walking, shopping, out for coffee (only ever
JoJoloveschocolate
in
Thyroid UK
1 month ago
Looking for any Info for Recent PC Diagnosis
I’m a 62 year old, recently diagnosed with advanced prostate cancer. I’ve been on hormone therapy for 2 weeks and see my oncologist in a week. My PC seems to be aggressive and my PSA is off the charts 885! I would love any positive info I can get.
I’m a 62 year old, recently diagnosed with advanced prostate cancer. I’ve been on hormone therapy for 2 weeks and see my oncologist in a week. My PC seems to be aggressive and my PSA is off the charts 885! I would love any positive info I can get.
Iber
in
Advanced Prostate Cancer
1 month ago
Dosage question.
I was diagnosed with Graves and overactive thyroid forty four years ago. I had a thyroidectomy and started on synthetic thyroid hormone therapy. I’m 69 now and take 100 mcg of Levothyroxine daily, my TSH is 0.291, low. What dose should I be taking?
I was diagnosed with Graves and overactive thyroid forty four years ago. I had a thyroidectomy and started on synthetic thyroid hormone therapy. I’m 69 now and take 100 mcg of Levothyroxine daily, my TSH is 0.291, low. What dose should I be taking?
UndertheTuscanSun
in
Thyroid UK
1 month ago
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Ascites
I’m going through the diagnosis process at the mo. Had CT scan last week. Follow up appointment isn’t until a week on Monday. I’m quite sure I’m suffering with ascites. Do I wait til that appointment to find out or should I call someone (consultant’s secretary or my own GP) to ask for it to be drained
I’m going through the diagnosis process at the mo. Had CT scan last week. Follow up appointment isn’t until a week on Monday. I’m quite sure I’m suffering with ascites. Do I wait til that appointment to find out or should I call someone (consultant’s secretary or my own GP) to ask for it to be drained
K-Bear88
in
My Ovacome
1 month ago
MRI HCC Scan and bloods.
Hi guys.I have just received my 6 months routine MRI Scan results . Like the other 5 scans I've had they've shown no features of concern and my next routine scan is booked for 6 months. The monitoring liver blood result was normal ( AFP <1). On the blood form for the next scan it shows Cirrhosis CPT
Hi guys.I have just received my 6 months routine MRI Scan results . Like the other 5 scans I've had they've shown no features of concern and my next routine scan is booked for 6 months. The monitoring liver blood result was normal ( AFP <1). On the blood form for the next scan it shows Cirrhosis CPT
Nip1
in
British Liver Trust
1 month ago
Fibroscan Frequency
I had a Fibroscan 3 months ago as an earlier US diagnosed I had cirrhosis. I have fatty liver and a LSM of 28.2 . I have given up alcohol completely since then. I asked the consultant when will I have another Fibroscan . He told me in about a year. I was hoping to have another one much sooner so
I had a Fibroscan 3 months ago as an earlier US diagnosed I had cirrhosis. I have fatty liver and a LSM of 28.2 . I have given up alcohol completely since then. I asked the consultant when will I have another Fibroscan . He told me in about a year. I was hoping to have another one much sooner so
Oldtag
in
British Liver Trust
1 month ago
recovery expectations
Hi all I’m coming up to 5 weeks after valve replacement, removal of web and thinning of thickened muscle. Had x ray and ecg, 60% healed and function looking good apparently. Which is great news. I’ve been walking each day, I’m up to a couple of miles and on short hills BPM up to 130. May have overdid
Hi all I’m coming up to 5 weeks after valve replacement, removal of web and thinning of thickened muscle. Had x ray and ecg, 60% healed and function looking good apparently. Which is great news. I’ve been walking each day, I’m up to a couple of miles and on short hills BPM up to 130. May have overdid
TriumphLover
in
British Heart Foundation
11 months ago
Encouraging results
Went for 6 monthly US today and they also fitted me in for a fibroscan. Well...the US showed a regular shaped, smooth liver with no nodules and only mild fatty liver. Fibroscan was still high at 40, but much better than 10 months ago when it was 74. My liver is recovering from the years of alcohol I
Went for 6 monthly US today and they also fitted me in for a fibroscan. Well...the US showed a regular shaped, smooth liver with no nodules and only mild fatty liver. Fibroscan was still high at 40, but much better than 10 months ago when it was 74. My liver is recovering from the years of alcohol I
Ilovedavid
in
British Liver Trust
1 month ago
Seven years later.
hi all, Im 7 years post transplant.some bile duct problems, but a good recovery after the main operation. I unfortunately still have fatigue and others symptoms but am alive and kicking 🤣 In the 7years since my transplant I have been lucky enough to become nanna to 7 grandchildren… One for each
hi all, Im 7 years post transplant.some bile duct problems, but a good recovery after the main operation. I unfortunately still have fatigue and others symptoms but am alive and kicking 🤣 In the 7years since my transplant I have been lucky enough to become nanna to 7 grandchildren… One for each
Singlady
in
PBC Foundation
1 month ago
Pluvicto and PSA
Hi Gents, Prior to starting Pluvicto my PSA was 29.29, after round 1, 23.67, after round 2, 14.47, after round 3, 17.70. I then had a PSMA-PET scan. It showed all bone metastases except one were either receding or gone. After round 4, my PSA is now 21.51. I don’t get it. If almost all my metastases
Hi Gents, Prior to starting Pluvicto my PSA was 29.29, after round 1, 23.67, after round 2, 14.47, after round 3, 17.70. I then had a PSMA-PET scan. It showed all bone metastases except one were either receding or gone. After round 4, my PSA is now 21.51. I don’t get it. If almost all my metastases
MJCA
in
Advanced Prostate Cancer
2 months ago
Updates to de novo metastatic prostate cancer treatment
Q. Is the current standard of care has changed in just one year? Docetaxel may now be considered in low volume and de novo disease together with an AR pathway inhibitor and radiation therapy indications should be extended not only to low volume but also to high-volume de novo disease? A. Yes, there
Q. Is the current standard of care has changed in just one year? Docetaxel may now be considered in low volume and de novo disease together with an AR pathway inhibitor and radiation therapy indications should be extended not only to low volume but also to high-volume de novo disease? A. Yes, there
Seasid
in
Advanced Prostate Cancer
2 months ago
Help Interpreting PET Scan Results
This is for my son's father (and my best friend). His biopsy showed prostate cancer, Gleason Score 7 (3+4), Grade 2, cancer found in all 12 cores. Yesterday he went in for a PSMA PET Scan and the results were delivered to his online account this morning. His Dr is closed for the holiday weekend so
This is for my son's father (and my best friend). His biopsy showed prostate cancer, Gleason Score 7 (3+4), Grade 2, cancer found in all 12 cores. Yesterday he went in for a PSMA PET Scan and the results were delivered to his online account this morning. His Dr is closed for the holiday weekend so
Autumn911
in
Advanced Prostate Cancer
2 months ago
to anyone new to the group.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Wednesday's Word
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Organ Donation for Transplant and Research
This post is talking about Organ Donation upon Death, so please take care to choose to read on further.
I recently went down to the Blood and Transplant Service Head Office in Bristol and attended a workshop on the importance of organ research. There were four of us fellow liver transplantees
This post is talking about Organ Donation upon Death, so please take care to choose to read on further.
I recently went down to the Blood and Transplant Service Head Office in Bristol and attended a workshop on the importance of organ research. There were four of us fellow liver transplantees
Richard-Allen
in
British Liver Trust
2 months ago
Thoughts on bloods please
These are my bloods from Jan past….. (due to get them updated shortly) ….but just wanted to know what your thoughts on these are please? I’m not converting T4 to T3 and really struggling. Your thoughts on iron, ferritin etc please would be greatly appreciated. I was given a trial of low dose T3
These are my bloods from Jan past….. (due to get them updated shortly) ….but just wanted to know what your thoughts on these are please? I’m not converting T4 to T3 and really struggling. Your thoughts on iron, ferritin etc please would be greatly appreciated. I was given a trial of low dose T3
FoxyTed
in
Thyroid UK
2 months ago
Scott completed the almost 11,000 mile cycle trip
Some of you have been following Scott's cycle trip around the perimeter of the United States while he was treated for advanced, metastatic prostate cancer. We are happy to report he finished. ESPN OTL did a nice piece summarizing the journey at the following link, hope it encourages and inspires you
Some of you have been following Scott's cycle trip around the perimeter of the United States while he was treated for advanced, metastatic prostate cancer. We are happy to report he finished. ESPN OTL did a nice piece summarizing the journey at the following link, hope it encourages and inspires you
Katyandscott
in
Advanced Prostate Cancer
2 months ago
What does ‘neuroendocrine differentiation' mean in metastatic prostate cancer?
My 71 year old dad has been diagnosed with metastatic prostate cancer with neuroendocrine differentiation - he had absolutely zero symptoms until a lymph node on his neck swelled up. It’s metastasised to his lower spine and sternum too. He’s just had his oncology appointment today and they’re going to
My 71 year old dad has been diagnosed with metastatic prostate cancer with neuroendocrine differentiation - he had absolutely zero symptoms until a lymph node on his neck swelled up. It’s metastasised to his lower spine and sternum too. He’s just had his oncology appointment today and they’re going to
NikkiJayne
in
Advanced Prostate Cancer
2 months ago
Some 'tips' for new/already diagnosed members
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Part 1 of my liver assessment
Finally got put forward for part 1 of my liver assessment for a possible transplant, it's going to be a very long day on Monday and I will be 7 days post drain, so I will be like a beached whale again, grateful to be finally put forward for it and a bit nervous, any advice on what to expect or what to
Finally got put forward for part 1 of my liver assessment for a possible transplant, it's going to be a very long day on Monday and I will be 7 days post drain, so I will be like a beached whale again, grateful to be finally put forward for it and a bit nervous, any advice on what to expect or what to
bushburywolf
in
British Liver Trust
2 months ago
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