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Experiences with
Transurethral resection of the prostate (TURP)
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First post and learning as much as possible
Hi My husband is 59 and I have added as much info to my Bio as possible about him and this journey. We just found out yesterday that he is BRCA2 positive from blood germline testing. This is the first time I have posted but I have been reading everything several times a day for a few months now. He
Hi My husband is 59 and I have added as much info to my Bio as possible about him and this journey. We just found out yesterday that he is BRCA2 positive from blood germline testing. This is the first time I have posted but I have been reading everything several times a day for a few months now. He
positive-thinking
in
Advanced Prostate Cancer
6 months ago
What Helps Me With Hypochondria
Like many of you, my OCD often takes the form of hypochondria. I can't tell you the number of times I thought I was dying or the number of times I went to see a doctor because of some minor symptom. I've developed some coping strategies which helped me. I thought I'd share them here. 1. No checking
Like many of you, my OCD often takes the form of hypochondria. I can't tell you the number of times I thought I was dying or the number of times I went to see a doctor because of some minor symptom. I've developed some coping strategies which helped me. I thought I'd share them here. 1. No checking
Worrier1960
in
Anxiety and Depression Support
6 months ago
What they don't tell you about Androgen Deprivation Therapy (ADT, hormone therapy) unedited version
https://youtu.be/zYWbaEx4x4U What do you want to know about Androgen Deprivation Therapy (ADT, hormone therapy)? Learn from this interview with the massively knowledgeable researcher Richard Wassersug, Ph. D., and his colleague and coauthor, Lauren Walker, Ph.D. And consider clicking the link
https://youtu.be/zYWbaEx4x4U What do you want to know about Androgen Deprivation Therapy (ADT, hormone therapy)? Learn from this interview with the massively knowledgeable researcher Richard Wassersug, Ph. D., and his colleague and coauthor, Lauren Walker, Ph.D. And consider clicking the link
Darryl
Partner
in
Advanced Prostate Cancer
10 months ago
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QoL Please, always
Friends, please remember to include the letters "QoL" in front of your title whenever you post about quality of life things that are not directly related to prostate cancer
Friends, please remember to include the letters "QoL" in front of your title whenever you post about quality of life things that are not directly related to prostate cancer
Darryl
Partner
in
Advanced Prostate Cancer
10 months ago
PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
8 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
6 months ago
Detection of Small Cell Prostate Cancer
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
dac500
in
Advanced Prostate Cancer
9 months ago
Combine standard care with alternative care
The University of Maryland reported two cases of terminated PCs by combining standard care treatment with an alternative treatment. By reducing the PSAs to less than 3, the clioquinol + zinc killed more cancer than testosterone could renew, therefore termination. My PSA in three months went from 58
The University of Maryland reported two cases of terminated PCs by combining standard care treatment with an alternative treatment. By reducing the PSAs to less than 3, the clioquinol + zinc killed more cancer than testosterone could renew, therefore termination. My PSA in three months went from 58
agnut
in
Fight Prostate Cancer
9 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
6 months ago
BAT Patient Guide
I was re-reading Dr. Denmeade's BAT Patient Guide (well worth checking out) and came across the following quote near the end. Thus far, Denmeade seems to have done his own, smaller trials. "A larger randomized study comparing overall patient survival following treatment with sequential BAT → Xtandi
I was re-reading Dr. Denmeade's BAT Patient Guide (well worth checking out) and came across the following quote near the end. Thus far, Denmeade seems to have done his own, smaller trials. "A larger randomized study comparing overall patient survival following treatment with sequential BAT → Xtandi
dhccpa
in
Advanced Prostate Cancer
10 months ago
how long typically does it take from diagnosis to treatment?
Hello, my father was just diagnosed with advanced aggressive prostate cancer Gleason 9-10 (TBC). Bone scan and CT scan are next to check for spread (please God it hasn’t), but the scans are not for another 2.5 weeks! Then follow-up to discuss results a full week after that. Which seems insane that we
Hello, my father was just diagnosed with advanced aggressive prostate cancer Gleason 9-10 (TBC). Bone scan and CT scan are next to check for spread (please God it hasn’t), but the scans are not for another 2.5 weeks! Then follow-up to discuss results a full week after that. Which seems insane that we
LDC2024
in
Advanced Prostate Cancer
6 months ago
Psa is back
Well I made it to 27 months of upsa testing after my surgery and went from <0.01 to my first detectable of 0.01. Don’t know what this means but I guess the next few upsa tests will be telling. Maybe a lab variation maybe not.
Well I made it to 27 months of upsa testing after my surgery and went from <0.01 to my first detectable of 0.01. Don’t know what this means but I guess the next few upsa tests will be telling. Maybe a lab variation maybe not.
Blackholes
in
Advanced Prostate Cancer
6 months ago
pregnancy with portal hypertension
Hi everyone, I just wanted to know if anyone on here has been pregnant and has portal hypertension (Specifically with esophageal varices as this is my biggest issue/ risk factor). I’m looking into whether or not this would be possible in the future and am not pregnant now. I am already under the
Hi everyone, I just wanted to know if anyone on here has been pregnant and has portal hypertension (Specifically with esophageal varices as this is my biggest issue/ risk factor). I’m looking into whether or not this would be possible in the future and am not pregnant now. I am already under the
GEMMA1991
in
British Liver Trust
1 year ago
My initial MRI and wait time for biopsy
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion
jethrotullag
in
Prostate Cancer Network
6 months ago
Switch from Lupron/abi to Orgovyx/abi?
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
jackwfrench
in
Prostate Cancer Network
6 months ago
Prostap long protocol
Hi everyone,I'm due to have a scan tomorrow to confirm whether we can proceed to egg collection on Monday (5th Feb) I am doing a long protocol and my prostap injection runs out on Saturday (3rd Feb) do any of you know if I'll have to do another one? It's a slow release injection so lasts for 28 days
Hi everyone,I'm due to have a scan tomorrow to confirm whether we can proceed to egg collection on Monday (5th Feb) I am doing a long protocol and my prostap injection runs out on Saturday (3rd Feb) do any of you know if I'll have to do another one? It's a slow release injection so lasts for 28 days
SarahHit
in
Fertility Network UK
7 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
9 months ago
Zytiga after failing nubeqa ?
Has anyone had any luck with Zytiga after nubeqa fails to hold down PSA? I have been mCRPC for a few years now and Im curious if there is any chance Zytiga would work after the combination of Orgovyx/Nubeqa failed. I had some good results years ago when I was still nmCRPC with Firmagon/Xtandi, but had
Has anyone had any luck with Zytiga after nubeqa fails to hold down PSA? I have been mCRPC for a few years now and Im curious if there is any chance Zytiga would work after the combination of Orgovyx/Nubeqa failed. I had some good results years ago when I was still nmCRPC with Firmagon/Xtandi, but had
joeguy
in
Advanced Prostate Cancer
9 months ago
Anti-proliferative effect of Cannabidiol in Prostate cancer cell PC3
More on CBD and prostate cancer Anti-proliferative effect of Cannabidiol in Prostate cancer cell PC3 is mediated by apoptotic cell death, NF?B activation, increased oxidative stress, and lower reduced glutathione status https://pubmed.ncbi.nlm.nih.gov/37796968/ Abstract Prostate cancer is
More on CBD and prostate cancer Anti-proliferative effect of Cannabidiol in Prostate cancer cell PC3 is mediated by apoptotic cell death, NF?B activation, increased oxidative stress, and lower reduced glutathione status https://pubmed.ncbi.nlm.nih.gov/37796968/ Abstract Prostate cancer is
NewPotatoCaboose
in
Advanced Prostate Cancer
10 months ago
Treatment decision made
Decided to go the treatment route, took me a while but AS is no good mentally, PSA has crept up from 4.2 to 5.1 in 18 months, awaiting appt date with oncologist.Presumably SBRT as per discussion when diagnosed in autumn '22, will be at Christies Manchester. Will keep folk posted. Removal of the offending
Decided to go the treatment route, took me a while but AS is no good mentally, PSA has crept up from 4.2 to 5.1 in 18 months, awaiting appt date with oncologist.Presumably SBRT as per discussion when diagnosed in autumn '22, will be at Christies Manchester. Will keep folk posted. Removal of the offending
pd63
in
Prostate Cancer Network
6 months ago
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