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Experiences with
Transurethral resection of the prostate (TURP)
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Proton Beam radiation
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
EBBEFLUT
in
Advanced Prostate Cancer
3 months ago
Vein problems on prostap!?
Hi All! I’m hoping someone may be able to help me or have had similar experiences. I’ve been on prostap for 9 months since my laparoscopy for endo and cysts etc. I have had extreme menopause symptoms since. The usual things like the hot flushes and brain fog. Also tingling, aches and pains, needing
Hi All! I’m hoping someone may be able to help me or have had similar experiences. I’ve been on prostap for 9 months since my laparoscopy for endo and cysts etc. I have had extreme menopause symptoms since. The usual things like the hot flushes and brain fog. Also tingling, aches and pains, needing
Capybara123
in
Endometriosis UK
4 months ago
raised blood sugar on prostap
hi I’ve been on prostap now for 17 months, I started feeling not as well on it about four months ago, low mood again, bag fatigue, cystic acne around my mouth, and my b12 and folate levels are low, but also it has raised my blood sugars, has anyone else had this? My consultant said I have to stop them
hi I’ve been on prostap now for 17 months, I started feeling not as well on it about four months ago, low mood again, bag fatigue, cystic acne around my mouth, and my b12 and folate levels are low, but also it has raised my blood sugars, has anyone else had this? My consultant said I have to stop them
Tootie2008
in
Endometriosis UK
4 months ago
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Dental Issues with Finesteride
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
fast_eddie
in
Advanced Prostate Cancer
7 months ago
xtandi failing?
In September last year my PSA was 0.06. Three months later PSA was 0.09. I asked my doctor if xtandi was failing. He told me not necessarily, once your PSA reached its lowest point, it tends to go up and down before it settles down. He told me they would check my PSA in six weeks, six weeks later
In September last year my PSA was 0.06. Three months later PSA was 0.09. I asked my doctor if xtandi was failing. He told me not necessarily, once your PSA reached its lowest point, it tends to go up and down before it settles down. He told me they would check my PSA in six weeks, six weeks later
Echotango51
in
Advanced Prostate Cancer
7 months ago
oligometastic
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
Howard53545
in
Advanced Prostate Cancer
3 months ago
improving!
My PSA reading a few months ago was 1900+. it had been rising constantly for three years. Then I started taking Fenbendazole tablets for three days each week, and my PSA reading dropped by 400 each month and it is now 800+ and hopefully continuing to reduce! Mobellman
My PSA reading a few months ago was 1900+. it had been rising constantly for three years. Then I started taking Fenbendazole tablets for three days each week, and my PSA reading dropped by 400 each month and it is now 800+ and hopefully continuing to reduce! Mobellman
Mobellman
in
Advanced Prostate Cancer
3 months ago
BAT treatment
Looks like this is the next step for hubby as LU177 Pluvicto 6 treatments completed. Unfortunately PSA has doubled, so going to try a reverse approach suggested by our Urologist. John Hopkins was the study trial location. Hubby would be our urologist first patient to try this. See if you can find
Looks like this is the next step for hubby as LU177 Pluvicto 6 treatments completed. Unfortunately PSA has doubled, so going to try a reverse approach suggested by our Urologist. John Hopkins was the study trial location. Hubby would be our urologist first patient to try this. See if you can find
hz5flm
in
Advanced Prostate Cancer
3 months ago
Started Xtandi mono therapy 2 months ago but after dropping PSA from 3.3 to .82 its now up to1.360. Continue with SBRT to 4 spots next week?
PSMA Scan results from March 5, 2024 ONCOLOGIC FINDINGS: History of metastatic castrate resistant prostate cancer status post interval radiation therapy to T3 and right 3rd rib with: - Post surgical changes prior prostatectomy - Essentially resolved prior PSMA uptake in right 3rd posterior rib and
PSMA Scan results from March 5, 2024 ONCOLOGIC FINDINGS: History of metastatic castrate resistant prostate cancer status post interval radiation therapy to T3 and right 3rd rib with: - Post surgical changes prior prostatectomy - Essentially resolved prior PSMA uptake in right 3rd posterior rib and
SViking
in
Advanced Prostate Cancer
3 months ago
Does taking Tamsulosin plus Dutaseride for BPH mask true PSA numbers ?
Before I got diagnosed with PCa , I was taking Tamsulosin plus Dutaseride for many years to control symptoms of BPH. My question is does taking them for many years show a false lower psa number than it actually would be ?
Before I got diagnosed with PCa , I was taking Tamsulosin plus Dutaseride for many years to control symptoms of BPH. My question is does taking them for many years show a false lower psa number than it actually would be ?
Simpson80
in
Advanced Prostate Cancer
12 days ago
Docetaxel and Carboplatin
I’ve been on the PC journey for 12 years. I’ve had lupron and all the standard “poisons” that we get, including Pluvicto. My PSA is now up to 99.5. I have bone mets in my lower back and sacrum w periodic pain that’s controlled w pain meds. My oncologist is recommending a chemo concoction of Docetaxel
I’ve been on the PC journey for 12 years. I’ve had lupron and all the standard “poisons” that we get, including Pluvicto. My PSA is now up to 99.5. I have bone mets in my lower back and sacrum w periodic pain that’s controlled w pain meds. My oncologist is recommending a chemo concoction of Docetaxel
JoeyDad
in
Advanced Prostate Cancer
7 months ago
Prostate cancer
My prostate condition started around eight years ago when I had urinary track infection which also led to prostatitis. Ever since then, my PSA jumped from 2 to 7.8 during the last 5 years. I had two biopsies… first one, four years ago, they detected no positive cancer cells in my prostate. However
My prostate condition started around eight years ago when I had urinary track infection which also led to prostatitis. Ever since then, my PSA jumped from 2 to 7.8 during the last 5 years. I had two biopsies… first one, four years ago, they detected no positive cancer cells in my prostate. However
Yuncoinc7148
in
Fight Prostate Cancer
8 months ago
Should Perineural Invasion (PNI) change my Radiation Treatment Plan
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Seminole0412
in
Advanced Prostate Cancer
7 months ago
Still confused about PSA and Testosterone testing
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
Mgtd
in
Advanced Prostate Cancer
8 months ago
Right phrenic nerve paralysis
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
rfgh20
in
Advanced Prostate Cancer
7 months ago
Celebrex and Curcumin and Magnesium.
I recently received a question from a fellow warrior based on a comment I had made on an older post that he had started. The question was what I thought about Naproxen compered to Celebrex and I told him I had very limited experience with Naproxen. I then clicked on older posts about nsaids and prostate
I recently received a question from a fellow warrior based on a comment I had made on an older post that he had started. The question was what I thought about Naproxen compered to Celebrex and I told him I had very limited experience with Naproxen. I then clicked on older posts about nsaids and prostate
Professorgary
in
Advanced Prostate Cancer
3 months ago
options after Docetaxel
Hi- I have posted before concerning my brother’s prostate treatment. To give a brief overview- my brother was diagnosed in March 2021. He responded well to Abiraterone for 18 months. Once his PSA starting trending upwards he was put on several sessions of Docetaxel. Unfortunately at this time, he
Hi- I have posted before concerning my brother’s prostate treatment. To give a brief overview- my brother was diagnosed in March 2021. He responded well to Abiraterone for 18 months. Once his PSA starting trending upwards he was put on several sessions of Docetaxel. Unfortunately at this time, he
TerryR123
in
Advanced Prostate Cancer
7 months ago
Need more info on related symptoms
On the surface, I seem to be doing very well. Per earlier posts: Gleason 5+4, intraductal, possible perinueral spread, PET scan shows spread to lymph nodes only but as distant as the clavicle. Apparently these clavicle lymph nodes show up very pale on the scan and are too small to biopsy. But, treatment
On the surface, I seem to be doing very well. Per earlier posts: Gleason 5+4, intraductal, possible perinueral spread, PET scan shows spread to lymph nodes only but as distant as the clavicle. Apparently these clavicle lymph nodes show up very pale on the scan and are too small to biopsy. But, treatment
Willie51
in
Prostate Cancer And Gay Men
3 months ago
Sterlings Reply
Please forgive the lateness but here it is:Four years after prostectomy my psa began to rise. I had eight weeks of radiation to the prostate bed. Psa returned to nondetectable for eleven years. Two years ago my psa began to rise at an alarming rate it was doubling monthly if not more. I started eligard
Please forgive the lateness but here it is:Four years after prostectomy my psa began to rise. I had eight weeks of radiation to the prostate bed. Psa returned to nondetectable for eleven years. Two years ago my psa began to rise at an alarming rate it was doubling monthly if not more. I started eligard
Praying2BHealthy
in
Advanced Prostate Cancer
8 months ago
Starting Chemo again, Cabazitaxel Has anybody experienced any side effects that have been unusually bad?
After having been NED for the past six years I now have to go back on Chemo treatments. The first round of Chemo was with Taxotere and now My Cancer has become castrate resistant. PSA is now no longer a good indicator for disease progression. I'm not looking forward to doing this but it's what has to
After having been NED for the past six years I now have to go back on Chemo treatments. The first round of Chemo was with Taxotere and now My Cancer has become castrate resistant. PSA is now no longer a good indicator for disease progression. I'm not looking forward to doing this but it's what has to
redbank
in
Advanced Prostate Cancer
7 months ago
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