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Virtual support group for dialysis patient?
Hi I'm looking for a virtual support group for someone starting dialysis. The ones I know about either have mostly transplant recipients (I prefer to have people who are going through dialysis, or about to start), or the meeting is mostly hearing from a speaker rather than people sharing their experience
Hi I'm looking for a virtual support group for someone starting dialysis. The ones I know about either have mostly transplant recipients (I prefer to have people who are going through dialysis, or about to start), or the meeting is mostly hearing from a speaker rather than people sharing their experience
Kbristow
in
Kidney Dialysis
1 year ago
How did you decide on your dialysis method/modality?
A friend will be starting dialysis and wants to know what are some reasons a patient choose their modality. I shared with her how I decided on PD so I'm not as familiar with the in-center hemo experience. She is a full time caregiver for a family member at home and isn't sure how she will find care
A friend will be starting dialysis and wants to know what are some reasons a patient choose their modality. I shared with her how I decided on PD so I'm not as familiar with the in-center hemo experience. She is a full time caregiver for a family member at home and isn't sure how she will find care
Kbristow
in
Kidney Dialysis
1 year ago
Access to meds problems?
Last gfr was 15. Not having dialysis nor transplant. So, now classed as palliative and on Conservative care. Is anyone experiencing difficulty getting meds, in particular cyclizine?
Last gfr was 15. Not having dialysis nor transplant. So, now classed as palliative and on Conservative care. Is anyone experiencing difficulty getting meds, in particular cyclizine?
ellen3
in
dRTA (distal Renal Tubular Acidosis)
1 year ago
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Peritoneal dialysis and high blood pressure
I would really appreciate any feedback from those who are on or have been on PD. My 76 year old dad just started PD this past week. The nephro ordered 1 manual exchange nightly with purple bag (extraneal) but after starting this my dad’s BP has skyrocketed to over 190-210 systolic. His baseline BP before
I would really appreciate any feedback from those who are on or have been on PD. My 76 year old dad just started PD this past week. The nephro ordered 1 manual exchange nightly with purple bag (extraneal) but after starting this my dad’s BP has skyrocketed to over 190-210 systolic. His baseline BP before
Marbella17
in
Kidney Disease
1 year ago
Swollen legs seem like baloons
I am a 45 year old nurse so being on my legs is no new idea....but even though I take 4 hours dialysis 3 days a weekand am usually on or close to my dry weight my legs are baloons from feet to knees and it makes it near impossible well extremely hard to walk friends have advised tbsp vinegar a day i
I am a 45 year old nurse so being on my legs is no new idea....but even though I take 4 hours dialysis 3 days a weekand am usually on or close to my dry weight my legs are baloons from feet to knees and it makes it near impossible well extremely hard to walk friends have advised tbsp vinegar a day i
NurseRed
in
Kidney Dialysis
1 year ago
A couple of questions
Hi, I have a couple of questions on dialysis. How do you know or what are the symptoms that say it's time to start dialysis? Then, what can happen when on dialysis? The downside of it. It's pretty easy to find the upside but not a lot on the downside and I'm sure there are some. And then, your
Hi, I have a couple of questions on dialysis. How do you know or what are the symptoms that say it's time to start dialysis? Then, what can happen when on dialysis? The downside of it. It's pretty easy to find the upside but not a lot on the downside and I'm sure there are some. And then, your
jodaer
in
Kidney Dialysis
1 year ago
kt/v test
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
Beachgirl32
in
Kidney Dialysis
1 year ago
Starting Home Dialysis-Advice?
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
WillaCather
in
Kidney Transplant
1 year ago
Double Nephrectomy?
So I am 2 1/2 years into dialysis, still searching for a living donor because the wait in CO for my type O blood is 7 years : ( I have PKD, and the cysts have envaded my kidneys so badly that they are huge and I frequently suffer cycst rupture symptoms (fever, flu, inflammation.) My surgeons are ready
So I am 2 1/2 years into dialysis, still searching for a living donor because the wait in CO for my type O blood is 7 years : ( I have PKD, and the cysts have envaded my kidneys so badly that they are huge and I frequently suffer cycst rupture symptoms (fever, flu, inflammation.) My surgeons are ready
BeachLove
in
Kidney Transplant
1 year ago
Relationship trouble
Hi everyone , I have been in a relationship for almost a year. It has been a whirlwind. Got engaged, started planning the wedding, he moved in recently. A week after moving in he ending up in hospital and ICU. He had kidney failure so he now needs dialysis. Things were good until he started
Hi everyone , I have been in a relationship for almost a year. It has been a whirlwind. Got engaged, started planning the wedding, he moved in recently. A week after moving in he ending up in hospital and ICU. He had kidney failure so he now needs dialysis. Things were good until he started
Gealtachta
in
Anxiety and Depression Support
1 year ago
Knee and joint pain after dialysis
I am on dialysis for 5 yrs now post my first transplant failed. I get knee pain which gets bad immediately after dialysis and slows down in 1-2 days. It never goes away completely. I have checked for RA but it is negative. Anybody experienced this? Any solution?
I am on dialysis for 5 yrs now post my first transplant failed. I get knee pain which gets bad immediately after dialysis and slows down in 1-2 days. It never goes away completely. I have checked for RA but it is negative. Anybody experienced this? Any solution?
ashok5085
in
Kidney Disease
1 year ago
Newly Transplanted Kidney
After three years on the wait list, I got the call last week to come in and have a kidney transplanted from a deceased donor. My expectation that it would be another three years of waiting, so this was quite a pleasant surprise. My whole life changed in an instant. I was so happy and yet very scared
After three years on the wait list, I got the call last week to come in and have a kidney transplanted from a deceased donor. My expectation that it would be another three years of waiting, so this was quite a pleasant surprise. My whole life changed in an instant. I was so happy and yet very scared
Hidden
in
Kidney Transplant
1 year ago
The Queen is Back in the Building
Hi Everyone, I'm back, I know it has been a minute. Thursday I had surgery to remove a dermoid cyst and an ovary, ended up just taking the cyst. They said the ovary looked fine. I went home the same day. I've been sore a few days and with certain movements, but I'll be back to work on Thursday. I missed
Hi Everyone, I'm back, I know it has been a minute. Thursday I had surgery to remove a dermoid cyst and an ovary, ended up just taking the cyst. They said the ovary looked fine. I went home the same day. I've been sore a few days and with certain movements, but I'll be back to work on Thursday. I missed
HipHopQueen
in
Kidney Dialysis
1 year ago
Peritoneal Dialysis
Do we have to bandage out sites for the duration of having it? I did not like the belt so I use the lanyards for my catheter; they are more comfortable.
Do we have to bandage out sites for the duration of having it? I did not like the belt so I use the lanyards for my catheter; they are more comfortable.
SadMad
in
Kidney Disease
1 year ago
Working on Dialysis w/ Medicaid
Does anyone currently on dialysis work full or part time? I would like to know your experience. Also, if there is anyone working on dialysis who has Medicaid, I would like to know how you're able to work and keep your insurance. The insurance question is very important. I've recently graduated from university
Does anyone currently on dialysis work full or part time? I would like to know your experience. Also, if there is anyone working on dialysis who has Medicaid, I would like to know how you're able to work and keep your insurance. The insurance question is very important. I've recently graduated from university
StormCl0ud
in
Kidney Dialysis
1 year ago
New to dialysis; CKD caused by lithium
I started dialysis last August after my kidneys dropped into the Stage 5 range (functioning at less than 10% of normal). I'm 59. Because I'm single and was living by myself, I had few good options but to move into a long-term rehab facility in a nearby suburb that has an on-site hemodialysis clinic.
I started dialysis last August after my kidneys dropped into the Stage 5 range (functioning at less than 10% of normal). I'm 59. Because I'm single and was living by myself, I had few good options but to move into a long-term rehab facility in a nearby suburb that has an on-site hemodialysis clinic.
chicagotrekkie
in
Kidney Dialysis
1 year ago
Can't stop arguing!
I've been training for dialysis for 6 months. It's been really long for reasons I don't want to get into. I've had many nurse preceptors and often get contradictory instructions. I often have no confidence in my ability to judge how important a given issue is. And I can't help it. EVERY time, I push
I've been training for dialysis for 6 months. It's been really long for reasons I don't want to get into. I've had many nurse preceptors and often get contradictory instructions. I often have no confidence in my ability to judge how important a given issue is. And I can't help it. EVERY time, I push
Blue_186281_red
in
CHADD's Adult ADHD Support
1 year ago
Update on beginning home dialysis
Hi everyone, I just wanted to update everyone on what eventually happened with the home dialysis. I thank you all for your advice. I began the peritoneal dialysis last week. The nurse was very thorough, patient, and answered all my questions. By the end of a couple of days, I was able to do a manual
Hi everyone, I just wanted to update everyone on what eventually happened with the home dialysis. I thank you all for your advice. I began the peritoneal dialysis last week. The nurse was very thorough, patient, and answered all my questions. By the end of a couple of days, I was able to do a manual
WillaCather
in
Kidney Transplant
1 year ago
different error on pd dialysis claria machine
The other night I had a strange error it said check supply line reheating heater I have had check supply line but never reheating heater . It said there might not be enough fluid to finish therapy but there was still fluid in bag So I put a pic on what I had to do to get back to fill it took me a couple
The other night I had a strange error it said check supply line reheating heater I have had check supply line but never reheating heater . It said there might not be enough fluid to finish therapy but there was still fluid in bag So I put a pic on what I had to do to get back to fill it took me a couple
Beachgirl32
in
Kidney Dialysis
1 year ago
Kidney Transplant help
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Highgfr
in
Kidney Disease
1 year ago
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